Public Profile -- hu030E3D
Public profile url: https://my.pgp-hms.org/profile/hu030E3D
Personal Health Records
Demographic Information
Date of Birth | 1965-02-17 (59 years old) |
---|---|
Gender | Female |
Weight | 143lbs (65kg) |
Height | 5ft 7in (170cm) |
Blood Type | O+ |
Race | White |
Conditions
Name | Start Date | End Date |
---|---|---|
Cluster headaches, Primary Chronic | 1978-02-23 | |
Hypothyroidism | 1999-09-01 | |
Raynaud's phenomenon | 1977-01-01 |
Medications
Name | Dosage | Frequency | Start Date | End Date |
---|---|---|---|---|
Cyproheptadine | 4 mg Tablet | Take 2, 2 times per day | 1986-01-01 | |
Levothyroxine | 100 mcg Tablet | Take 1, 1 time per day | 1999-01-01 | |
Ultram ER | 300 mg Tablet Sustained Release 24 hr | Take 1, 1 time per day in the morning | 2010-06-18 |
Allergies
Name | Reaction/Severity | Start Date | End Date |
---|---|---|---|
cow's milk proteins (whey, caseine) | MILD | 1978-01-01 |
Procedures
Name | Date |
---|---|
Implantation of Occipital Nerve Stimulator | 2007-01-01 |
Test Results
Name | Result | Date |
---|---|---|
Diastolic Blood Pressure | 78 mmHg | 2010-08-30 |
Systolic Blood Pressure | 102 mmHg | 2010-08-30 |
Height | 67 inches | 2010-10-15 |
Weight | 143 lb | 2010-10-15 |
Immunizations
Name | Date |
---|---|
Flu Shot | 2009-01-01 |
H1N1 Vaccine | 2009-01-01 |
Updated: 2010-10-15T20:00:35.172Z
Samples
None available.Uploaded data
None available.Geographic Information
Not added.Family Members Enrolled
not genetically related (e.g. husband/wife) | linked 2012-04-23 18:13:19 UTC |
Surveys
PGP Participant Survey | Responses submitted 7/19/2011 14:27:14. Show responses |
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Timestamp | 7/19/2011 14:27:14 |
Year of birth | 40-49 years |
Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait | Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | Chronic Intractable Cluster Headache (primary chronic, starting in childhood/adolescence) |
Disease/trait: Onset | 10-19 years of age |
Disease/trait: Rarity | Very rare/uncommon |
Disease/trait: Severity | Very severe disease |
Disease/trait: Relative enrollment | Maybe |
Disease/trait: Diagnosis | Yes |
Disease/trait: Genetic confirmation | No |
Disease/trait: Documentation | Yes |
Disease/trait: Documentation description | Written reports, case histories from several headache specialists. |
Sex/Gender | Female |
Race/ethnicity | White |
Maternal grandmother: Country of origin | United States |
Paternal grandmother: Country of origin | United States |
Paternal grandfather: Country of origin | United States |
Maternal grandfather: Country of origin | United States |
Enrollment of relatives | No |
Enrollment of older individuals | No |
Enrollment of parents | No |
Have you uploaded genetic data to your PGP participant profile? | No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? | Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | Yes |
Uploaded health records: Update status | Yes |
Uploaded health records: Extensiveness | 3 |
Blood sample | Yes |
Saliva sample | Yes |
Microbiome samples | Yes |
Tissue samples from surgery | Yes |
Tissue samples from autopsy | Yes |
Absolute Pitch Survey
Survey not taken.Enrollment History
Participant ID: | hu030E3D |
Account created: | 2010-10-13 22:54:33 UTC |
Eligibility screening: | 2010-10-13 23:19:13 UTC (passed v2) |
Exam: | 2010-10-14 00:17:18 UTC (passed v2) |
Consent: | 2015-08-06 14:30:24 UTC (passed v20150505) |
Enrolled: | 2010-10-14 12:05:42 UTC |