Personal Genome Project

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Public Profile -- hu6426D7

Public profile url: https://my.pgp-hms.org/profile/hu6426D7

Personal Health Records

None added.

Samples

Saliva Collection for Multiple Studies Sample 45813728 (saliva) received 2011-12-16 02:14:29 UTC by Harvard University.   Show log
2012-04-12 21:04:30 UTC Harvard University / TeloMe, Inc. A new sample 68727350 was derived from this sample
2011-12-16 02:14:46 UTC Harvard University Sample transferred to plate 58212966 (id=10) well B10 (id=22)
2011-12-07 15:13:37 UTC hu6426D7 Sample returned to researcher
2011-12-07 15:12:15 UTC hu6426D7 Sample received by participant
2011-12-03 20:27:15 UTC Harvard University / TeloMe, Inc. Sample sent
2011-11-21 21:27:04 UTC Harvard University / TeloMe, Inc. Sample created
Sample 26369546 (saliva) received 2011-12-16 02:14:39 UTC by Harvard University / TeloMe, Inc..   Show log
2012-04-12 21:04:05 UTC Harvard University / TeloMe, Inc. A new sample 81646133 was derived from this sample
2011-12-16 02:14:42 UTC Harvard University / TeloMe, Inc. Sample transferred to plate 65016198 (id=9) well B10 (id=22)
2011-12-07 15:13:37 UTC hu6426D7 Sample returned to researcher
2011-12-07 15:12:15 UTC hu6426D7 Sample received by participant
2011-12-03 20:27:15 UTC Harvard University / TeloMe, Inc. Sample sent
2011-11-21 21:27:04 UTC Harvard University / TeloMe, Inc. Sample created

Uploaded data

None available.

Geographic Information

State:Oregon
Zip code:97211

Family Members Enrolled

not genetically related (e.g. husband/wife) linked 2011-12-15 19:44:31 UTC

Surveys

PGP Participant Survey Responses submitted 9/6/2011 19:48:01. Show responses
Timestamp 9/6/2011 19:48:01
Year of birth 30-39 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Aspergers runs through my entire family.
Disease/trait: Onset Before 10 years of age
Disease/trait: Rarity Fairly common
Disease/trait: Severity Moderate severity disease
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Not applicable
Sex/Gender Female
Race/ethnicity Black or African American, White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals No
Enrollment of parents Maybe
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, and I do not plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery No
Tissue samples from autopsy Yes
PGP Participant Survey Responses submitted 11/16/2011 16:51:46. Show responses
Timestamp 11/16/2011 16:51:46
Year of birth 30-39 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. My family is riddles with mental health issues--severe anxiety, PTSD, psychopathic behavior and addiction, and autistic traits. Thyroid issues also common. One child presented multiple birth defects.
Disease/trait: Onset Before 10 years of age
Disease/trait: Rarity Uncommon
Disease/trait: Severity Very severe disease
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation No
Sex/Gender Female
Race/ethnicity Black or African American, White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals No
Enrollment of parents Maybe
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, and I do not plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Participant Survey Responses submitted 1/21/2012 14:18:17. Show responses
Timestamp 1/21/2012 14:18:17
Year of birth 30-39 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Family has terrible mental health, hoarding, autism, OCD, and addiction issues. I'm afflicted by several of these.
Disease/trait: Onset Before 10 years of age
Disease/trait: Rarity Fairly common
Disease/trait: Severity Moderate severity disease
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation No
Sex/Gender Female
Race/ethnicity Black or African American, White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals No
Enrollment of parents No
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, but I plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes

Absolute Pitch Survey

Survey not taken.

Enrollment History

Participant ID:hu6426D7
Account created:2011-09-03 20:40:16 UTC
Eligibility screening:2011-09-03 20:45:46 UTC (passed v2)
Exam:2011-09-03 21:11:54 UTC (passed v2)
Consent:2015-08-06 14:31:08 UTC (passed v20150505)
Enrolled:2011-09-06 22:04:14 UTC