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PGP Participant Survey
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Responses submitted 10/4/2011 8:20:31.
Show responses
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| Timestamp |
10/4/2011 8:20:31 |
| Year of birth |
80-89 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Alzheimer's |
| Disease/trait: Onset |
After 60 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Very severe disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Other / don't know / no response |
| Paternal grandmother: Country of origin |
Other / don't know / no response |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
Other / don't know / no response |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
No |
| Enrolled relatives [Children] |
1 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, and I do not plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 10/16/2012 16:15:20.
Show responses
|
| Timestamp |
10/16/2012 16:15:20 |
| Year of birth |
80-89 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Alzheimer's |
| Disease/trait: Onset |
After 60 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Very severe disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Children] |
1 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/16/2012 16:18:46.
Show responses
|
| Timestamp |
10/16/2012 16:18:46 |
| Other condition not listed here? |
lymph node cancer |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/16/2012 16:19:22.
Show responses
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| Timestamp |
10/16/2012 16:19:22 |
| Have you ever been diagnosed with any of the following conditions? |
High cholesterol (hypercholesterolemia) |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/16/2012 16:19:43.
Show responses
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| Timestamp |
10/16/2012 16:19:43 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 10/16/2012 16:20:24.
Show responses
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| Timestamp |
10/16/2012 16:20:24 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/16/2012 16:21:14.
Show responses
|
| Timestamp |
10/16/2012 16:21:14 |
| Have you ever been diagnosed with one of the following conditions? |
Retinal detachment, Age-related macular degeneration, Age-related cataract, Myopia (Nearsightedness), Age-related hearing loss |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 10/16/2012 16:21:57.
Show responses
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| Timestamp |
10/16/2012 16:21:57 |
| Have you ever been diagnosed with one of the following conditions? |
Hypertension, Congestive heart failure, Stroke, Hemorrhoids |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 10/16/2012 16:22:20.
Show responses
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| Timestamp |
10/16/2012 16:22:20 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/16/2012 16:23:06.
Show responses
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| Timestamp |
10/16/2012 16:23:06 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis, Diverticulosis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/16/2012 16:23:44.
Show responses
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| Timestamp |
10/16/2012 16:23:44 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI) |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/16/2012 16:24:08.
Show responses
|
| Timestamp |
10/16/2012 16:24:08 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/16/2012 16:24:46.
Show responses
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| Timestamp |
10/16/2012 16:24:46 |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/16/2012 16:25:15.
Show responses
|
| Timestamp |
10/16/2012 16:25:15 |
