PGP Participant Survey
|
Responses submitted 12/21/2011 21:47:06.
Show responses
|
Timestamp |
12/21/2011 21:47:06 |
Year of birth |
50-59 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Coronary artery abnormality ( ARCA ) |
Disease/trait: Onset |
Congenital / present at birth |
Disease/trait: Rarity |
Very rare/uncommon |
Disease/trait: Severity |
Very severe disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
Yes |
Disease/trait: Documentation description |
Cardiac CTA report from cardiologist. |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United Kingdom |
Paternal grandfather: Country of origin |
Switzerland |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, but I have genetic data and plan to upload it |
Have you used the PGP web interface to record a designated proxy? |
No |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
Uploaded health records: Update status |
Yes |
Uploaded health records: Extensiveness |
3 |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 1/29/2012 22:03:05.
Show responses
|
Timestamp |
1/29/2012 22:03:05 |
Year of birth |
50-59 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Anomalous Aortic Origin of the Right Coronary Artery With an Interarterial Course and Klinefelter Syndrome. |
Disease/trait: Onset |
Congenital / present at birth |
Disease/trait: Rarity |
Very rare/uncommon |
Disease/trait: Severity |
Very severe disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
Yes |
Disease/trait: Documentation description |
Cardiac CTA Report from my Cardiologist. |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United Kingdom |
Paternal grandfather: Country of origin |
Switzerland |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
Maybe |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
No |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
Uploaded health records: Update status |
Yes |
Uploaded health records: Extensiveness |
4 |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 2/13/2013 11:18:06.
Show responses
|
Timestamp |
2/13/2013 11:18:06 |
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 2/13/2013 11:19:55.
Show responses
|
Timestamp |
2/13/2013 11:19:55 |
Have you ever been diagnosed with any of the following conditions? |
Congenital heart defect |
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 2/13/2013 11:21:35.
Show responses
|
Timestamp |
2/13/2013 11:21:35 |
Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Chondromalacia patella (CMP), Bone spurs, Plantar fasciitis, Flatfeet |
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
|
Responses submitted 2/13/2013 11:22:30.
Show responses
|
Timestamp |
2/13/2013 11:22:30 |
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 2/13/2013 11:23:18.
Show responses
|
Timestamp |
2/13/2013 11:23:18 |
PGP Trait & Disease Survey 2012: Nervous System
|
Responses submitted 2/13/2013 11:25:09.
Show responses
|
Timestamp |
2/13/2013 11:25:09 |
Have you ever been diagnosed with one of the following conditions? |
Migraine with aura |
PGP Trait & Disease Survey 2012: Vision and hearing
|
Responses submitted 2/13/2013 11:26:21.
Show responses
|
Timestamp |
2/13/2013 11:26:21 |
Have you ever been diagnosed with one of the following conditions? |
Hyperopia (Farsightedness), Myopia (Nearsightedness), Astigmatism, Floaters |
PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 2/13/2013 11:27:35.
Show responses
|
Timestamp |
2/13/2013 11:27:35 |
Have you ever been diagnosed with one of the following conditions? |
Hemorrhoids |
PGP Trait & Disease Survey 2012: Respiratory System
|
Responses submitted 2/13/2013 11:28:44.
Show responses
|
Timestamp |
2/13/2013 11:28:44 |
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 2/13/2013 11:29:58.
Show responses
|
Timestamp |
2/13/2013 11:29:58 |
Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis, Gastroesophageal reflux disease (GERD) |
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 2/13/2013 11:31:14.
Show responses
|
Timestamp |
2/13/2013 11:31:14 |
Have you ever been diagnosed with any of the following conditions? |
Male infertility |
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
|
Responses submitted 2/13/2013 11:32:11.
Show responses
|
Timestamp |
2/13/2013 11:32:11 |
Have you ever been diagnosed with any of the following conditions? |
Dandruff, Eczema, Skin tags |
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
|
Responses submitted 2/13/2013 11:37:01.
Show responses
|
Timestamp |
2/13/2013 11:37:01 |
Have you ever been diagnosed with any of the following conditions? |
Dandruff, Eczema, Skin tags |
PGP Participant Survey
|
Responses submitted 5/4/2014 16:28:47.
Show responses
|
Timestamp |
5/4/2014 16:28:47 |
Year of birth |
1960 |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United Kingdom |
Paternal grandfather: Country of origin |
Switzerland |
Maternal grandfather: Country of origin |
United States |
Month of birth |
January |
Anatomical sex at birth |
Male |
Maternal grandmother: Race/ethnicity |
White |
Maternal grandfather: Race/ethnicity |
White |
Paternal grandmother: Race/ethnicity |
White |
Paternal grandfather: Race/ethnicity |
White |
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 6/28/2015 2:30:38.
Show responses
|
Timestamp |
6/28/2015 2:30:38 |
Have you ever been diagnosed with any of the following conditions? |
Congenital heart defect |
Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 3/24/2020 13:43:58.
