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PGP Participant Survey
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Responses submitted 6/19/2013 13:03:21.
Show responses
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| Timestamp |
6/19/2013 13:03:21 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
dysautonomia, will answer for
gastroparesis
possible ehlers-danlos syndrome |
| Disease/trait: Onset |
30-39 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Tilt table test |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
Afghanistan |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 6/19/2013 13:04:59.
Show responses
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| Timestamp |
6/19/2013 13:04:59 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 6/19/2013 13:05:46.
Show responses
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| Timestamp |
6/19/2013 13:05:46 |
| Have you ever been diagnosed with any of the following conditions? |
Polycystic ovary syndrome (PCOS), Gout |
| Other condition not listed here? |
gastroparesis |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 6/19/2013 13:06:15.
Show responses
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| Timestamp |
6/19/2013 13:06:15 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 6/19/2013 13:07:15.
Show responses
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| Timestamp |
6/19/2013 13:07:15 |
| Have you ever been diagnosed with one of the following conditions? |
Cluster headaches, Migraine with aura |
| Other condition not listed here? |
Dysautonomia |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 6/19/2013 13:08:13.
Show responses
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| Timestamp |
6/19/2013 13:08:13 |
| Have you ever been diagnosed with one of the following conditions? |
Tinnitus |
| Other condition not listed here? |
Anisocoria, hippus |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 6/19/2013 13:11:13.
Show responses
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| Timestamp |
6/19/2013 13:11:13 |
| Have you ever been diagnosed with one of the following conditions? |
Cardiac arrhythmia, Hemorrhoids |
| Other condition not listed here? |
Bradycardia, miltral valve regurgitation |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 6/19/2013 13:11:33.
Show responses
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| Timestamp |
6/19/2013 13:11:33 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 6/19/2013 13:12:46.
Show responses
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| Timestamp |
6/19/2013 13:12:46 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Temporomandibular joint (TMJ) disorder, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Barrett's esophagus, Hiatal hernia, Irritable bowel syndrome (IBS) |
| Other condition not listed here? |
gastroparesis,duodenitis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 6/19/2013 13:13:22.
Show responses
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| Timestamp |
6/19/2013 13:13:22 |
| Have you ever been diagnosed with any of the following conditions? |
Kidney stones, Urinary tract infection (UTI), Fibrocystic breast disease, Ovarian cysts |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 6/19/2013 13:14:28.
Show responses
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| Timestamp |
6/19/2013 13:14:28 |
| Have you ever been diagnosed with any of the following conditions? |
Pilonidal cyst, Skin tags, Acne, Cafe au lait spots |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 6/19/2013 13:15:30.
Show responses
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| Timestamp |
6/19/2013 13:15:30 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoporosis |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 6/19/2013 13:16:18.
Show responses
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| Timestamp |
6/19/2013 13:16:18 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 11/8/2014 15:53:19.
Show responses
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| Timestamp |
11/8/2014 15:53:19 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Fibromyalgia, Osteoporosis |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/21/2015 9:04:13.
Show responses
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| Timestamp |
2/21/2015 9:04:13 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Spinal stenosis |
| Other condition not listed here? |
Joint Hypermobility Syndrome |
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PGP Participant Survey
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Responses submitted 9/22/2015 9:23:13.
Show responses
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| Timestamp |
9/22/2015 9:23:13 |
| Year of birth |
1971 |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Month of birth |
December |
| Anatomical sex at birth |
Female |
| Maternal grandmother: Race/ethnicity |
White |
| Maternal grandfather: Race/ethnicity |
White |
| Paternal grandmother: Race/ethnicity |
White |
| Paternal grandfather: Race/ethnicity |
White |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 9/22/2015 9:24:11.
Show responses
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| Timestamp |
9/22/2015 9:24:11 |
