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PGP Participant Survey
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Responses submitted 7/16/2011 13:33:23.
Show responses
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| Timestamp |
7/16/2011 13:33:23 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Narcolepsy |
| Disease/trait: Onset |
40-49 years of age |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Multiple Sleep Latency Test, negative other tests that rule out other causes of excessive daytime sleepiness, possibly EEG (not sure what format it is in or how accessible it is -- will ask my doctor). |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 1/19/2012 10:12:02.
Show responses
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| Timestamp |
1/19/2012 10:12:02 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 2/1/2012 23:14:59.
Show responses
|
| Timestamp |
2/1/2012 23:14:59 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/3/2013 22:39:18.
Show responses
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| Timestamp |
2/3/2013 22:39:18 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/3/2013 22:39:47.
Show responses
|
| Timestamp |
2/3/2013 22:39:47 |
| Have you ever been diagnosed with any of the following conditions? |
Hypothyroidism |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 2/3/2013 22:40:23.
Show responses
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| Timestamp |
2/3/2013 22:40:23 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 2/3/2013 22:41:17.
Show responses
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| Timestamp |
2/3/2013 22:41:17 |
| Have you ever been diagnosed with one of the following conditions? |
Migraine without aura, Carpal tunnel syndrome |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 2/3/2013 22:42:13.
Show responses
|
| Timestamp |
2/3/2013 22:42:13 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism, Tinnitus |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 2/3/2013 22:42:48.
Show responses
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| Timestamp |
2/3/2013 22:42:48 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 2/3/2013 22:43:30.
Show responses
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| Timestamp |
2/3/2013 22:43:30 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/3/2013 22:45:42.
Show responses
|
| Timestamp |
2/3/2013 22:45:42 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis, Temporomandibular joint (TMJ) disorder, Canker sores (oral ulcers), Inguinal hernia |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 2/3/2013 22:46:13.
Show responses
|
| Timestamp |
2/3/2013 22:46:13 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 2/3/2013 22:47:07.
Show responses
|
| Timestamp |
2/3/2013 22:47:07 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic contact dermatitis, Skin tags, Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/3/2013 22:48:10.
Show responses
|
| Timestamp |
2/3/2013 22:48:10 |
| Have you ever been diagnosed with any of the following conditions? |
Rotator cuff tear, Tennis elbow |
| Other condition not listed here? |
Golfers elbow |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 2/3/2013 22:48:37.
Show responses
|
| Timestamp |
2/3/2013 22:48:37 |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 4/21/2017 21:17:12.
Show responses
|
| Timestamp |
4/21/2017 21:17:12 |
| 1.1 — Blood Type |
O - |
| 1.2 — Height |
5'1" |
| 1.3 — Weight |
103 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
| 2.3 — Left Eye Color - Text Description |
greenish w brown centers, w flecks |
| 2.4 — Right Eye Color - Text Description |
same |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
reddish brown with golden highlights |
| 3.3 — Comments |
Natural hair color. Very late greying (only a few grey hairs at 48). Rest of my female relatives turned grey in their 30s. |
| 1.4 — Handedness |
Right |
