Public Profile -- huE57FEC
Public profile url: https://my.pgp-hms.org/profile/huE57FEC
Personal Health Records
None added.Samples
None available.Uploaded data
| Date | Data type | Source | Name | Download | Report | |
|---|---|---|---|---|---|---|
| 2015-11-23 | Microbiome | Participant | Gut microbiome taxonomic data |
Download
(15.6 KB) |
||
| 2012-09-26 | 23andMe | Participant | 23andMe Genotyping Data |
Download
(23.6 MB) |
View report |
Geographic Information
| State: | Florida |
Family Members Enrolled
| parent | linked 2012-11-30 21:07:58 UTC |
Surveys
| PGP Trait & Disease Survey 2012: Digestive System | Responses submitted 11/5/2012 17:23:22. Show responses |
|---|---|
| Timestamp | 11/5/2012 17:23:22 |
| Have you ever been diagnosed with any of the following conditions? | Crohn's disease |
| PGP Trait & Disease Survey 2012: Cancers | Responses submitted 11/5/2012 17:44:18. Show responses |
| Timestamp | 11/5/2012 17:44:18 |
| Have you ever been diagnosed with one of the following conditions? | Lipoma |
| PGP Trait & Disease Survey 2012: Blood | Responses submitted 11/5/2012 17:45:04. Show responses |
| Timestamp | 11/5/2012 17:45:04 |
| PGP Trait & Disease Survey 2012: Vision and hearing | Responses submitted 11/5/2012 17:46:04. Show responses |
| Timestamp | 11/5/2012 17:46:04 |
| Have you ever been diagnosed with one of the following conditions? | Myopia (Nearsightedness), Astigmatism, Floaters, Tinnitus, Sensorineural hearing loss or congenital deafness |
| PGP Trait & Disease Survey 2012: Respiratory System | Responses submitted 11/5/2012 17:48:34. Show responses |
| Timestamp | 11/5/2012 17:48:34 |
| Have you ever been diagnosed with any of the following conditions? | Asthma |
| PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies | Responses submitted 11/5/2012 17:49:05. Show responses |
| Timestamp | 11/5/2012 17:49:05 |
| PGP Trait & Disease Survey 2012: Circulatory System | Responses submitted 11/5/2012 17:49:51. Show responses |
| Timestamp | 11/5/2012 17:49:51 |
| Have you ever been diagnosed with one of the following conditions? | Raynaud's phenomenon |
| PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue | Responses submitted 11/5/2012 19:28:34. Show responses |
| Timestamp | 11/5/2012 19:28:34 |
| Have you ever been diagnosed with any of the following conditions? | Dandruff, Hair loss (includes female and male pattern baldness), Acne |
| PGP Trait & Disease Survey 2012: Genitourinary Systems | Responses submitted 11/5/2012 19:29:22. Show responses |
| Timestamp | 11/5/2012 19:29:22 |
| PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity | Responses submitted 11/6/2012 3:44:57. Show responses |
| Timestamp | 11/6/2012 3:44:57 |
| Have you ever been diagnosed with any of the following conditions? | Gilbert syndrome |
| PGP Participant Survey | Responses submitted 11/19/2012 17:50:24. Show responses |
| Timestamp | 11/19/2012 17:50:24 |
| Year of birth | 40-49 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | Crohn's disease. |
| Disease/trait: Onset | 20-29 years of age |
| Disease/trait: Rarity | Uncommon |
| Disease/trait: Severity | Low severity disease |
| Disease/trait: Relative enrollment | No |
| Disease/trait: Diagnosis | Yes |
| Disease/trait: Genetic confirmation | Yes |
| Disease/trait: Documentation | Yes |
| Disease/trait: Documentation description | The diagnosis was made in 1992, and confirmed at a medical school teaching hospital in 1994. Although the records are old, my understanding is that the data is still available, but it might take a while to get it. |
| Sex/Gender | Male |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United States |
| Paternal grandmother: Country of origin | United States |
| Paternal grandfather: Country of origin | United States |
| Maternal grandfather: Country of origin | United States |
| Enrollment of relatives | No |
| Enrollment of older individuals | Yes |
| Enrollment of parents | Yes |
| Have you uploaded genetic data to your PGP participant profile? | Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? | Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | No, but I plan to |
| Blood sample | Yes |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
| PGP Trait & Disease Survey 2012: Nervous System | Responses submitted 3/3/2013 22:38:00. Show responses |
| Timestamp | 3/3/2013 22:38:00 |
| Have you ever been diagnosed with one of the following conditions? | Migraine with aura |
| Harvard PGP: COVID-19 Demographics Survey | Responses submitted 4/14/2020 11:05:15. Show responses |
| Timestamp | 4/14/2020 11:05:15 |
| What is the zip code of your primary residence? | 33431 |
| Do have another residence where you spend more than 30 days a year? | Yes, Stockholm – a few months out of the year. |
| What is your age (in years)? | 56 |
| What is your gender? | Male |
| Select all the following that apply to your current living arrangements. | Live alone |
| What is your race? Pick all that apply. | White |
| What is your ethnicity? | Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. | None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] | No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] | Yes |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] | No |
