Public Profile -- hu8A5FBF
Public profile url: https://my.pgp-hms.org/profile/hu8A5FBF
  Personal Health Records
Demographic Information
| Date of Birth | 1953-02-21 (72 years old) | 
|---|---|
| Gender | |
| Weight | 140lbs (64kg) | 
| Height | 5ft 7in (170cm) | 
| Blood Type | |
| Race | 
Conditions
| Name | Start Date | End Date | 
|---|---|---|
| Benign prostatic hyperplasia | 2008-01-01 | |
| Malignant melanoma | 2003-01-01 | 2003-01-01 | 
| Acute asthma | 1956-01-01 | 1968-01-01 | 
| Insomnia | 2000-01-01 | |
| Raynaud's disease | 2011-01-01 | |
| Age-related macular degeneration | 2012-10-01 | |
| Ulcerative Colitis | 2001-06-17 | 
Medications
| Name | Dosage | Frequency | Start Date | End Date | 
|---|---|---|---|---|
| Vitamin D | 5000 International unit (iu) | Take 1, 1 | 2007-01-01 | |
| Pravastatin 20 MG Oral Tablet | 20 Milligram (mg) | Take 1, 1 | 2010-01-01 | |
| Curcumin 500 MG | 500 Milligram (mg) | Take 1, 3 | 2003-01-01 | |
| Vitamin C 500 MG Oral Tablet | 500 Milligram (mg) | Take 1, 2 | 1990-01-01 | |
| Carotenoid Complex Beta-Carotene | 10000 International unit (iu) | Take 1, 2 | 2012-11-01 | |
| Zinc | 30 Milligram (mg) | Take 1, 2 | 2012-11-01 | |
| Vitamin E Capsule | 200 International unit (iu) | Take 1, 2 | 2012-11-01 | |
| Cal-D | 500 Milligram (mg) | Take 1, 1 | 2007-01-01 | |
| Omega-3, oral capsule | 400 mg EPA, 200 mg EFA | Take 1, 2 | 2004-01-01 | |
| Multivitamin/Multimineral | Take 1, 1 | 1990-01-01 | ||
| Avodart, 0.5 mg oral capsule | 0.5 Milligram (mg) | Take 1, 1 | 2010-01-01 | |
| balsalazide 750 MG | 750 Milligram (mg) | Take 4, 2 | 2006-01-01 | |
| Allopurinol | 50 Milligram (mg) | Take 1.5, 1 | 2009-01-01 | |
| Azathioprine | 50 Milligram (mg) | Take 1, 1 | 2010-01-01 | 
Allergies
| Name | Reaction/Severity | Start Date | End Date | 
|---|---|---|---|
| mites | noisy breathing | ||
| Sulfasalazine allergy | rash | 2004-11-03 | 
Procedures
| Name | Date | 
|---|---|
| Biopsy of prostate | 2010-01-01 | 
| fistulotomy | 2008-01-01 | 
| Excision of skin | 2003-01-01 | 
Test Results
| Name | Result | Date | 
|---|
Immunizations
| Name | Date | 
|---|---|
| Measles | |
| Polio (Sabin, oral) | |
| Hepatitis A vaccine (HepA) | |
| Hepatitis B vaccine (HepB) Adult | |
| Pneumococcal polysaccharide vaccine (PPSV) | 2006-10-31 | 
| Diphtheria, tetanus, pertussis vaccine (DtaP) | 2006-10-11 | 
| Tetanus, diphtheria vaccine (Td) | 2000-12-29 | 
Updated: 2012-12-05T22:00:37.1195185
Samples
| Mountain View CA, May 7 2014 | Sample
                  45944276
                  (whole blood)
                    mailed
                    2014-05-07 21:00:00 UTC
                    by
                    hu8A5FBF.
                   
                  
                    Show log 
 | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Sample
                  59673983
                  (whole blood)
                    mailed
                    2014-05-07 21:00:00 UTC
                    by
                    hu8A5FBF.
