Personal Genome Project

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Public Profile -- hu8F9A64

Public profile url: https://my.pgp-hms.org/profile/hu8F9A64

Personal Health Records

None added.

Samples

St. Louis, MO blood collection December 29, 2014 Sample 29976829 (whole blood) mailed 2014-12-29 17:00:00 UTC by hu8F9A64.   Show log
2014-12-29 18:30:00 UTC Harvard University / TeloMe, Inc. Sample shipped to CGI
2014-12-29 17:00:00 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2014-12-29 17:00:00 UTC hu8F9A64 Sample returned to researcher
2014-12-29 09:00:00 UTC hu8F9A64 Sample received by participant
2014-12-08 20:45:17 UTC Harvard University / TeloMe, Inc. Sample created
Sample 49838411 (whole blood) mailed 2014-12-29 17:00:00 UTC by hu8F9A64.   Show log
2014-12-29 18:30:00 UTC Harvard University / TeloMe, Inc. Sample shipped to Feinstein Institute
2014-12-29 17:00:00 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2014-12-29 17:00:00 UTC hu8F9A64 Sample returned to researcher
2014-12-29 09:00:00 UTC hu8F9A64 Sample received by participant
2014-12-08 20:45:17 UTC Harvard University / TeloMe, Inc. Sample created

Uploaded data

None available.

Geographic Information

Not added.

Family Members Enrolled

None added.

Surveys

PGP Participant Survey Responses submitted 4/7/2013 23:20:10. Show responses
Timestamp 4/7/2013 23:20:10
Year of birth 30-39 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Crohn's Disease
Disease/trait: Onset 20-29 years of age
Disease/trait: Rarity Very rare/uncommon
Disease/trait: Severity Moderate severity disease
Disease/trait: Relative enrollment No
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation Yes
Disease/trait: Documentation description Colonoscopy results and blood tests
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals No
Enrollment of parents No
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, but I plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery No
Tissue samples from autopsy No
PGP Trait & Disease Survey 2012: Digestive System Responses submitted 4/7/2013 23:20:42. Show responses
Timestamp 4/7/2013 23:20:42
Have you ever been diagnosed with any of the following conditions? Crohn's disease
PGP Trait & Disease Survey 2012: Cancers Responses submitted 12/14/2014 1:23:53. Show responses
Timestamp 12/14/2014 1:23:53
Other condition not listed here? Crohn's disease
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity Responses submitted 12/14/2014 1:24:52. Show responses
Timestamp 12/14/2014 1:24:52
PGP Trait & Disease Survey 2012: Blood Responses submitted 12/14/2014 1:25:48. Show responses
Timestamp 12/14/2014 1:25:48
PGP Trait & Disease Survey 2012: Nervous System Responses submitted 12/14/2014 1:26:09. Show responses
Timestamp 12/14/2014 1:26:09
PGP Trait & Disease Survey 2012: Vision and hearing Responses submitted 12/14/2014 1:26:46. Show responses
Timestamp 12/14/2014 1:26:46
Have you ever been diagnosed with one of the following conditions? Myopia (Nearsightedness), Astigmatism
PGP Trait & Disease Survey 2012: Circulatory System Responses submitted 12/14/2014 1:27:52. Show responses
Timestamp 12/14/2014 1:27:52
PGP Trait & Disease Survey 2012: Respiratory System Responses submitted 12/14/2014 1:28:04. Show responses
Timestamp 12/14/2014 1:28:04
PGP Trait & Disease Survey 2012: Genitourinary Systems Responses submitted 12/14/2014 1:28:19. Show responses
Timestamp 12/14/2014 1:28:19
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue Responses submitted 12/14/2014 1:29:09. Show responses
Timestamp 12/14/2014 1:29:09
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue Responses submitted 12/14/2014 1:29:25. Show responses
Timestamp 12/14/2014 1:29:25
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies Responses submitted 12/14/2014 1:30:17. Show responses
Timestamp 12/14/2014 1:30:17

Absolute Pitch Survey

Survey not taken.

Enrollment History

Participant ID:hu8F9A64
Account created:2013-03-27 02:12:55 UTC
Eligibility screening:2013-03-27 02:15:37 UTC (passed v2)
Exam:2013-03-27 03:26:54 UTC (passed v20120430)
Consent:2015-08-06 14:33:24 UTC (passed v20150505)
Enrolled:2013-04-02 14:27:39 UTC