| Have you ever been diagnosed with any of the following? [Emphysema] | No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] | No |
| Have you ever been diagnosed with any of the following? [Pneumonia] | No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] | No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] | No |
| Have you ever smoked tobacco products? | No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? | No |
| Which one of the following best describes your employment status for the past 3 months? | Employed: Working 40 or more hrs per week |
| Select the category that best describes your occupation. | Life, Physical, and Social Science |
| What is the zip code of your primary workplace/worksite? | 33431 |
| Do you have a secondary workplace/worksite where you work more than 30 days a year? | Yes, Stockholm, Sweden. |
| If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? | Yes |
| Harvard PGP COVID-19 Health Assessment Week 4: 12 April - 18 April 2020 | Responses submitted 4/14/2020 11:13:06. Show responses |
| Timestamp | 4/14/2020 11:13:06 |
| Are you currently ill with a cold or flu-like illness? | No |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No |
| Currently are you experiencing ANY of the above list of symptoms? | No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? | Yes |
| In the past 2 weeks, which symptoms have you experienced. [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No |
| In the past 2 weeks, which symptoms have you experienced. [Feeling cold, chills or shivers] | Yes |
| In the past 2 weeks, which symptoms have you experienced. [Headache] | No |
| In the past 2 weeks, which symptoms have you experienced. [Aches all over the body] | No |
| In the past 2 weeks, which symptoms have you experienced. [Cough] | No |
| In the past 2 weeks, which symptoms have you experienced. [Rapid breathing] | No |
| In the past 2 weeks, which symptoms have you experienced. [Shortness of breath] | No |
| In the past 2 weeks, which symptoms have you experienced. [Wheezing or chest tightness] | No |
| In the past 2 weeks, which symptoms have you experienced. [Persistent pain or pressure in the chest] | No |
| In the past 2 weeks, which symptoms have you experienced. [Bluish lips or face] | No |
| In the past 2 weeks, which symptoms have you experienced. [Dizziness] | Yes |
| In the past 2 weeks, which symptoms have you experienced. [Confusion or inability to arouse] | No |
| In the past 2 weeks, which symptoms have you experienced. [Running nose] | No |
| In the past 2 weeks, which symptoms have you experienced. [Sore throat] | No |
| In the past 2 weeks, which symptoms have you experienced. [Nausea] | No |
| In the past 2 weeks, which symptoms have you experienced. [Vomiting] | No |
| In the past 2 weeks, which symptoms have you experienced. [Abdominal pain] | No |
| In the past 2 weeks, which symptoms have you experienced. [Diarrhea] | No |
| In the past 2 weeks, which symptoms have you experienced. [Pink eye (conjunctivitis)] | No |
| In the past 2 weeks, which symptoms have you experienced. [Loss of sense of smell] | No |
| In the past 2 weeks, which symptoms have you experienced. [Loss of sense of taste] | No |
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? | Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Feeling cold, chills or shivers] | Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Headache] | Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Aches all over the body] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Cough] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Rapid breathing] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Shortness of breath] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Wheezing or chest tightness] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Persistent pain or pressure in the chest] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Bluish lips or face] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Dizziness] | Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Confusion or inability to arouse] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Running nose] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Sore throat] | Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Nausea] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Vomiting] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Abdominal pain] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Diarrhea] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Pink eye (conjunctivitis)] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Loss of sense of smell] | No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Loss of sense of taste] | No |
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | Yes |
| How long ago was your contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | Over 2 weeks |
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: Yes
Can sing a melody on key: Yes
Can recognize musical intervals: Yes
Do you have absolute pitch? No
Enrollment History
| Participant ID: | huE57FEC |
| Account created: | 2012-11-01 23:31:07 UTC |
| Eligibility screening: | 2012-11-01 23:39:31 UTC (passed v2) |
| Exam: | 2012-11-02 00:30:23 UTC (passed v20120430) |
| Consent: | 2015-08-06 14:32:45 UTC (passed v20150505) |
| Enrolled: | 2012-11-05 16:06:35 UTC |
