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PGP Participant Survey
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Responses submitted 12/21/2011 18:09:34.
Show responses
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| Timestamp |
12/21/2011 18:09:34 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
France |
| Paternal grandfather: Country of origin |
France |
| Maternal grandfather: Country of origin |
Norway |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Participant Survey
|
Responses submitted 12/21/2011 18:11:17.
Show responses
|
| Timestamp |
12/21/2011 18:11:17 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
France |
| Paternal grandfather: Country of origin |
France |
| Maternal grandfather: Country of origin |
Norway |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 6/16/2012 22:43:15.
Show responses
|
| Timestamp |
6/16/2012 22:43:15 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
raynauds |
| Disease/trait: Onset |
After 60 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I have photographs of my hands, my doctor has tested me extensively for autoimmune disorders with negative results. My mother had severe raynauds from appx. age 30 until her death at 69. The onset of raynauds in my case was late, October 2011. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
France |
| Paternal grandfather: Country of origin |
France |
| Maternal grandfather: Country of origin |
Norway |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 10/29/2013 23:06:46.
Show responses
|
| Timestamp |
10/29/2013 23:06:46 |
| Year of birth |
1946 |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
primary raynauds, osteoarthritis early onset. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Sweden |
| Paternal grandmother: Country of origin |
France |
| Paternal grandfather: Country of origin |
France |
| Maternal grandfather: Country of origin |
Norway |
| Month of birth |
October |
| Anatomical sex at birth |
Female |
| Maternal grandmother: Race/ethnicity |
White |
| Maternal grandfather: Race/ethnicity |
White |
| Paternal grandmother: Race/ethnicity |
White |
| Paternal grandfather: Race/ethnicity |
White |
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PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 10/29/2013 23:07:50.
Show responses
|
| Timestamp |
10/29/2013 23:07:50 |
| Other condition not listed here? |
raynauds |
|
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/29/2013 23:08:36.
Show responses
|
| Timestamp |
10/29/2013 23:08:36 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 10/29/2013 23:09:14.
Show responses
|
| Timestamp |
10/29/2013 23:09:14 |
| Have you ever been diagnosed with one of the following conditions? |
Essential tremor, Restless legs syndrome, Cluster headaches, Carpal tunnel syndrome |
|
PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/29/2013 23:09:44.
Show responses
|
| Timestamp |
10/29/2013 23:09:44 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Tinnitus |
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PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 10/29/2013 23:10:09.
Show responses
|
| Timestamp |
10/29/2013 23:10:09 |
| Have you ever been diagnosed with one of the following conditions? |
Hypertension, Raynaud's phenomenon, Hemorrhoids |
|
PGP Trait & Disease Survey 2012: Respiratory System
|
Responses submitted 10/29/2013 23:10:27.
Show responses
|
| Timestamp |
10/29/2013 23:10:27 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic sinusitis |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 10/29/2013 23:10:59.
Show responses
|
| Timestamp |
10/29/2013 23:10:59 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Canker sores (oral ulcers), Inguinal hernia, Diverticulosis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/29/2013 23:11:18.
Show responses
|
| Timestamp |
10/29/2013 23:11:18 |
|
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/29/2013 23:11:41.
Show responses
|
| Timestamp |
10/29/2013 23:11:41 |
| Have you ever been diagnosed with any of the following conditions? |
Eczema |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 10/29/2013 23:12:11.
Show responses
|
| Timestamp |
10/29/2013 23:12:11 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Spinal stenosis, Bone spurs |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/29/2013 23:12:56.
Show responses
|
| Timestamp |
10/29/2013 23:12:56 |
|
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 12/12/2013 1:55:24.
Show responses
|
| Timestamp |
12/12/2013 1:55:24 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
|
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 12/12/2013 1:58:16.
Show responses
|
| Timestamp |
12/12/2013 1:58:16 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI), Fibrocystic breast disease |
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PGP Basic Phenotypes Survey 2015
|
Responses submitted 4/21/2017 23:57:08.
Show responses
|
| Timestamp |
4/21/2017 23:57:08 |
| 1.1 — Blood Type |
A + |
| 1.2 — Height |
5'6" |
| 1.3 — Weight |
143 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.3 — Left Eye Color - Text Description |
green with brown around pupil |
| 2.4 — Right Eye Color - Text Description |
same |
| 2.5 —Comments |
color is lighter, my eyes had more brown when I was younger |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
gray |
| 3.2 — Hair Color - Text Description |
fine slightly wavy |
| 3.3 — Comments |
hair was light brown as a child, dark brown as I got older and began turning gray when I was in my 50's |
| 1.4 — Handedness |
Left |
