|
PGP Participant Survey
|
Responses submitted 7/16/2011 22:14:51.
Show responses
|
| Timestamp |
7/16/2011 22:14:51 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Vascular hemangiomas ( several family members have these)
benign breast lumps ( my mother had them. - about 8 surgically removed) |
| Disease/trait: Onset |
50-59 years of age |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I have bunch of records including surgeon's report5)-5 I should have sent to you. I will se if I can find them. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Switzerland |
| Paternal grandmother: Country of origin |
Switzerland |
| Paternal grandfather: Country of origin |
United Kingdom |
| Maternal grandfather: Country of origin |
United Kingdom |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
2011 PGP10 CAGI Survey
|
Responses submitted 8/26/2011 18:45:45.
Show responses
|
| Timestamp |
8/26/2011 18:45:45 |
| Date of Birth (mm/dd/yyyy) |
7/14/1951 |
| Age at Menarche |
11 |
| Do you have any of the following? [Asthma] |
No |
| Do you have any of the following? [Crohn's disease] |
No |
| Do you have any of the following? [Ulcerative colitis] |
No |
| Do you have any of the following? [Irritable bowel syndrome] |
No |
| Do you have any of the following? [Rheumatoid arthritis] |
No |
| Do you have any of the following? [Type II Diabetes] |
No |
| Do you have any of the following? [Coronary artery disease] |
No |
| Do you have any of the following? [Long QT Syndrome] |
No |
| Do you have any of the following? [Hypertrophic cardiomyopathy] |
No |
| Do you have any of the following? [Glaucoma] |
No |
| Do you have any of the following? [Color blindness] |
No |
| Do you have any of the following? [Bipolar disorder] |
No |
| Do you have any of the following? [Celiac disease] |
No |
| Do you have any of the following? [Psoriasis] |
No |
| Do you have any of the following? [Lupus] |
No |
| Do you have any of the following? [Breast cancer] |
No |
| Do you have any of the following? [Prostate cancer] |
No |
| Do you have any of the following? [Migraine] |
No |
| Do you have any of the following? [Lactose intolerance] |
No |
| Do you have any of the following? [Dyslexia] |
No |
| Do you have any of the following? [Autism] |
No |
| Do you have any of the following? [Osteoporosis] |
No |
| Do you have any of the following? [Incontinence] |
No |
| Do you have any of the following? [Kidney stones] |
No |
| Do you have any of the following? [Varicose veins] |
No |
| Do you have any of the following? [Sleep Apnea] |
No |
| Do you have any of the following? [Tongue rolling (tube)] |
Yes |
| Do you have any of the following? [Phenylthiocarbamide tasting] |
Unsure |
| Do you have any of the following? [Blood type - Has A antigen? (Type A or AB)] |
Unsure |
| Do you have any of the following? [Blood type - Has B antigen? (Type B or AB)] |
Unsure |
| Do you have any of the following? [Blood type - Is Rh(D) positive? (A+, O+, etc.)] |
Unsure |
| Do you have any of the following? [Absolute pitch] |
No |
| Smoking pack years |
Less than 1 |
|
2011 PGP10 CAGI Survey
|
Responses submitted 8/27/2011 16:54:31.
Show responses
|
| Timestamp |
8/27/2011 16:54:31 |
| Date of Birth (mm/dd/yyyy) |
7/14/1951 |
| Birth weight (in g) |
normal |
| Date of blood measurement (as MM/DD/YYYY) |
5/29/2011 |
|
2011 PGP10 CAGI Survey
|
Responses submitted 8/27/2011 17:02:55.