                   
                  
                    Show log 
 | 
Uploaded data
| Date | Data type | Source | Name | Download | Report | |
|---|---|---|---|---|---|---|
| 2015-04-06 | Complete Genomics | PGP | CGI sample: GS03184-DNA_A02 | Download | View report • male • 2,762,521,119 positions covered • ref. b37 | |
| 2013-03-10 | 23andMe | Participant | 23andme_X_Y_MT | Download (7.83 MB) | View report | |
| 2013-02-27 | Image within Word doc file | Participant | lab results 2.27.13 | Download (279 KB) | ||
| 2012-12-05 | health records - CCR XML | Participant | X_Y.xml | Download (88.1 KB) | ||
| 2012-12-04 | image | Participant | Thiopurine Metabolites Curve | Download (4.47 MB) | ||
| 2012-03-20 | health records - PDF or text | Participant | Thiopurine Metabolites (Series).PDF | Download (132 KB) | ||
| 2012-03-07 | image pasted in Word | Participant | lab_results_3.7.12 | Download (223 KB) | 
Geographic Information
| State: | California | 
| Zip code: | 94303 | 
Family Members Enrolled
None added.Surveys
| PGP Participant Survey | Responses submitted 11/28/2012 20:50:45. Show responses | 
|---|---|
| Timestamp | 11/28/2012 20:50:45 | 
| Year of birth | 50-59 years | 
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. | 
| Severe disease or rare genetic trait | Yes | 
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | Ulcerative Colitis (extremely severe pancolitis)(replies below apply to this condition) Other Current: Dry Macular Degeneration Prostatic Hyperplasia Other Past: Asthma Melanoma | 
| Disease/trait: Onset | 40-49 years of age | 
| Disease/trait: Rarity | Uncommon | 
| Disease/trait: Severity | Very severe disease | 
| Disease/trait: Relative enrollment | No | 
| Disease/trait: Diagnosis | Yes | 
| Disease/trait: Genetic confirmation | No | 
| Disease/trait: Documentation | Yes | 
| Disease/trait: Documentation description | Medical records from Stanford Hospital Medical records from Palo Alto Medical Foundation Series of colonoscopies (images and reports) (*) I can give both Stanford and PAMF permission to release my records, and I also have some of the reports/images in CDs. | 
| Sex/Gender | Male | 
| Race/ethnicity | White | 
| Maternal grandmother: Country of origin | Germany | 
| Paternal grandmother: Country of origin | Russian Federation | 
| Paternal grandfather: Country of origin | Ukraine | 
| Maternal grandfather: Country of origin | Germany | 
| Enrollment of relatives | No | 
| Enrollment of older individuals | Yes | 
| Enrollment of parents | Maybe | 
| Have you uploaded genetic data to your PGP participant profile? | No, I have no genetic data. | 
| Have you used the PGP web interface to record a designated proxy? | Yes | 
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | Yes | 
| Uploaded health records: Update status | Yes | 
| Uploaded health records: Extensiveness | 4 | 
| Blood sample | Yes | 
| Saliva sample | Yes | 
| Microbiome samples | Yes | 
| Tissue samples from surgery | Yes | 
| Tissue samples from autopsy | Yes | 
| PGP Trait & Disease Survey 2012: Cancers | Responses submitted 11/29/2012 0:45:05. Show responses | 
| Timestamp | 11/29/2012 0:45:05 | 
| Have you ever been diagnosed with one of the following conditions? | Melanoma | 
| PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity | Responses submitted 11/29/2012 0:46:07. Show responses | 
| Timestamp | 11/29/2012 0:46:07 | 
| Have you ever been diagnosed with any of the following conditions? | High cholesterol (hypercholesterolemia) | 
| PGP Trait & Disease Survey 2012: Blood | Responses submitted 11/29/2012 0:49:29. Show responses | 
| Timestamp | 11/29/2012 0:49:29 | 
| Other condition not listed here? | Aplastic anemia (due to medication: only since I started taking 6-MP and later Aza) | 
| PGP Trait & Disease Survey 2012: Nervous System | Responses submitted 11/29/2012 0:50:10. Show responses | 
| Timestamp | 11/29/2012 0:50:10 | 
| Have you ever been diagnosed with one of the following conditions? | Essential tremor | 
| PGP Trait & Disease Survey 2012: Vision and hearing | Responses submitted 11/29/2012 0:53:09. Show responses | 
| Timestamp | 11/29/2012 0:53:09 | 
| Have you ever been diagnosed with one of the following conditions? | Age-related macular degeneration, Age-related cataract, Presbyopia, Dry eye syndrome | 
| Other condition not listed here? | note re. AMD above: dry AMD, bilateral, with multiple large drusen | 
| PGP Trait & Disease Survey 2012: Circulatory System | Responses submitted 11/29/2012 0:53:50. Show responses | 
| Timestamp | 11/29/2012 0:53:50 | 
| Have you ever been diagnosed with one of the following conditions? | Raynaud's phenomenon | 
| PGP Trait & Disease Survey 2012: Respiratory System | Responses submitted 11/29/2012 0:54:22. Show responses | 
| Timestamp | 11/29/2012 0:54:22 | 
| Have you ever been diagnosed with any of the following conditions? | Deviated septum, Asthma | 
| PGP Trait & Disease Survey 2012: Digestive System | Responses submitted 11/29/2012 0:55:02. Show responses | 
| Timestamp | 11/29/2012 0:55:02 | 
| Have you ever been diagnosed with any of the following conditions? | Dental cavities, Gingivitis, Ulcerative colitis | 
