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PGP Participant Survey
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Responses submitted 7/16/2011 20:19:50.
Show responses
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| Timestamp |
7/16/2011 20:19:50 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Allergic Asthma (using for remaining questions)
hay fever, food allergies, eczema |
| Disease/trait: Onset |
Before 10 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
5 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 7/14/2012 17:06:04.
Show responses
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| Timestamp |
7/14/2012 17:06:04 |
| Year of birth |
70-79 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Ireland |
| Paternal grandmother: Country of origin |
Ireland |
| Paternal grandfather: Country of origin |
Ireland |
| Maternal grandfather: Country of origin |
Ireland |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
5 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/12/2012 17:29:29.
Show responses
|
| Timestamp |
10/12/2012 17:29:29 |
| Have you ever been diagnosed with one of the following conditions? |
Non-melanoma skin cancer, Lipoma, Uterine fibroids |
| Other condition not listed here? |
complex ovarian cyst |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/12/2012 17:30:27.
Show responses
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| Timestamp |
10/12/2012 17:30:27 |
| Have you ever been diagnosed with any of the following conditions? |
Hypothyroidism |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/12/2012 17:31:13.
Show responses
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| Timestamp |
10/12/2012 17:31:13 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 10/12/2012 17:32:04.
Show responses
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| Timestamp |
10/12/2012 17:32:04 |
| Have you ever been diagnosed with one of the following conditions? |
Restless legs syndrome |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/12/2012 17:38:51.
Show responses
|
| Timestamp |
10/12/2012 17:38:51 |
| Have you ever been diagnosed with one of the following conditions? |
Glaucoma, Age-related cataract, Traumatic cataract, Myopia (Nearsightedness), Astigmatism, Presbyopia, Floaters, Tinnitus |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 10/12/2012 17:40:28.
Show responses
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| Timestamp |
10/12/2012 17:40:28 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 10/12/2012 17:41:02.
Show responses
|
| Timestamp |
10/12/2012 17:41:02 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis, Asthma |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/12/2012 17:41:54.
Show responses
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| Timestamp |
10/12/2012 17:41:54 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Barrett's esophagus, Peptic ulcer (stomach or duodenum), Hiatal hernia, Diverticulosis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/12/2012 17:42:44.
Show responses
|
| Timestamp |
10/12/2012 17:42:44 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI), Ovarian cysts |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/12/2012 17:43:33.
Show responses
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| Timestamp |
10/12/2012 17:43:33 |
| Have you ever been diagnosed with any of the following conditions? |
Eczema, Allergic contact dermatitis, Skin tags |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/12/2012 17:44:22.
Show responses
|
| Timestamp |
10/12/2012 17:44:22 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Frozen shoulder, Tennis elbow, Flatfeet |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/12/2012 17:45:12.
Show responses
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| Timestamp |
10/12/2012 17:45:12 |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 8/29/2015 20:24:55.
Show responses
|
| Timestamp |
8/29/2015 20:24:55 |
| 1.1 — Blood Type |
Don't know |
| 1.2 — Height |
5'1" |
| 1.3 — Weight |
157 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
6 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.3 — Left Eye Color - Text Description |
blue |
| 2.4 — Right Eye Color - Text Description |
can't tell, severely scarred |
| 2.5 —Comments |
My eye color is quite different from at birth (was a light blue). I have had several eye infections and the drugs have changed the color of my iris in both eyes. Also I have scar tissue on both eyes, although the right eye is heavily scarred because of multiple corneal transplants. |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
brown with some gray |
| 3.3 — Comments |
I was born with very blond hair (a towhead) and as I grew older my color changed gradually. |
| 1.4 — Handedness |
Right |
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PGP Participant Survey
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Responses submitted 7/2/2017 12:23:01.
Show responses
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| Timestamp |
7/2/2017 12:23:01 |
| Year of birth |
1941 |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Month of birth |
July |
| Anatomical sex at birth |
Female |
| Maternal grandmother: Race/ethnicity |
White |
| Maternal grandfather: Race/ethnicity |
White |
| Paternal grandmother: Race/ethnicity |
White |
| Paternal grandfather: Race/ethnicity |
White |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 7/2/2017 12:33:44.
Show responses
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| Timestamp |
7/2/2017 12:33:44 |
| 1.1 — Blood Type |
Don't know |
| 1.2 — Height |
5'1" |
| 1.3 — Weight |
157 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.3 — Left Eye Color - Text Description |
blue |
| 2.4 — Right Eye Color - Text Description |
blue |
| 2.5 —Comments |
yes, due to medications I have used (eye drops for herpes infections and glaucoma) both eyes have darkened considerably. Only my aunt on my mothers side has also had HSV in one eye. My mother had green eyes, father blue. |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
brown with some gray |
| 3.3 — Comments |
I was born with very blond hair, mother described at "tow Head" |
| 1.4 — Handedness |
Right |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 7/2/2017 12:34:48.
Show responses
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| Timestamp |
7/2/2017 12:34:48 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 7/2/2017 12:36:08.
Show responses
|
| Timestamp |
7/2/2017 12:36:08 |
| Have you ever been diagnosed with any of the following conditions? |
Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Barrett's esophagus, Peptic ulcer (stomach or duodenum), Hiatal hernia, Diverticulosis |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 7/2/2017 12:37:02.
Show responses
|
| Timestamp |
7/2/2017 12:37:02 |
| Have you ever been diagnosed with any of the following conditions? |
Hypothyroidism, High cholesterol (hypercholesterolemia) |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 7/2/2017 12:38:03.
Show responses
|
| Timestamp |
7/2/2017 12:38:03 |
| Have you ever been diagnosed with one of the following conditions? |
Non-melanoma skin cancer, Lipoma, Uterine fibroids |