Show responses
|
| Timestamp |
8/27/2011 17:02:55 |
| Date of Birth (mm/dd/yyyy) |
7/14/1951 |
| Birth weight (in g) |
normal |
| Date of blood measurement (as MM/DD/YYYY) |
5/29/2011 |
| HDL level (in mg/dL) |
66 |
| LDL level (in mg/dL) |
154 |
| Triglyceride level (in mg/dL) |
106 |
| Fasting blood glucose level (in mg/dL) |
81 |
| Age at Menarche |
11 |
| Do you have any of the following? [Asthma] |
No |
| Do you have any of the following? [Crohn's disease] |
No |
| Do you have any of the following? [Ulcerative colitis] |
No |
| Do you have any of the following? [Irritable bowel syndrome] |
No |
| Do you have any of the following? [Rheumatoid arthritis] |
No |
| Do you have any of the following? [Type II Diabetes] |
No |
| Do you have any of the following? [Coronary artery disease] |
No |
| Do you have any of the following? [Long QT Syndrome] |
No |
| Do you have any of the following? [Hypertrophic cardiomyopathy] |
No |
| Do you have any of the following? [Glaucoma] |
No |
| Do you have any of the following? [Color blindness] |
No |
| Do you have any of the following? [Bipolar disorder] |
No |
| Do you have any of the following? [Celiac disease] |
No |
| Do you have any of the following? [Psoriasis] |
No |
| Do you have any of the following? [Lupus] |
No |
| Do you have any of the following? [Breast cancer] |
No |
| Do you have any of the following? [Prostate cancer] |
No |
| Do you have any of the following? [Migraine] |
No |
| Do you have any of the following? [Lactose intolerance] |
No |
| Do you have any of the following? [Dyslexia] |
No |
| Do you have any of the following? [Autism] |
No |
| Do you have any of the following? [Osteoporosis] |
Unsure |
| Do you have any of the following? [Incontinence] |
No |
| Do you have any of the following? [Kidney stones] |
No |
| Do you have any of the following? [Varicose veins] |
No |
| Do you have any of the following? [Sleep Apnea] |
No |
| Do you have any of the following? [Tongue rolling (tube)] |
Yes |
| Do you have any of the following? [Phenylthiocarbamide tasting] |
Unsure |
| Do you have any of the following? [Blood type - Has A antigen? (Type A or AB)] |
Unsure |
| Do you have any of the following? [Blood type - Has B antigen? (Type B or AB)] |
Unsure |
| Do you have any of the following? [Blood type - Is Rh(D) positive? (A+, O+, etc.)] |
Unsure |
| Do you have any of the following? [Absolute pitch] |
No |
| Smoking pack years |
Less than 1 |
|
PGP10 Trait Survey
|
Responses submitted 6/29/2011 18:00:13.
Show responses
|
| Timestamp |
6/29/2011 18:00:13 |
| Missing from questionnaire -- emailed question "Have you or a relative been diagnosed with arrhythmogenic right ventricular dysplasia/cardiomyopathy (ARVD or ARVC)?" |
brother diagnosed with heart murmurs as a child |
| Kidney stones - individual |
No |
| Kidney stones - relatives |
No / not that I am aware of |
| Identification |
PGP3 / Esther Dyson / huBEDA0B |
| Charcot-Marie Neuropathy |
No / not that I am aware of |
| Deafness |
No |
| Heart disease: long-QT syndrome |
A relative, I think.. |
| Heart disease: sudden death |
No |
| Heart disease: hypertrophic cardiomyopathy |
No / not that I am aware of |
| Heart disease: cardiovascular disease |
No / not that I am aware of |
| Hypercholesterolemia |
No / not that I am aware of |
| Cutis laxa |
No / not that I am aware of |
| Congenital heart defect |
No / not that I am aware of |
| Amyloidosis |
No / not that I am aware of |
| Neuroblastoma |
No / not that I am aware of |
| Hypocholesterolemia |
No / not that I am aware of |
| Palmar hyperlinearity |
No |
| Keratosis pilaris |
No |
| Benign neonatal seizures |
No / not that I am aware of |
| Neuralgic amyotrophy |
No / not that I am aware of |
| Hemolytic-uremic syndrome |
No / not that I am aware of |
| Thrombotic thrombocytopenic purpura |
No / not that I am aware of |
| Polycystic kidney disease |
No / not that I am aware of |
| Retinitis pigmentosa |
No / not that I am aware of |
|
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 10/22/2012 11:00:10.
Show responses
|
| Timestamp |
10/22/2012 11:00:10 |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 10/22/2012 11:01:12.
Show responses
|
| Timestamp |
10/22/2012 11:01:12 |
| Have you ever been diagnosed with any of the following conditions? |
Barrett's esophagus |
|
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 10/22/2012 11:01:35.
