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PGP Participant Survey
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Responses submitted 7/17/2011 8:47:14.
Show responses
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| Timestamp |
7/17/2011 8:47:14 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Rheumatoid arthritis |
| Disease/trait: Onset |
50-59 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
laboratory test - positive rhematoid factor
laboratory test - HLA subtyping for HLA-DRB1 (4,11) |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
Ireland |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
No |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
1 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
0 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
5 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Fall/Winter 2011 Saliva Kit: Large Tube Collection Survey
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Responses submitted 10/19/2011 5:40:11.
Show responses
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| Timestamp |
10/19/2011 5:40:11 |
| Which sample tube did you just collect? |
Big tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in 5 to 10 minutes) |
| What time of day did you collect saliva? |
Very first thing in the morning, right after waking & before eating or drinking anything |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
6 - 12 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
No, no eating between last brushing and collection |
| When was the last time you used mouthwash? |
Not applicable: I rarely or never use mouthwash |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
Not applicable: I rarely or never use mouthwash |
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PGP Fall/Winter 2011 Saliva Kit: Small Tube Collection Survey
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Responses submitted 10/19/2011 5:41:51.
Show responses
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| Timestamp |
10/19/2011 5:41:51 |
| Which sample tube did you just collect? |
Small tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in 5 to 10 minutes) |
| What time of day did you collect saliva? |
Very first thing in the morning, right after waking & before eating or drinking anything |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
6 - 12 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
No, no eating between last brushing and collection |
| When was the last time you used mouthwash? |
Not applicable: I rarely or never use mouthwash |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
Not applicable: I rarely or never use mouthwash |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 1/20/2013 6:41:59.
Show responses
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| Timestamp |
1/20/2013 6:41:59 |
| Have you ever been diagnosed with one of the following conditions? |
Colon polyps, Lipoma |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 1/20/2013 6:43:36.
Show responses
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| Timestamp |
1/20/2013 6:43:36 |
| Have you ever been diagnosed with any of the following conditions? |
Thyroid nodule(s), High cholesterol (hypercholesterolemia) |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 1/20/2013 6:44:45.
Show responses
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| Timestamp |
1/20/2013 6:44:45 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 1/20/2013 6:51:49.
Show responses
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| Timestamp |
1/20/2013 6:51:49 |
| Have you ever been diagnosed with one of the following conditions? |
Carpal tunnel syndrome |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 1/20/2013 6:53:08.
Show responses
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| Timestamp |
1/20/2013 6:53:08 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism, Presbyopia, Dry eye syndrome, Floaters |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 1/20/2013 6:56:34.
Show responses
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| Timestamp |
1/20/2013 6:56:34 |
| Have you ever been diagnosed with one of the following conditions? |
Hypertension, Cardiac arrhythmia, Raynaud's phenomenon, Hemorrhoids |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 1/20/2013 6:57:21.
Show responses
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| Timestamp |
1/20/2013 6:57:21 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis, Asthma |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 1/20/2013 6:58:47.
Show responses
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| Timestamp |
1/20/2013 6:58:47 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Gastroesophageal reflux disease (GERD) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 1/20/2013 6:59:44.
Show responses
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| Timestamp |
1/20/2013 6:59:44 |
| Have you ever been diagnosed with any of the following conditions? |
Benign prostatic hypertrophy (BPH) |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 1/20/2013 7:01:01.
Show responses
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| Timestamp |
1/20/2013 7:01:01 |
| Have you ever been diagnosed with any of the following conditions? |
Eczema, Rosacea, Hair loss (includes female and male pattern baldness), Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 1/20/2013 7:02:35.
Show responses
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| Timestamp |
1/20/2013 7:02:35 |
| Have you ever been diagnosed with any of the following conditions? |
Rheumatoid arthritis, Osteoarthritis, Spinal stenosis, Sciatica, Tennis elbow, Bone spurs, Dupuytren's contracture, Plantar fasciitis |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 1/20/2013 7:03:41.
Show responses
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| Timestamp |
1/20/2013 7:03:41 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 1/20/2013 7:10:00.
Show responses
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| Timestamp |
1/20/2013 7:10:00 |
| Have you ever been diagnosed with any of the following conditions? |
Rheumatoid arthritis, Osteoarthritis, Spinal stenosis, Sciatica, Tennis elbow, Bone spurs, Dupuytren's contracture, Plantar fasciitis |
