|
PGP Participant Survey
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Responses submitted 7/16/2011 14:54:45.
Show responses
|
| Timestamp |
7/16/2011 14:54:45 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I had no risk factors for a coronary disease, however, out of nowhere, in August 2009, I discovered that I had 6 blockages in the 3 main arteries going to the heart. As a result, I had to have a triple bypass operation. It was totally successful and I am fine now. the doctors were extremely surprised to see that and could only say that it must be genetic since my mother had heart disease. |
| Disease/trait: Onset |
After 60 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Very severe disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
Asian |
| Maternal grandmother: Country of origin |
India |
| Paternal grandmother: Country of origin |
India |
| Paternal grandfather: Country of origin |
India |
| Maternal grandfather: Country of origin |
India |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
0 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Participant Survey
|
Responses submitted 3/9/2012 11:16:21.
Show responses
|
| Timestamp |
3/9/2012 11:16:21 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Disease/trait: Onset |
After 60 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Very severe disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
Asian |
| Maternal grandmother: Country of origin |
India |
| Paternal grandmother: Country of origin |
India |
| Paternal grandfather: Country of origin |
India |
| Maternal grandfather: Country of origin |
India |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