| PGP Trait & Disease Survey 2012: Genitourinary Systems | Responses submitted 11/29/2012 0:55:32. Show responses | 
| Timestamp | 11/29/2012 0:55:32 | 
| Have you ever been diagnosed with any of the following conditions? | Benign prostatic hypertrophy (BPH) | 
| PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue | Responses submitted 11/29/2012 0:56:07. Show responses | 
| Timestamp | 11/29/2012 0:56:07 | 
| Have you ever been diagnosed with any of the following conditions? | Eczema, Hair loss (includes female and male pattern baldness), Acne | 
| PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue | Responses submitted 11/29/2012 0:57:19. Show responses | 
| Timestamp | 11/29/2012 0:57:19 | 
| Have you ever been diagnosed with any of the following conditions? | Frozen shoulder, Rotator cuff tear, Bunions, Flatfeet | 
| PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies | Responses submitted 11/29/2012 0:57:47. Show responses | 
| Timestamp | 11/29/2012 0:57:47 | 
| PGP Participant Survey | Responses submitted 5/2/2014 17:19:51. Show responses | 
| Timestamp | 5/2/2014 17:19:51 | 
| Year of birth | 1953 | 
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | Genetic: HH carrier, CF carrier, some SNPS related to ILs. Clinical (rare, but w/multifactorial causes): UC, SNHL | 
| Sex/Gender | Male | 
| Race/ethnicity | White | 
| Maternal grandmother: Country of origin | Germany | 
| Paternal grandmother: Country of origin | Russian Federation | 
| Paternal grandfather: Country of origin | Russian Federation | 
| Maternal grandfather: Country of origin | Germany | 
| Month of birth | March | 
| Anatomical sex at birth | Male | 
| Maternal grandmother: Race/ethnicity | White | 
| Maternal grandfather: Race/ethnicity | White | 
| Paternal grandmother: Race/ethnicity | White | 
| Paternal grandfather: Race/ethnicity | White | 
| PGP Basic Phenotypes Survey 2015 | Responses submitted 5/18/2018 21:15:33. Show responses | 
| Timestamp | 5/18/2018 21:15:33 | 
| 1.1 — Blood Type | O + | 
| 1.2 — Height | 5'7" | 
| 1.3 — Weight | 132 | 
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) | 5 | 
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) | 5 | 
| 2.3 — Left Eye Color - Text Description | green with flecks | 
| 2.4 — Right Eye Color - Text Description | green with flecks | 
| 3.1 — What is your natural hair color currently, when without artificial color or dye? | brown | 
| 3.2 — Hair Color - Text Description | brown with some gray | 
| 3.3 — Comments | I was born with very light blond hair | 
| 1.4 — Handedness | Right | 
| Harvard PGP: COVID-19 Demographics Survey | Responses submitted 3/23/2020 21:04:01. Show responses | 
| Timestamp | 3/23/2020 21:04:01 | 
| What is the zip code of your primary residence? | 94303 | 
| Do have another residence where you spend more than 30 days a year? | No | 
| What is your age (in years)? | 67 | 
| What is your gender? | Male | 
| Select all the following that apply to your current living arrangements. | Live with partner/spouse | 
| What is your race? Pick all that apply. | White | 
| What is your ethnicity? | Prefer not to answer | 
| Select which one of the following applies to you and your birth status. | None of the above | 
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] | No | 
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] | Yes | 
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] | No | 
| Have you ever been diagnosed with any of the following? [Emphysema] | No | 
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] | No | 
| Have you ever been diagnosed with any of the following? [Pneumonia] | Yes | 
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] | No | 
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] | No | 
| Have you ever smoked tobacco products? | No | 
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? | No | 
| Which one of the following best describes your employment status for the past 3 months? | Retired | 
| Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020 | Responses submitted 3/23/2020 21:11:06. Show responses | 
| Timestamp | 3/23/2020 21:11:06 | 
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] | Yes | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] | No | 
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] | No | 
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No | 
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] | No | 
| Are you currently experiencing any of the following symptoms? [Headache] | No | 
| Are you currently experiencing any of the following symptoms? [Aches all over the body] | No | 
| Are you currently experiencing any of the following symptoms? [Cough] | No | 
| Are you currently experiencing any of the following symptoms? [Rapid breathing] | No | 
| Are you currently experiencing any of the following symptoms? [Shortness of breath] | No | 
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] | No | 
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] | No | 
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] | No | 