Show responses
|
Timestamp |
3/24/2020 13:43:58 |
What is the zip code of your primary residence? |
94066 |
Do have another residence where you spend more than 30 days a year? |
No |
What is your age (in years)? |
60 |
What is your gender? |
Male |
Select all the following that apply to your current living arrangements. |
Live alone |
What is your race? Pick all that apply. |
White |
What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
Select which one of the following applies to you and your birth status. |
None of the above |
Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
Have you ever been diagnosed with any of the following? [Emphysema] |
No |
Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
Have you ever smoked tobacco products? |
Yes |
Do you currently smoke tobacco products? |
No |
What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
Don't currently smoke |
Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 40 or more hrs per week |
Select the category that best describes your occupation. |
AIRCRAFT MAINTENANCE ENGINEER |
What is the zip code of your primary workplace/worksite? |
94128 |
Do you have a secondary workplace/worksite where you work more than 30 days a year? |
No |
If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
Yes |
Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020
|
Responses submitted 3/24/2020 14:33:50.
Show responses
|
Timestamp |
3/24/2020 14:33:50 |
Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
Yes |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
Are you currently experiencing any of the following symptoms? [Headache] |
No |
Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
Are you currently experiencing any of the following symptoms? [Cough] |
No |
Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
Are you currently experiencing any of the following symptoms? [Shortness of breath] |
No |
Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
No |
Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
No |
Are you currently experiencing any of the following symptoms? [Running nose] |
No |
Are you currently experiencing any of the following symptoms? [Sore throat] |
No |
Are you currently experiencing any of the following symptoms? [Nausea] |
No |
Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
No |
Are you currently experiencing any of the following symptoms? [Diarrhea] |
No |
Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
Are you regularly taking any of the following medications? Please choose all those that apply. |
Ibuprofen (eg. Advil, Midol, Motrin, Motrin IB, Motrin Migraine Pain, Proprinal) |
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I tried to get tested but could not get a test |
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 3/24/2020 23:54:20.
Show responses
|
Timestamp |
3/24/2020 23:54:20 |
What is the zip code of your primary residence? |
94066 |
Do have another residence where you spend more than 30 days a year? |
No |
What is your age (in years)? |
60 |
What is your gender? |
Male |
Select all the following that apply to your current living arrangements. |
Live alone |
What is your race? Pick all that apply. |
White |
What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
Select which one of the following applies to you and your birth status. |
None of the above |
Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
Have you ever been diagnosed with any of the following? [Emphysema] |
No |
Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
Have you ever smoked tobacco products? |
Yes |
Do you currently smoke tobacco products? |
No |
What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
Don't currently smoke |
Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 40 or more hrs per week |
Select the category that best describes your occupation. |
AIRCRAFT MAINTENANCE ENGINEER |
What is the zip code of your primary workplace/worksite? |
94128 |
Do you have a secondary workplace/worksite where you work more than 30 days a year? |
No |
If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
Yes |
Harvard PGP: COVID-19 Health Assessment for Week of 29 March- 4 April 2020
|
Responses submitted 3/30/2020 15:17:49.
Show responses
|
Timestamp |
3/30/2020 15:17:49 |
Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
No |
Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
Are you currently experiencing any of the following symptoms? [Headache] |
No |
Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
Are you currently experiencing any of the following symptoms? [Cough] |
No |
Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
Are you currently experiencing any of the following symptoms? [Shortness of breath] |
No |
Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
No |
Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
No |
Are you currently experiencing any of the following symptoms? [Running nose] |
No |
Are you currently experiencing any of the following symptoms? [Sore throat] |
No |
Are you currently experiencing any of the following symptoms? [Nausea] |
No |
Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
No |
Are you currently experiencing any of the following symptoms? [Diarrhea] |
No |
Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
Are you regularly taking any of the following medications? Please choose all those that apply. |
Ibuprofen (eg. Advil, Midol, Motrin, Motrin IB, Motrin Migraine Pain, Proprinal) |
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
Harvard PGP COVID-19 Health Assessment Week 4: 12 April - 18 April 2020
|
Responses submitted 4/21/2020 17:05:05.
Show responses
|
Timestamp |
4/21/2020 17:05:05 |
Are you currently ill with a cold or flu-like illness? |
No |
Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
No |
Currently are you experiencing ANY of the above list of symptoms? |
No |
In the past two weeks, have you experienced ANY of the above list of symptoms? |
No |
Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? |
No |
Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 5/5/2020 20:41:33.
Show responses
|
Timestamp |
5/5/2020 20:41:33 |
What is the zip code of your primary residence? |
94066 |
Do have another residence where you spend more than 30 days a year? |
No |
What is your age (in years)? |
60 |
What is your gender? |
Male |
Select all the following that apply to your current living arrangements. |
Live alone |
What is your race? Pick all that apply. |
White |
What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
Select which one of the following applies to you and your birth status. |
None of the above |
Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
Have you ever been diagnosed with any of the following? [Emphysema] |
No |
Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
Have you ever smoked tobacco products? |
Yes |
Do you currently smoke tobacco products? |
No |
What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
15-24 |
Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 40 or more hrs per week |
Select the category that best describes your occupation. |
Aircraft mechanic |
What is the zip code of your primary workplace/worksite? |
94128 |
Do you have a secondary workplace/worksite where you work more than 30 days a year? |
No |
If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
Yes |