Personal Genome Project

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Public Profile -- hu8A5FBF

Public profile url: https://my.pgp-hms.org/profile/hu8A5FBF

Personal Health Records

Demographic Information

Date of Birth1953-02-21 (71 years old)
Gender
Weight140lbs (64kg)
Height5ft 7in (170cm)
Blood Type
Race

Conditions

Name Start Date End Date
Benign prostatic hyperplasia 2008-01-01
Malignant melanoma 2003-01-01 2003-01-01
Acute asthma 1956-01-01 1968-01-01
Insomnia 2000-01-01
Raynaud's disease 2011-01-01
Age-related macular degeneration 2012-10-01
Ulcerative Colitis 2001-06-17

Medications

Name Dosage Frequency Start Date End Date
Vitamin D 5000 International unit (iu) Take 1, 1 2007-01-01
Pravastatin 20 MG Oral Tablet 20 Milligram (mg) Take 1, 1 2010-01-01
Curcumin 500 MG 500 Milligram (mg) Take 1, 3 2003-01-01
Vitamin C 500 MG Oral Tablet 500 Milligram (mg) Take 1, 2 1990-01-01
Carotenoid Complex Beta-Carotene 10000 International unit (iu) Take 1, 2 2012-11-01
Zinc 30 Milligram (mg) Take 1, 2 2012-11-01
Vitamin E Capsule 200 International unit (iu) Take 1, 2 2012-11-01
Cal-D 500 Milligram (mg) Take 1, 1 2007-01-01
Omega-3, oral capsule 400 mg EPA, 200 mg EFA Take 1, 2 2004-01-01
Multivitamin/Multimineral Take 1, 1 1990-01-01
Avodart, 0.5 mg oral capsule 0.5 Milligram (mg) Take 1, 1 2010-01-01
balsalazide 750 MG 750 Milligram (mg) Take 4, 2 2006-01-01
Allopurinol 50 Milligram (mg) Take 1.5, 1 2009-01-01
Azathioprine 50 Milligram (mg) Take 1, 1 2010-01-01

Allergies

Name Reaction/Severity Start Date End Date
mites noisy breathing
Sulfasalazine allergy rash 2004-11-03

Procedures

Name Date
Biopsy of prostate 2010-01-01
fistulotomy 2008-01-01
Excision of skin 2003-01-01

Test Results

Name Result Date

Immunizations

Name Date
Measles
Polio (Sabin, oral)
Hepatitis A vaccine (HepA)
Hepatitis B vaccine (HepB) Adult
Pneumococcal polysaccharide vaccine (PPSV) 2006-10-31
Diphtheria, tetanus, pertussis vaccine (DtaP) 2006-10-11
Tetanus, diphtheria vaccine (Td) 2000-12-29

Updated: 2012-12-05T22:00:37.1195185

Samples

Mountain View CA, May 7 2014 Sample 45944276 (whole blood) mailed 2014-05-07 21:00:00 UTC by hu8A5FBF.   Show log
2014-05-07 22:30:00 UTC Harvard University / TeloMe, Inc. Sample shipped to CGI
2014-05-07 21:00:00 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2014-05-07 21:00:00 UTC hu8A5FBF Sample returned to researcher
2014-05-07 13:00:00 UTC hu8A5FBF Sample received by participant
2014-04-22 17:24:30 UTC Harvard University / TeloMe, Inc. Sample created
Sample 59673983 (whole blood) mailed 2014-05-07 21:00:00 UTC by hu8A5FBF.   Show log
2014-05-07 22:30:00 UTC Harvard University / TeloMe, Inc. Sample shipped to Feinstein Institute
2014-05-07 21:00:00 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2014-05-07 21:00:00 UTC hu8A5FBF Sample returned to researcher
2014-05-07 13:00:00 UTC hu8A5FBF Sample received by participant
2014-04-22 17:24:30 UTC Harvard University / TeloMe, Inc. Sample created

