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PGP Participant Survey
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Responses submitted 8/6/2011 4:03:29.
Show responses
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| Timestamp |
8/6/2011 4:03:29 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
GILBERT SYNDROME |
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Not applicable |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 3/3/2012 2:52:21.
Show responses
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| Timestamp |
3/3/2012 2:52:21 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 8/24/2012 2:55:47.
Show responses
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| Timestamp |
8/24/2012 2:55:47 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
diagnosed with Gilbert trait w/o conformation |
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Not applicable |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/16/2013 3:11:21.
Show responses
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| Timestamp |
2/16/2013 3:11:21 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/16/2013 3:12:24.
Show responses
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| Timestamp |
2/16/2013 3:12:24 |
| Have you ever been diagnosed with any of the following conditions? |
Gilbert syndrome |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 2/16/2013 3:13:28.
Show responses
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| Timestamp |
2/16/2013 3:13:28 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia, G6PD deficiency |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 2/16/2013 3:14:17.
Show responses
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| Timestamp |
2/16/2013 3:14:17 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 2/16/2013 3:15:39.
Show responses
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| Timestamp |
2/16/2013 3:15:39 |
| Have you ever been diagnosed with one of the following conditions? |
Hyperopia (Farsightedness), Myopia (Nearsightedness), Tinnitus |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 2/16/2013 3:16:33.
Show responses
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| Timestamp |
2/16/2013 3:16:33 |
| Have you ever been diagnosed with one of the following conditions? |
Hypertension |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 2/16/2013 3:17:12.
Show responses
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| Timestamp |
2/16/2013 3:17:12 |
| Have you ever been diagnosed with any of the following conditions? |
Deviated septum, Chronic sinusitis, Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/16/2013 3:19:02.
Show responses
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| Timestamp |
2/16/2013 3:19:02 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 2/16/2013 3:19:35.
Show responses
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| Timestamp |
2/16/2013 3:19:35 |
| Have you ever been diagnosed with any of the following conditions? |
Benign prostatic hypertrophy (BPH) |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 2/16/2013 3:20:28.
Show responses
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| Timestamp |
2/16/2013 3:20:28 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic contact dermatitis, Hyperhidrosis (excessive sweating) |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/16/2013 3:21:06.
Show responses
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| Timestamp |
2/16/2013 3:21:06 |
| Have you ever been diagnosed with any of the following conditions? |
Flatfeet |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 2/16/2013 3:22:00.
Show responses
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| Timestamp |
2/16/2013 3:22:00 |