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PGP Participant Survey
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Responses submitted 9/26/2012 11:38:07.
Show responses
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| Timestamp |
9/26/2012 11:38:07 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 9/30/2012 22:01:22.
Show responses
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| Timestamp |
9/30/2012 22:01:22 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
High Functioning Autism |
| Disease/trait: Onset |
Before 10 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/11/2012 8:30:31.
Show responses
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| Timestamp |
10/11/2012 8:30:31 |
| Have you ever been diagnosed with one of the following conditions? |
Uterine fibroids |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/11/2012 8:31:23.
Show responses
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| Timestamp |
10/11/2012 8:31:23 |
| Have you ever been diagnosed with any of the following conditions? |
Hypothyroidism, Hashimoto's thyroiditis, Lactose intolerance |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/11/2012 8:33:04.
Show responses
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| Timestamp |
10/11/2012 8:33:04 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 10/11/2012 8:34:20.
Show responses
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| Timestamp |
10/11/2012 8:34:20 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/11/2012 8:36:18.
Show responses
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| Timestamp |
10/11/2012 8:36:18 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism, Floaters, Tinnitus, Sensorineural hearing loss or congenital deafness |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 10/11/2012 8:37:04.
Show responses
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| Timestamp |
10/11/2012 8:37:04 |
| Have you ever been diagnosed with one of the following conditions? |
Varicose veins |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 10/11/2012 8:37:40.
Show responses
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| Timestamp |
10/11/2012 8:37:40 |
| Have you ever been diagnosed with any of the following conditions? |
Deviated septum |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/11/2012 8:38:18.
Show responses
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| Timestamp |
10/11/2012 8:38:18 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Canker sores (oral ulcers) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/11/2012 8:39:05.
Show responses
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| Timestamp |
10/11/2012 8:39:05 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/11/2012 8:40:06.
Show responses
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| Timestamp |
10/11/2012 8:40:06 |
| Have you ever been diagnosed with any of the following conditions? |
Psoriasis, pomplolyx/dyshidrotic excema |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/11/2012 8:40:56.
Show responses
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| Timestamp |
10/11/2012 8:40:56 |
| Have you ever been diagnosed with any of the following conditions? |
Chondromalacia patella (CMP), Sciatica, Bunions |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/11/2012 8:41:40.
Show responses
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| Timestamp |
10/11/2012 8:41:40 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/12/2012 9:09:41.
Show responses
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| Timestamp |
10/12/2012 9:09:41 |
| Have you ever been diagnosed with any of the following conditions? |
Psoriasis |
| Other condition not listed here? |
seborrheic dermatitis, pompholyx (aka dyshidrotic excema) |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/13/2012 10:36:24.
Show responses
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| Timestamp |
10/13/2012 10:36:24 |
| Other condition not listed here? |
poliosis aka mallen streak |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/13/2012 10:38:05.
Show responses
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| Timestamp |
10/13/2012 10:38:05 |
| Other condition not listed here? |
high functioning autism / Asperger's Syndrome |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/14/2012 20:26:11.
Show responses
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| Timestamp |
10/14/2012 20:26:11 |
| Other condition not listed here? |
giant platelet disorder |