Uploaded data

Date Data type Source Name Download Report
2015-04-06 Complete Genomics PGP CGI sample: GS03184-DNA_A02 Download
View report
• male
• 2,762,521,119 positions covered
• ref. b37
2013-03-10 23andMe Participant 23andme_X_Y_MT Download
(7.83 MB) 		View report
2013-02-27 Image within Word doc file Participant lab results 2.27.13 Download
(279 KB)
2012-12-05 health records - CCR XML Participant X_Y.xml Download
(88.1 KB)
2012-12-04 image Participant Thiopurine Metabolites Curve Download
(4.47 MB)
2012-03-20 health records - PDF or text Participant Thiopurine Metabolites (Series).PDF Download
(132 KB)
2012-03-07 image pasted in Word Participant lab_results_3.7.12 Download
(223 KB)

Geographic Information

State:California
Zip code:94303

Family Members Enrolled

None added.

Surveys

PGP Participant Survey Responses submitted 11/28/2012 20:50:45. Show responses
Timestamp 11/28/2012 20:50:45
Year of birth 50-59 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Ulcerative Colitis (extremely severe pancolitis)(replies below apply to this condition) Other Current: Dry Macular Degeneration Prostatic Hyperplasia Other Past: Asthma Melanoma
Disease/trait: Onset 40-49 years of age
Disease/trait: Rarity Uncommon
Disease/trait: Severity Very severe disease
Disease/trait: Relative enrollment No
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation Yes
Disease/trait: Documentation description Medical records from Stanford Hospital Medical records from Palo Alto Medical Foundation Series of colonoscopies (images and reports) (*) I can give both Stanford and PAMF permission to release my records, and I also have some of the reports/images in CDs.
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin Germany
Paternal grandmother: Country of origin Russian Federation
Paternal grandfather: Country of origin Ukraine
Maternal grandfather: Country of origin Germany
Enrollment of relatives No
Enrollment of older individuals Yes
Enrollment of parents Maybe
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? Yes
Uploaded health records: Update status Yes
Uploaded health records: Extensiveness 4
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Trait & Disease Survey 2012: Cancers Responses submitted 11/29/2012 0:45:05. Show responses
Timestamp 11/29/2012 0:45:05
Have you ever been diagnosed with one of the following conditions? Melanoma
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity Responses submitted 11/29/2012 0:46:07. Show responses
Timestamp 11/29/2012 0:46:07
Have you ever been diagnosed with any of the following conditions? High cholesterol (hypercholesterolemia)
PGP Trait & Disease Survey 2012: Blood Responses submitted 11/29/2012 0:49:29. Show responses
Timestamp 11/29/2012 0:49:29
Other condition not listed here? Aplastic anemia (due to medication: only since I started taking 6-MP and later Aza)
PGP Trait & Disease Survey 2012: Nervous System Responses submitted 11/29/2012 0:50:10. Show responses
Timestamp 11/29/2012 0:50:10
Have you ever been diagnosed with one of the following conditions? Essential tremor
PGP Trait & Disease Survey 2012: Vision and hearing Responses submitted 11/29/2012 0:53:09. Show responses
Timestamp 11/29/2012 0:53:09
Have you ever been diagnosed with one of the following conditions? Age-related macular degeneration, Age-related cataract, Presbyopia, Dry eye syndrome
Other condition not listed here? note re. AMD above: dry AMD, bilateral, with multiple large drusen
PGP Trait & Disease Survey 2012: Circulatory System Responses submitted 11/29/2012 0:53:50. Show responses
Timestamp 11/29/2012 0:53:50
Have you ever been diagnosed with one of the following conditions? Raynaud's phenomenon
PGP Trait & Disease Survey 2012: Respiratory System Responses submitted 11/29/2012 0:54:22. Show responses
Timestamp 11/29/2012 0:54:22
Have you ever been diagnosed with any of the following conditions? Deviated septum, Asthma
PGP Trait & Disease Survey 2012: Digestive System Responses submitted 11/29/2012 0:55:02. Show responses
Timestamp 11/29/2012 0:55:02
Have you ever been diagnosed with any of the following conditions? Dental cavities, Gingivitis, Ulcerative colitis
PGP Trait & Disease Survey 2012: Genitourinary Systems Responses submitted 11/29/2012 0:55:32. Show responses
Timestamp 11/29/2012 0:55:32
Have you ever been diagnosed with any of the following conditions? Benign prostatic hypertrophy (BPH)
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue Responses submitted 11/29/2012 0:56:07. Show responses
Timestamp 11/29/2012 0:56:07
Have you ever been diagnosed with any of the following conditions? Eczema, Hair loss (includes female and male pattern baldness), Acne
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue Responses submitted 11/29/2012 0:57:19. Show responses
Timestamp 11/29/2012 0:57:19