Show responses
|
| Timestamp |
10/22/2012 11:01:35 |
|
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 10/22/2012 11:03:12.
Show responses
|
| Timestamp |
10/22/2012 11:03:12 |
| Other condition not listed here? |
subdermal hemangiomas |
|
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
|
Responses submitted 10/22/2012 11:03:52.
Show responses
|
| Timestamp |
10/22/2012 11:03:52 |
|
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 10/22/2012 11:04:51.
Show responses
|
| Timestamp |
10/22/2012 11:04:51 |
|
PGP Trait & Disease Survey 2012: Vision and hearing
|
Responses submitted 10/22/2012 11:05:44.
Show responses
|
| Timestamp |
10/22/2012 11:05:44 |
| Have you ever been diagnosed with one of the following conditions? |
Presbyopia, Floaters |
|
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
|
Responses submitted 10/22/2012 11:06:25.
Show responses
|
| Timestamp |
10/22/2012 11:06:25 |
|
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 10/22/2012 11:07:36.
Show responses
|
| Timestamp |
10/22/2012 11:07:36 |
| Other condition not listed here? |
osteopenia |
|
PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 10/22/2012 11:09:08.
Show responses
|
| Timestamp |
10/22/2012 11:09:08 |
| Have you ever been diagnosed with one of the following conditions? |
Colon polyps, Breast fibroadenoma |
|
PGP Trait & Disease Survey 2012: Nervous System
|
Responses submitted 10/22/2012 11:10:23.
Show responses
|
| Timestamp |
10/22/2012 11:10:23 |
| Other condition not listed here? |
ocular migraine |
|
PGP Trait & Disease Survey 2012: Respiratory System
|
Responses submitted 10/22/2012 11:12:53.
Show responses
|
| Timestamp |
10/22/2012 11:12:53 |
| Have you ever been diagnosed with any of the following conditions? |
Nasal polyps |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 10/22/2012 11:15:38.
Show responses
|
| Timestamp |
10/22/2012 11:15:38 |
| Have you ever been diagnosed with any of the following conditions? |
Barrett's esophagus |
|
PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 12/26/2012 11:03:08.
Show responses
|
| Timestamp |
12/26/2012 11:03:08 |
| Other condition not listed here? |
low blood pressure |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 2/27/2016 15:34:28.
Show responses
|
| Timestamp |
2/27/2016 15:34:28 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Barrett's esophagus |
| Other condition not listed here? |
Have B esophagus but do not have GERD |
|
Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 5/9/2020 17:15:13.
Show responses
|
| Timestamp |
5/9/2020 17:15:13 |
| What is the zip code of your primary residence? |
10011 |
| Do have another residence where you spend more than 30 days a year? |
I traveled (until February) about 250 days a year, around the US and also Europe & Africa. |
| What is your age (in years)? |
68 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Live alone |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 40 or more hrs per week |
| Select the category that best describes your occupation. |
Management |
| What is the zip code of your primary workplace/worksite? |
10016 |
| Do you have a secondary workplace/worksite where you work more than 30 days a year? |
no specific place, but I travel a lot |
| If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
Yes |
|
Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020
|
Responses submitted 5/9/2020 17:19:58.
Show responses
|
| Timestamp |
5/9/2020 17:19:58 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
Unknown |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Are you currently experiencing any of the following symptoms? [Headache] |
No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
| Are you currently experiencing any of the following symptoms? [Cough] |
No |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] |
No |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
| Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
No |
| Are you currently experiencing any of the following symptoms? [Running nose] |
No |
| Are you currently experiencing any of the following symptoms? [Sore throat] |
No |
| Are you currently experiencing any of the following symptoms? [Nausea] |
No |
| Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
No |
| Are you currently experiencing any of the following symptoms? [Diarrhea] |
No |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
omeprazole, atrovastatin |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I tried to get tested but could not get a test |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
|
Harvard PGP COVID-19 Health Assessment [Ongoing]
|
Responses submitted 5/27/2020 18:23:24.
Show responses
|
| Timestamp |
5/27/2020 18:23:24 |
| Are you currently ill with a cold or flu-like illness? |
No |
| Currently are you experiencing ANY of the above list of symptoms? |
No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
omeprazole, atorvastatin |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I tried to get tested but could not get a test |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
