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Public Profile -- huE11A1A

Public profile url: https://my.pgp-hms.org/profile/huE11A1A

Personal Health Records

Demographic Information

Date of Birth1981-07-08 (43 years old)
Gender
Weight165lbs (75kg)
Height5ft 10in (177cm)
Blood Type
Race

Conditions

Name Start Date End Date
Young Onset Parkinson's Disease 2011-11-11

Medications

Name Dosage Frequency Start Date End Date
Ambien, 10 mg oral tablet 10 Milligram (mg) Take 1, 1 at night as needed
cyclobenzaprine 10 mg oral tablet 10 Milligram (mg) Take 1, as needed
Clonazepam Oral Tablet 0.5 Milligram (mg) Take 1, 1 at night
Sinemet CR 50-200 Extended Release Tablet 200 Milligram (mg) Take 1, 1 time at night
Sinemet 25-100 100 Milligram (mg) Take 2, 4 times daily

Allergies

Name Reaction/Severity Start Date End Date

Procedures

Name Date

Test Results

Name Result Date

Immunizations

Name Date

Updated: 2013-05-17T22:58:14.0078216

Samples

None available.

Uploaded data

None available.

Geographic Information

State:Indiana

Family Members Enrolled

None added.

Surveys

PGP Participant Survey Responses submitted 5/16/2013 17:46:08. Show responses
Timestamp 5/16/2013 17:46:08
Year of birth 30-39 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Young Onset Parkinson's Disease
Disease/trait: Onset 30-39 years of age
Disease/trait: Rarity Very rare/uncommon
Disease/trait: Severity Moderate severity disease
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation Yes
Disease/trait: Documentation description My clinical diagnosis of Young Onset Parkinson's Disease was made in November of 2011. I have Clinic Summarries from my neurologist (a movement disorder specialist) as proof, but otherwise they are not particularly interesting.
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals No
Enrollment of parents Maybe
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? Yes
Uploaded health records: Update status Yes
Uploaded health records: Extensiveness 2
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Trait & Disease Survey 2012: Nervous System Responses submitted 5/16/2013 17:47:14. Show responses
Timestamp 5/16/2013 17:47:14
Have you ever been diagnosed with one of the following conditions? Parkinson's disease
PGP Trait & Disease Survey 2012: Cancers Responses submitted 5/16/2013 17:47:58. Show responses
Timestamp 5/16/2013 17:47:58
PGP Trait & Disease Survey 2012: Blood Responses submitted 5/17/2013 22:43:58. Show responses
Timestamp 5/17/2013 22:43:58
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity Responses submitted 5/17/2013 22:44:29. Show responses
Timestamp 5/17/2013 22:44:29
PGP Trait & Disease Survey 2012: Vision and hearing Responses submitted 5/17/2013 22:46:38. Show responses
Timestamp 5/17/2013 22:46:38
Have you ever been diagnosed with one of the following conditions? Astigmatism
PGP Trait & Disease Survey 2012: Circulatory System Responses submitted 5/17/2013 22:47:10. Show responses
Timestamp 5/17/2013 22:47:10
PGP Trait & Disease Survey 2012: Respiratory System Responses submitted 5/17/2013 22:47:42. Show responses
Timestamp 5/17/2013 22:47:42
PGP Trait & Disease Survey 2012: Digestive System Responses submitted 5/17/2013 22:50:19. Show responses
Timestamp 5/17/2013 22:50:19
Have you ever been diagnosed with any of the following conditions? Dental cavities, Gingivitis
PGP Trait & Disease Survey 2012: Genitourinary Systems Responses submitted 5/17/2013 22:51:04. Show responses
Timestamp 5/17/2013 22:51:04
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue Responses submitted 5/17/2013 22:51:37. Show responses
Timestamp 5/17/2013 22:51:37
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue Responses submitted 5/17/2013 22:52:29. Show responses
Timestamp 5/17/2013 22:52:29
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies Responses submitted 5/17/2013 22:53:07. Show responses
Timestamp 5/17/2013 22:53:07

Absolute Pitch Survey [see all responses]

Can tell if notes are in tune: Yes
Can sing a melody on key: No
Can recognize musical intervals: No
Do you have absolute pitch? No

Enrollment History

Participant ID:huE11A1A
Account created:2013-05-15 16:08:30 UTC
Eligibility screening:2013-05-15 16:11:11 UTC (passed v2)
Exam:2013-05-15 16:33:58 UTC (passed v20120430)
Consent:2015-08-06 14:33:34 UTC (passed v20150505)
Enrolled:2013-05-16 16:41:29 UTC