Have you ever been diagnosed with any of the following conditions? Frozen shoulder, Rotator cuff tear, Bunions, Flatfeet
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies Responses submitted 11/29/2012 0:57:47. Show responses
Timestamp 11/29/2012 0:57:47
PGP Participant Survey Responses submitted 5/2/2014 17:19:51. Show responses
Timestamp 5/2/2014 17:19:51
Year of birth 1953
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Genetic: HH carrier, CF carrier, some SNPS related to ILs. Clinical (rare, but w/multifactorial causes): UC, SNHL
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin Germany
Paternal grandmother: Country of origin Russian Federation
Paternal grandfather: Country of origin Russian Federation
Maternal grandfather: Country of origin Germany
Month of birth March
Anatomical sex at birth Male
Maternal grandmother: Race/ethnicity White
Maternal grandfather: Race/ethnicity White
Paternal grandmother: Race/ethnicity White
Paternal grandfather: Race/ethnicity White
PGP Basic Phenotypes Survey 2015 Responses submitted 5/18/2018 21:15:33. Show responses
Timestamp 5/18/2018 21:15:33
1.1 — Blood Type O +
1.2 — Height 5'7"
1.3 — Weight 132
2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) 5
2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) 5
2.3 — Left Eye Color - Text Description green with flecks
2.4 — Right Eye Color - Text Description green with flecks
3.1 — What is your natural hair color currently, when without artificial color or dye? brown
3.2 — Hair Color - Text Description brown with some gray
3.3 — Comments I was born with very light blond hair
1.4 — Handedness Right
Harvard PGP: COVID-19 Demographics Survey Responses submitted 3/23/2020 21:04:01. Show responses
Timestamp 3/23/2020 21:04:01
What is the zip code of your primary residence? 94303
Do have another residence where you spend more than 30 days a year? No
What is your age (in years)? 67
What is your gender? Male
Select all the following that apply to your current living arrangements. Live with partner/spouse
What is your race? Pick all that apply. White
What is your ethnicity? Prefer not to answer
Select which one of the following applies to you and your birth status. None of the above
Have you ever been diagnosed with any of the following? [Asthma (Adult)] No
Have you ever been diagnosed with any of the following? [Asthma (Childhood)] Yes
Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] No
Have you ever been diagnosed with any of the following? [Emphysema] No
Have you ever been diagnosed with any of the following? [Chronic bronchitis] No
Have you ever been diagnosed with any of the following? [Pneumonia] Yes
Have you ever been diagnosed with any of the following? [Type 1 Diabetes] No
Have you ever been diagnosed with any of the following? [Type 2 Diabetes] No
Have you ever smoked tobacco products? No
Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? No
Which one of the following best describes your employment status for the past 3 months? Retired
Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020 Responses submitted 3/23/2020 21:11:06. Show responses
Timestamp 3/23/2020 21:11:06
Since Jan 1, 2020, have you been ill with a cold or flu-like illness? No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] Yes
Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] No
Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] No
Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] No
Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] No
Are you currently experiencing any of the following symptoms? [Headache] No
Are you currently experiencing any of the following symptoms? [Aches all over the body] No
Are you currently experiencing any of the following symptoms? [Cough] No
Are you currently experiencing any of the following symptoms? [Rapid breathing] No
Are you currently experiencing any of the following symptoms? [Shortness of breath] No
Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] No
Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] No
Are you currently experiencing any of the following symptoms? [Bluish lips or face] No
Are you currently experiencing any of the following symptoms? [Dizziness] No
Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] No
Are you currently experiencing any of the following symptoms? [Running nose] No
Are you currently experiencing any of the following symptoms? [Sore throat] No
Are you currently experiencing any of the following symptoms? [Nausea] No
Are you currently experiencing any of the following symptoms? [Vomiting] No
Are you currently experiencing any of the following symptoms? [Abdominal Pain] No
Are you currently experiencing any of the following symptoms? [Diarrhea] No
Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] No