| Are you currently experiencing any of the following symptoms? [Dizziness] | No | 
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] | No | 
| Are you currently experiencing any of the following symptoms? [Running nose] | No | 
| Are you currently experiencing any of the following symptoms? [Sore throat] | No | 
| Are you currently experiencing any of the following symptoms? [Nausea] | No | 
| Are you currently experiencing any of the following symptoms? [Vomiting] | No | 
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] | No | 
| Are you currently experiencing any of the following symptoms? [Diarrhea] | No | 
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] | No | 
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] | No | 
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] | No | 
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications | 
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested | 
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No | 
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No | 
| Harvard PGP: COVID-19 Health Assessment for Week of 5 April - 11 April 2020 | Responses submitted 4/6/2020 14:53:22. Show responses | 
| Timestamp | 4/6/2020 14:53:22 | 
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No | 
| Currently are you experiencing ANY of the above list of symptoms? | No | 
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No | 
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? | No | 
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications | 
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested | 
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No | 
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No | 
| Harvard PGP: COVID-19 Demographics Survey | Responses submitted 4/6/2020 14:55:14. Show responses | 
| Timestamp | 4/6/2020 14:55:14 | 
| What is the zip code of your primary residence? | 94303 | 
| Do have another residence where you spend more than 30 days a year? | No | 
| What is your age (in years)? | 67 | 
| What is your gender? | Male | 
| Select all the following that apply to your current living arrangements. | Live with partner/spouse | 
| What is your race? Pick all that apply. | White | 
| What is your ethnicity? | Prefer not to answer | 
| Select which one of the following applies to you and your birth status. | None of the above | 
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] | Yes | 
| Have you ever been diagnosed with any of the following? [Pneumonia] | Yes | 
| Have you ever smoked tobacco products? | No | 
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? | No | 
| Which one of the following best describes your employment status for the past 3 months? | Retired | 
| Harvard PGP COVID-19 Health Assessment Week 4: 12 April - 18 April 2020 | Responses submitted 4/13/2020 17:46:43. Show responses | 
| Timestamp | 4/13/2020 17:46:43 | 
| Are you currently ill with a cold or flu-like illness? | No | 
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No | 
| Currently are you experiencing ANY of the above list of symptoms? | No | 
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No | 
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? | No | 
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications | 
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested | 
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No | 
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No | 
| Harvard PGP COVID-19 Health Assessment [Ongoing] | Responses submitted 5/27/2020 17:36:02. Show responses | 
| Timestamp | 5/27/2020 17:36:02 | 
| Are you currently ill with a cold or flu-like illness? | No | 
| Currently are you experiencing ANY of the above list of symptoms? | No | 
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No | 
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications | 
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested | 
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No | 
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No | 
| Harvard PGP COVID-19 Health Assessment [Ongoing] | Responses submitted 6/12/2020 12:27:51. Show responses | 
| Timestamp | 6/12/2020 12:27:51 | 
| Are you currently ill with a cold or flu-like illness? | No | 
| Currently are you experiencing ANY of the above list of symptoms? | No | 
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No | 
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications | 
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested | 
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No | 
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No | 
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: Yes
      Can sing a melody on key: No
      Can recognize musical intervals: No
      Do you have absolute pitch? No
Enrollment History
| Participant ID: | hu8A5FBF | 
| Account created: | 2012-11-27 06:10:09 UTC | 
| Eligibility screening: | 2012-11-27 06:12:33 UTC (passed v2) | 
| Exam: | 2012-11-27 06:25:09 UTC (passed v20120430) | 
| Consent: | 2015-08-06 14:32:54 UTC (passed v20150505) | 
| Enrolled: | 2012-11-28 15:07:10 UTC | 
