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Public Profile -- hu030E3D

Public profile url: https://my.pgp-hms.org/profile/hu030E3D

Personal Health Records

Demographic Information

Date of Birth1965-02-17 (55 years old)
GenderFemale
Weight143lbs (65kg)
Height5ft 7in (170cm)
Blood TypeO+
RaceWhite

Conditions

Name Start Date End Date
Cluster headaches, Primary Chronic 1978-02-23
Hypothyroidism 1999-09-01
Raynaud's phenomenon 1977-01-01

Medications

Name Dosage Frequency Start Date End Date
Cyproheptadine 4 mg Tablet Take 2, 2 times per day 1986-01-01
Levothyroxine 100 mcg Tablet Take 1, 1 time per day 1999-01-01
Ultram ER 300 mg Tablet Sustained Release 24 hr Take 1, 1 time per day in the morning 2010-06-18

Allergies

Name Reaction/Severity Start Date End Date
cow's milk proteins (whey, caseine) MILD 1978-01-01

Procedures

Name Date
Implantation of Occipital Nerve Stimulator 2007-01-01

Test Results

Name Result Date
Diastolic Blood Pressure 78 mmHg 2010-08-30
Systolic Blood Pressure 102 mmHg 2010-08-30
Height 67 inches 2010-10-15
Weight 143 lb 2010-10-15

Immunizations

Name Date
Flu Shot 2009-01-01
H1N1 Vaccine 2009-01-01

Updated: 2010-10-15T20:00:35.172Z

Samples

None available.

Uploaded data

None available.

Geographic Information

Not added.

Family Members Enrolled

not genetically related (e.g. husband/wife) linked 2012-04-23 18:13:19 UTC

Surveys

PGP Participant Survey Responses submitted 7/19/2011 14:27:14. Show responses
Timestamp 7/19/2011 14:27:14
Year of birth 40-49 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Chronic Intractable Cluster Headache (primary chronic, starting in childhood/adolescence)
Disease/trait: Onset 10-19 years of age
Disease/trait: Rarity Very rare/uncommon
Disease/trait: Severity Very severe disease
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation Yes
Disease/trait: Documentation description Written reports, case histories from several headache specialists.
Sex/Gender Female
Race/ethnicity White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals No
Enrollment of parents No
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? Yes
Uploaded health records: Update status Yes
Uploaded health records: Extensiveness 3
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes

Absolute Pitch Survey

Survey not taken.

Enrollment History

Participant ID:hu030E3D
Account created:2010-10-13 22:54:33 UTC
Eligibility screening:2010-10-13 23:19:13 UTC (passed v2)
Exam:2010-10-14 00:17:18 UTC (passed v2)
Consent:2015-08-06 14:30:24 UTC (passed v20150505)
Enrolled:2010-10-14 12:05:42 UTC