Public Profile -- huC82DC0
Public profile url: https://my.pgp-hms.org/profile/huC82DC0
Personal Health Records
None added.Samples
None available.Uploaded data
None available.Geographic Information
| State: | New York |
| Zip code: | 13346 |
Family Members Enrolled
| not genetically related (e.g. husband/wife) | linked 2014-03-04 14:42:54 UTC |
Surveys
| PGP Participant Survey | Responses submitted 1/7/2013 16:53:18. Show responses |
|---|---|
| Timestamp | 1/7/2013 16:53:18 |
| Year of birth | 70-79 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | psorisis |
| Disease/trait: Onset | 10-19 years of age |
| Disease/trait: Rarity | Fairly common |
| Disease/trait: Severity | Moderate severity disease |
| Disease/trait: Relative enrollment | Maybe |
| Disease/trait: Diagnosis | Yes |
| Disease/trait: Genetic confirmation | No |
| Disease/trait: Documentation | No |
| Sex/Gender | Male |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United Kingdom |
| Paternal grandmother: Country of origin | United Kingdom |
| Paternal grandfather: Country of origin | Other / don't know / no response |
| Maternal grandfather: Country of origin | Other / don't know / no response |
| Enrollment of relatives | Yes |
| Enrollment of older individuals | No |
| Enrollment of parents | No |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] | 1 |
| Are all your enrolled relatives linked to your PGP profile? | Yes |
| Have you uploaded genetic data to your PGP participant profile? | Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? | Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | No, but I plan to |
| Blood sample | Yes |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
| PGP Trait & Disease Survey 2012: Cancers | Responses submitted 1/7/2013 16:55:07. Show responses |
| Timestamp | 1/7/2013 16:55:07 |
| Have you ever been diagnosed with one of the following conditions? | Non-melanoma skin cancer |
| PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue | Responses submitted 1/7/2013 16:55:54. Show responses |
| Timestamp | 1/7/2013 16:55:54 |
| Have you ever been diagnosed with any of the following conditions? | Psoriasis |
| PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue | Responses submitted 1/7/2013 16:58:25. Show responses |
| Timestamp | 1/7/2013 16:58:25 |
| Have you ever been diagnosed with any of the following conditions? | Osteoarthritis |
| PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies | Responses submitted 1/7/2013 16:59:55. Show responses |
| Timestamp | 1/7/2013 16:59:55 |
| PGP Participant Survey | Responses submitted 3/3/2014 19:33:14. Show responses |
| Timestamp | 3/3/2014 19:33:14 |
| Year of birth | 1935 |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | psoriasis |
| Sex/Gender | Male |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United States |
| Paternal grandmother: Country of origin | United Kingdom |
| Paternal grandfather: Country of origin | United Kingdom |
| Maternal grandfather: Country of origin | United States |
| Month of birth | December |
| Anatomical sex at birth | Male |
| Maternal grandmother: Race/ethnicity | White |
| Maternal grandfather: Race/ethnicity | White |
| Paternal grandmother: Race/ethnicity | White |
| Paternal grandfather: Race/ethnicity | White |
| PGP Trait & Disease Survey 2012: Cancers | Responses submitted 3/3/2014 19:34:47. Show responses |
| Timestamp | 3/3/2014 19:34:47 |
| Have you ever been diagnosed with one of the following conditions? | Non-melanoma skin cancer |
| PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity | Responses submitted 3/3/2014 19:35:43. Show responses |
| Timestamp | 3/3/2014 19:35:43 |
| Have you ever been diagnosed with any of the following conditions? | Gout |
| PGP Trait & Disease Survey 2012: Blood | Responses submitted 3/3/2014 19:36:23. Show responses |
| Timestamp | 3/3/2014 19:36:23 |
| PGP Trait & Disease Survey 2012: Nervous System | Responses submitted 3/3/2014 19:37:03. Show responses |
| Timestamp | 3/3/2014 19:37:03 |
| PGP Trait & Disease Survey 2012: Vision and hearing | Responses submitted 3/3/2014 19:38:18. Show responses |
| Timestamp | 3/3/2014 19:38:18 |
| Have you ever been diagnosed with one of the following conditions? | Age-related macular degeneration, Age-related cataract, Astigmatism, Floaters, Age-related hearing loss |
| PGP Trait & Disease Survey 2012: Circulatory System | Responses submitted 3/3/2014 19:39:19. Show responses |
| Timestamp | 3/3/2014 19:39:19 |
| PGP Trait & Disease Survey 2012: Respiratory System | Responses submitted 3/3/2014 19:39:49. Show responses |
| Timestamp | 3/3/2014 19:39:49 |
| Have you ever been diagnosed with any of the following conditions? | Deviated septum |
| PGP Trait & Disease Survey 2012: Digestive System | Responses submitted 3/3/2014 19:40:39. Show responses |
| Timestamp | 3/3/2014 19:40:39 |
| Have you ever been diagnosed with any of the following conditions? | Dental cavities, Canker sores (oral ulcers) |
| PGP Trait & Disease Survey 2012: Genitourinary Systems | Responses submitted 3/3/2014 19:41:47. Show responses |
| Timestamp | 3/3/2014 19:41:47 |
| PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue | Responses submitted 3/3/2014 19:42:42. Show responses |
| Timestamp | 3/3/2014 19:42:42 |
| Have you ever been diagnosed with any of the following conditions? | Dandruff, Psoriasis, Hair loss (includes female and male pattern baldness), Cafe au lait spots |
| PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue | Responses submitted 3/3/2014 19:43:35. Show responses |
| Timestamp | 3/3/2014 19:43:35 |
| Have you ever been diagnosed with any of the following conditions? | Dandruff, Psoriasis, Hair loss (includes female and male pattern baldness), Acne, Cafe au lait spots |
| Other condition not listed here? | skin cancer |
| PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue | Responses submitted 3/3/2014 19:44:24. Show responses |
| Timestamp | 3/3/2014 19:44:24 |
| Have you ever been diagnosed with any of the following conditions? | Osteoarthritis |
| PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies | Responses submitted 3/3/2014 19:45:14. Show responses |
| Timestamp | 3/3/2014 19:45:14 |
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: Yes
Can sing a melody on key: Yes
Can recognize musical intervals: Yes
Do you have absolute pitch? Not sure
Enrollment History
| Participant ID: | huC82DC0 |
| Account created: | 2012-11-13 22:56:08 UTC |
| Eligibility screening: | 2012-11-14 18:04:27 UTC (passed v2) |
| Exam: | 2012-11-14 22:33:16 UTC (passed v20120430) |
| Consent: | 2015-08-06 14:32:49 UTC (passed v20150505) |
| Enrolled: | 2012-11-28 15:07:02 UTC |
