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PGP Participant Survey
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Responses submitted 2/28/2012 21:54:37.
Show responses
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| Timestamp |
2/28/2012 21:54:37 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
American Indian / Alaska Native, White |
| Maternal grandmother: Country of origin |
Italy |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
Ireland |
| Maternal grandfather: Country of origin |
Italy |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 3/18/2012 14:45:25.
Show responses
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| Timestamp |
3/18/2012 14:45:25 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Familial essential tremor |
| Disease/trait: Onset |
Before 10 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
American Indian / Alaska Native, White |
| Maternal grandmother: Country of origin |
Italy |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
Italy |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/5/2013 12:35:51.
Show responses
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| Timestamp |
2/5/2013 12:35:51 |
| Have you ever been diagnosed with any of the following conditions? |
Diabetes mellitus, type 2, Lactose intolerance, High cholesterol (hypercholesterolemia) |
| Other condition not listed here? |
premature ovarian failure |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 2/5/2013 12:38:48.
Show responses
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| Timestamp |
2/5/2013 12:38:48 |
| Have you ever been diagnosed with one of the following conditions? |
Astigmatism, Floaters |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/5/2013 12:39:38.
Show responses
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| Timestamp |
2/5/2013 12:39:38 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 2/5/2013 12:42:23.
Show responses
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| Timestamp |
2/5/2013 12:42:23 |
| Other condition not listed here? |
idiopathic petechiae |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 2/5/2013 12:43:20.
Show responses
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| Timestamp |
2/5/2013 12:43:20 |
| Have you ever been diagnosed with one of the following conditions? |
Essential tremor, Restless legs syndrome |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 2/5/2013 12:44:21.
Show responses
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| Timestamp |
2/5/2013 12:44:21 |
| Have you ever been diagnosed with one of the following conditions? |
Hypertension, Hemorrhoids |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 2/5/2013 12:45:40.
Show responses
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| Timestamp |
2/5/2013 12:45:40 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic sinusitis, Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/5/2013 12:47:17.
Show responses
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| Timestamp |
2/5/2013 12:47:17 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Gingivitis, Temporomandibular joint (TMJ) disorder, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Nonalcoholic fatty liver disease (NAFLD) |
| Other condition not listed here? |
chronic recurring kidney stones |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 2/5/2013 12:49:06.
Show responses
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| Timestamp |
2/5/2013 12:49:06 |
| Have you ever been diagnosed with any of the following conditions? |
Kidney stones, Urinary tract infection (UTI) |
| Other condition not listed here? |
vaginal prolapse |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 2/5/2013 12:49:54.
Show responses
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| Timestamp |
2/5/2013 12:49:54 |
| Have you ever been diagnosed with any of the following conditions? |
Dandruff, Hair loss (includes female and male pattern baldness), Hyperhidrosis (excessive sweating), Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/5/2013 12:54:13.
Show responses
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| Timestamp |
2/5/2013 12:54:13 |
| Have you ever been diagnosed with any of the following conditions? |
Sciatica, Plantar fasciitis |
| Other condition not listed here? |
bucket-handle tear of medial menisci 2008-L knee 2012-R knee |