Are you currently experiencing any of the following symptoms? [Loss of sense of smell] No
Are you currently experiencing any of the following symptoms? [Loss of sense of taste] No
Are you regularly taking any of the following medications? Please choose all those that apply. None of these medications
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? No, I have not tried to get tested
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? No
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? No
Harvard PGP: COVID-19 Health Assessment for Week of 5 April - 11 April 2020 Responses submitted 4/6/2020 14:53:22. Show responses
Timestamp 4/6/2020 14:53:22
Since Jan 1, 2020, have you been ill with a cold or flu-like illness? No
Currently are you experiencing ANY of the above list of symptoms? No
In the past two weeks, have you experienced ANY of the above list of symptoms? No
Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? No
Are you regularly taking any of the following medications? Please choose all those that apply. None of these medications
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? No, I have not tried to get tested
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? No
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? No
Harvard PGP: COVID-19 Demographics Survey Responses submitted 4/6/2020 14:55:14. Show responses
Timestamp 4/6/2020 14:55:14
What is the zip code of your primary residence? 94303
Do have another residence where you spend more than 30 days a year? No
What is your age (in years)? 67
What is your gender? Male
Select all the following that apply to your current living arrangements. Live with partner/spouse
What is your race? Pick all that apply. White
What is your ethnicity? Prefer not to answer
Select which one of the following applies to you and your birth status. None of the above
Have you ever been diagnosed with any of the following? [Asthma (Childhood)] Yes
Have you ever been diagnosed with any of the following? [Pneumonia] Yes
Have you ever smoked tobacco products? No
Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? No
Which one of the following best describes your employment status for the past 3 months? Retired
Harvard PGP COVID-19 Health Assessment Week 4: 12 April - 18 April 2020 Responses submitted 4/13/2020 17:46:43. Show responses
Timestamp 4/13/2020 17:46:43
Are you currently ill with a cold or flu-like illness? No
Since Jan 1, 2020, have you been ill with a cold or flu-like illness? No
Currently are you experiencing ANY of the above list of symptoms? No
In the past two weeks, have you experienced ANY of the above list of symptoms? No
Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? No
Are you regularly taking any of the following medications? Please choose all those that apply. None of these medications
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? No, I have not tried to get tested
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? No
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? No
Harvard PGP COVID-19 Health Assessment [Ongoing] Responses submitted 5/27/2020 17:36:02. Show responses
Timestamp 5/27/2020 17:36:02
Are you currently ill with a cold or flu-like illness? No
Currently are you experiencing ANY of the above list of symptoms? No
In the past two weeks, have you experienced ANY of the above list of symptoms? No
Are you regularly taking any of the following medications? Please choose all those that apply. None of these medications
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? No, I have not tried to get tested
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? No
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? No
Harvard PGP COVID-19 Health Assessment [Ongoing] Responses submitted 6/12/2020 12:27:51. Show responses
Timestamp 6/12/2020 12:27:51
Are you currently ill with a cold or flu-like illness? No
Currently are you experiencing ANY of the above list of symptoms? No
In the past two weeks, have you experienced ANY of the above list of symptoms? No
Are you regularly taking any of the following medications? Please choose all those that apply. None of these medications
Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? No, I have not tried to get tested
In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? No
In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? No

Absolute Pitch Survey [see all responses]

Can tell if notes are in tune: Yes
Can sing a melody on key: No
Can recognize musical intervals: No
Do you have absolute pitch? No

Enrollment History

Participant ID:hu8A5FBF
Account created:2012-11-27 06:10:09 UTC
Eligibility screening:2012-11-27 06:12:33 UTC (passed v2)
Exam:2012-11-27 06:25:09 UTC (passed v20120430)
Consent:2015-08-06 14:32:54 UTC (passed v20150505)
Enrolled:2012-11-28 15:07:10 UTC