Personal Genome Project

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Public Profile -- hu781C4E

Public profile url: https://my.pgp-hms.org/profile/hu781C4E

Personal Health Records

None added.

Samples

Saliva Collection for Multiple Studies Sample 87604097 (saliva) received 2012-09-13 17:15:38 UTC by Harvard University / TeloMe, Inc..   Show log
2012-10-02 20:55:34 UTC Harvard University / TeloMe, Inc. Sample transferred to plate 21373917 (id=54) well C08 (id=32)
2012-09-13 17:15:38 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-09-13 17:15:38 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-04-30 22:54:32 UTC hu781C4E Sample returned to researcher
2012-03-25 18:32:33 UTC hu781C4E Sample received by participant
2012-02-29 19:14:31 UTC Harvard University / TeloMe, Inc. Sample sent
2012-02-09 21:40:32 UTC Harvard University / TeloMe, Inc. Sample created
Sample 89783865 (saliva) received 2012-09-13 17:15:35 UTC by Harvard University / TeloMe, Inc..   Show log
2012-10-02 20:55:32 UTC Harvard University / TeloMe, Inc. Sample transferred to plate 31634327 (id=55) well C08 (id=32)
2012-09-13 17:15:35 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-09-13 17:15:35 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-04-30 22:54:32 UTC hu781C4E Sample returned to researcher
2012-03-25 18:32:33 UTC hu781C4E Sample received by participant
2012-02-29 19:14:31 UTC Harvard University / TeloMe, Inc. Sample sent
2012-02-09 21:40:32 UTC Harvard University / TeloMe, Inc. Sample created

Uploaded data

None available.

Geographic Information

State:Florida
Zip code:33948

Family Members Enrolled

not genetically related (e.g. husband/wife) linked 2011-10-04 12:18:12 UTC

Surveys

PGP Participant Survey Responses submitted 10/4/2011 8:20:31. Show responses
Timestamp 10/4/2011 8:20:31
Year of birth 80-89 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Alzheimer's
Disease/trait: Onset After 60 years of age
Disease/trait: Rarity Uncommon
Disease/trait: Severity Very severe disease
Disease/trait: Relative enrollment Yes, I have one or more affected relatives who have expressed an interest
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation No
Sex/Gender Female
Race/ethnicity White
Maternal grandmother: Country of origin Other / don't know / no response
Paternal grandmother: Country of origin Other / don't know / no response
Paternal grandfather: Country of origin Other / don't know / no response
Maternal grandfather: Country of origin Other / don't know / no response
Enrollment of relatives Yes
Enrollment of older individuals Yes
Enrollment of parents No
Enrolled relatives [Children] 1
Enrolled relatives [Not genetically related (e.g. husband/wife)] 1
Are all your enrolled relatives linked to your PGP profile? Yes
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, and I do not plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Participant Survey Responses submitted 10/16/2012 16:15:20. Show responses
Timestamp 10/16/2012 16:15:20
Year of birth 80-89 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Alzheimer's
Disease/trait: Onset After 60 years of age
Disease/trait: Rarity Uncommon
Disease/trait: Severity Very severe disease
Disease/trait: Relative enrollment Yes, I have one or more affected relatives who have expressed an interest
Sex/Gender Female
Race/ethnicity White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives Yes
Enrollment of older individuals No
Enrollment of parents No
Enrolled relatives [Children] 1
Enrolled relatives [Not genetically related (e.g. husband/wife)] 1
Are all your enrolled relatives linked to your PGP profile? Yes
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, but I plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Trait & Disease Survey 2012: Cancers Responses submitted 10/16/2012 16:18:46. Show responses
Timestamp 10/16/2012 16:18:46
Other condition not listed here? lymph node cancer
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity Responses submitted 10/16/2012 16:19:22. Show responses
Timestamp 10/16/2012 16:19:22
Have you ever been diagnosed with any of the following conditions? High cholesterol (hypercholesterolemia)
PGP Trait & Disease Survey 2012: Blood Responses submitted 10/16/2012 16:19:43. Show responses
Timestamp 10/16/2012 16:19:43
PGP Trait & Disease Survey 2012: Nervous System Responses submitted 10/16/2012 16:20:24. Show responses
Timestamp 10/16/2012 16:20:24
PGP Trait & Disease Survey 2012: Vision and hearing Responses submitted 10/16/2012 16:21:14. Show responses
Timestamp 10/16/2012 16:21:14
Have you ever been diagnosed with one of the following conditions? Retinal detachment, Age-related macular degeneration, Age-related cataract, Myopia (Nearsightedness), Age-related hearing loss
PGP Trait & Disease Survey 2012: Circulatory System Responses submitted 10/16/2012 16:21:57. Show responses
Timestamp 10/16/2012 16:21:57
Have you ever been diagnosed with one of the following conditions? Hypertension, Congestive heart failure, Stroke, Hemorrhoids
PGP Trait & Disease Survey 2012: Respiratory System Responses submitted 10/16/2012 16:22:20. Show responses
Timestamp 10/16/2012 16:22:20
PGP Trait & Disease Survey 2012: Digestive System Responses submitted 10/16/2012 16:23:06. Show responses
Timestamp 10/16/2012 16:23:06
Have you ever been diagnosed with any of the following conditions? Dental cavities, Gingivitis, Diverticulosis
PGP Trait & Disease Survey 2012: Genitourinary Systems Responses submitted 10/16/2012 16:23:44. Show responses
Timestamp 10/16/2012 16:23:44
Have you ever been diagnosed with any of the following conditions? Urinary tract infection (UTI)
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue Responses submitted 10/16/2012 16:24:08. Show responses
Timestamp 10/16/2012 16:24:08
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue Responses submitted 10/16/2012 16:24:46. Show responses
Timestamp 10/16/2012 16:24:46
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies Responses submitted 10/16/2012 16:25:15. Show responses
Timestamp 10/16/2012 16:25:15

Absolute Pitch Survey [see all responses]

Can tell if notes are in tune: No
Can sing a melody on key: No
Can recognize musical intervals: No
Do you have absolute pitch? No

Enrollment History

Participant ID:hu781C4E
Account created:2011-09-19 13:14:36 UTC
Eligibility screening:2011-09-19 13:16:57 UTC (passed v2)
Exam:2011-09-20 19:14:33 UTC (passed v2)
Consent:2015-08-06 14:31:10 UTC (passed v20150505)
Enrolled:2011-09-30 12:12:41 UTC