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PGP Participant Survey
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Responses submitted 5/16/2013 17:46:08.
Show responses
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| Timestamp |
5/16/2013 17:46:08 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Young Onset Parkinson's Disease |
| Disease/trait: Onset |
30-39 years of age |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
My clinical diagnosis of Young Onset Parkinson's Disease was made in November of 2011. I have Clinic Summarries from my neurologist (a movement disorder specialist) as proof, but otherwise they are not particularly interesting. |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
2 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 5/16/2013 17:47:14.
Show responses
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| Timestamp |
5/16/2013 17:47:14 |
| Have you ever been diagnosed with one of the following conditions? |
Parkinson's disease |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 5/16/2013 17:47:58.
Show responses
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| Timestamp |
5/16/2013 17:47:58 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 5/17/2013 22:43:58.
Show responses
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| Timestamp |
5/17/2013 22:43:58 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 5/17/2013 22:44:29.
Show responses
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| Timestamp |
5/17/2013 22:44:29 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 5/17/2013 22:46:38.
Show responses
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| Timestamp |
5/17/2013 22:46:38 |
| Have you ever been diagnosed with one of the following conditions? |
Astigmatism |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 5/17/2013 22:47:10.
Show responses
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| Timestamp |
5/17/2013 22:47:10 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 5/17/2013 22:47:42.
Show responses
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| Timestamp |
5/17/2013 22:47:42 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 5/17/2013 22:50:19.
Show responses
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| Timestamp |
5/17/2013 22:50:19 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 5/17/2013 22:51:04.
Show responses
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| Timestamp |
5/17/2013 22:51:04 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 5/17/2013 22:51:37.
Show responses
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| Timestamp |
5/17/2013 22:51:37 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 5/17/2013 22:52:29.
Show responses
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| Timestamp |
5/17/2013 22:52:29 |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 5/17/2013 22:53:07.
Show responses
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| Timestamp |
5/17/2013 22:53:07 |
