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PGP Participant Survey
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Responses submitted 7/17/2011 11:42:13.
Show responses
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| Timestamp |
7/17/2011 11:42:13 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Had melanoma skin cancer. |
| Disease/trait: Onset |
10-19 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Could request lab results from doctor to upload. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
Other / don't know / no response |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 10/7/2011 11:42:54.
Show responses
|
| Timestamp |
10/7/2011 11:42:54 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Melanoma skin cancer; severe food allergies. I answer for the former in the questions below. |
| Disease/trait: Onset |
20-29 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Lab results (if my doctor still has them; was over 10 years ago) |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
Other / don't know / no response |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Yes |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
0 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
0 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Fall/Winter 2011 Saliva Kit: Large Tube Collection Survey
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Responses submitted 10/31/2011 13:06:30.
Show responses
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| Timestamp |
10/31/2011 13:06:30 |
| Which sample tube did you just collect? |
Big tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in less than 5 minutes) |
| What time of day did you collect saliva? |
Before breakfast |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
1 - 2 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
Yes, some eating between last brushing and collection |
| When was the last time you used mouthwash? |
1-2 hours before collection |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
Yes, some eating between last usage of mouthwash and collection |
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PGP Fall/Winter 2011 Saliva Kit: Small Tube Collection Survey
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Responses submitted 10/31/2011 13:42:39.
Show responses
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| Timestamp |
10/31/2011 13:42:39 |
| Which sample tube did you just collect? |
Small tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in less than 5 minutes) |
| What time of day did you collect saliva? |
Before breakfast |
| When was the last time you brushed and/or flossed? |
1 - 2 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
Yes, some eating between last brushing and collection |
| When was the last time you used mouthwash? |
1-2 hours before collection |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
Yes, some eating between last usage of mouthwash and collection |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 11/15/2012 10:10:16.
Show responses
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| Timestamp |
11/15/2012 10:10:16 |
| Have you ever been diagnosed with one of the following conditions? |
Melanoma |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 11/15/2012 10:10:33.
Show responses
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| Timestamp |
11/15/2012 10:10:33 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 11/15/2012 10:10:45.
Show responses
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| Timestamp |
11/15/2012 10:10:45 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 11/15/2012 10:10:56.
Show responses
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| Timestamp |
11/15/2012 10:10:56 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 11/15/2012 10:11:17.
Show responses
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| Timestamp |
11/15/2012 10:11:17 |
| Have you ever been diagnosed with one of the following conditions? |
Astigmatism |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 11/15/2012 10:11:29.
Show responses
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| Timestamp |
11/15/2012 10:11:29 |
| Have you ever been diagnosed with one of the following conditions? |
Raynaud's phenomenon |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 11/15/2012 10:11:45.
Show responses
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| Timestamp |
11/15/2012 10:11:45 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 11/15/2012 10:12:07.
Show responses
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| Timestamp |
11/15/2012 10:12:07 |
| Have you ever been diagnosed with any of the following conditions? |
Temporomandibular joint (TMJ) disorder |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 11/15/2012 10:12:15.
Show responses
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| Timestamp |
11/15/2012 10:12:15 |
| Have you ever been diagnosed with any of the following conditions? |
Kidney stones |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 11/15/2012 10:12:36.
Show responses
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| Timestamp |
11/15/2012 10:12:36 |
| Have you ever been diagnosed with any of the following conditions? |
Dandruff, Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 11/15/2012 10:12:55.
Show responses
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| Timestamp |
11/15/2012 10:12:55 |
| Have you ever been diagnosed with any of the following conditions? |
Flatfeet, Scoliosis |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 11/15/2012 10:13:06.
Show responses
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| Timestamp |
11/15/2012 10:13:06 |
