PGP Participant Survey
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Responses submitted 9/6/2011 19:48:01.
Show responses
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Timestamp |
9/6/2011 19:48:01 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Aspergers runs through my entire family. |
Disease/trait: Onset |
Before 10 years of age |
Disease/trait: Rarity |
Fairly common |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
Not applicable |
Sex/Gender |
Female |
Race/ethnicity |
Black or African American, White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
Maybe |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, and I do not plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
No |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 11/16/2011 16:51:46.
Show responses
|
Timestamp |
11/16/2011 16:51:46 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
My family is riddles with mental health issues--severe anxiety, PTSD, psychopathic behavior and addiction, and autistic traits. Thyroid issues also common. One child presented multiple birth defects. |
Disease/trait: Onset |
Before 10 years of age |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Very severe disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
No |
Sex/Gender |
Female |
Race/ethnicity |
Black or African American, White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
Maybe |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, and I do not plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 1/21/2012 14:18:17.
Show responses
|
Timestamp |
1/21/2012 14:18:17 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Family has terrible mental health, hoarding, autism, OCD, and addiction issues. I'm afflicted by several of these. |
Disease/trait: Onset |
Before 10 years of age |
Disease/trait: Rarity |
Fairly common |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
No |
Sex/Gender |
Female |
Race/ethnicity |
Black or African American, White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |