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PGP Participant Survey
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Responses submitted 2/12/2013 21:44:30.
Show responses
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| Timestamp |
2/12/2013 21:44:30 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I'm not sure how you define "severe", but I have been diagnosed with PCOS, bipolar disorder, fibromyalgia, and am in the process of being diagnosed with Aspergers Syndrome (HFA).
t is my feeling that everything stems from a neurological/hormonal problem (HPA axis) like hypothalamus problems, but I have no real evidence of this. Oh, and I identify as "asexual" which means I am not sexually attracted to anybody (for the most part) and in my case that I have virtually no libido.
For the purpose of this survey, I guess I'll use fibromyalgia. |
| Disease/trait: Onset |
10-19 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I use patient gateway so I have copies of some of my lab results. I am willing to provide any information that I can easily obtain. |
| Sex/Gender |
Female |
| Race/ethnicity |
Asian, White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
China |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/12/2013 21:45:14.
Show responses
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| Timestamp |
2/12/2013 21:45:14 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/12/2013 21:45:55.
Show responses
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| Timestamp |
2/12/2013 21:45:55 |
| Have you ever been diagnosed with any of the following conditions? |
Polycystic ovary syndrome (PCOS) |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 2/12/2013 21:46:41.
Show responses
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| Timestamp |
2/12/2013 21:46:41 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 2/12/2013 21:47:33.
Show responses
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| Timestamp |
2/12/2013 21:47:33 |
| Other condition not listed here? |
Fibromyalgia |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 2/12/2013 21:49:10.
Show responses
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| Timestamp |
2/12/2013 21:49:10 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism |
| Other condition not listed here? |
I used to get chelazians? frequently |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 2/12/2013 21:50:26.
Show responses
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| Timestamp |
2/12/2013 21:50:26 |
| Have you ever been diagnosed with one of the following conditions? |
Hemorrhoids |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 2/12/2013 21:50:54.
Show responses
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| Timestamp |
2/12/2013 21:50:54 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/12/2013 21:52:29.
Show responses
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| Timestamp |
2/12/2013 21:52:29 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Irritable bowel syndrome (IBS) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 2/12/2013 21:53:11.
Show responses
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| Timestamp |
2/12/2013 21:53:11 |
| Have you ever been diagnosed with any of the following conditions? |
Ovarian cysts |
| Other condition not listed here? |
I identify as asexual |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 2/12/2013 21:55:11.
Show responses
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| Timestamp |
2/12/2013 21:55:11 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic contact dermatitis |
| Other condition not listed here? |
not "diagnosed" with, but have had skin tags, excessive sweating, acne, and cafe au lait spots |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/12/2013 21:55:47.
Show responses
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| Timestamp |
2/12/2013 21:55:47 |
| Have you ever been diagnosed with any of the following conditions? |
Fibromyalgia |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 2/12/2013 21:56:31.
Show responses
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| Timestamp |
2/12/2013 21:56:31 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 3/11/2013 0:59:41.
Show responses
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| Timestamp |
3/11/2013 0:59:41 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 3/11/2013 1:00:25.
Show responses
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| Timestamp |
3/11/2013 1:00:25 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 3/11/2013 1:00:56.
Show responses
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| Timestamp |
3/11/2013 1:00:56 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 4/26/2013 17:12:11.
Show responses
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| Timestamp |
4/26/2013 17:12:11 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Canker sores (oral ulcers) |
| Other condition not listed here? |
Fibromyalgia associated GI problems, as a teen had a lot of acid reflux, definitely no IBD- just had a colonoscopy |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 8/28/2014 23:22:20.
Show responses
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| Timestamp |
8/28/2014 23:22:20 |
| Have you ever been diagnosed with any of the following conditions? |
Hashimoto's thyroiditis, Polycystic ovary syndrome (PCOS) |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 10/21/2015 23:09:24.
Show responses
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| Timestamp |
10/21/2015 23:09:24 |
| 1.1 — Blood Type |
Don't know |
| 1.2 — Height |
5'5" |
| 1.3 — Weight |
183 |
| 1.4 — Comments |
I write with my right, but kick with my left, and if I were to snowboard I would be goofy footed. |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.3 — Left Eye Color - Text Description |
Grey/blue ring with black and white lines radiating through blue iris with a small amt of yellowish around the pupil |
| 2.5 —Comments |
Very light sensitive. |
| 3.2 — Hair Color - Text Description |
Blonde as child, darkened through childhood to brownish greyish, silver grey hairs appeared in early teens, an occasional red hair. |
| 3.3 — Comments |
Very coarse hair that collects a film (no product). Apparently smells strongly "like hair" and it resists dye. |
| 1.4 — Handedness |
Right |
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Harvard PGP: COVID-19 Demographics Survey
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Responses submitted 1/2/2021 19:48:43.
Show responses
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| Timestamp |
1/2/2021 19:48:43 |
| What is the zip code of your primary residence? |
01760 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
39 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Live with parent(s) |
| What is your race? Pick all that apply. |
American Indian or Alaska Native, Asian, White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever smoked tobacco products? |
I have tried them a couple of times |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Disabled/Not able to work |
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Harvard PGP COVID-19 Health Assessment [Ongoing]
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Responses submitted 1/2/2021 19:50:21.
Show responses
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| Timestamp |
1/2/2021 19:50:21 |
| Are you currently ill with a cold or flu-like illness? |
No |
| Currently are you experiencing ANY of the above list of symptoms? |
No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
