PGP Participant Survey
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Responses submitted 10/24/2012 21:11:14.
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Timestamp |
10/24/2012 21:11:14 |
Year of birth |
40-49 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Hughes Syndrome (antiphospholipid syndrome) My mom had multiple sclerosis. I strongly believe the two are genetically linked. |
Disease/trait: Onset |
20-29 years of age |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
No |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
No |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
No |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, and I do not plan to |
Blood sample |
No |
Saliva sample |
Yes |
Microbiome samples |
No |
Tissue samples from surgery |
No |
Tissue samples from autopsy |
Yes |
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/24/2012 21:12:48.
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Timestamp |
10/24/2012 21:12:48 |
Other condition not listed here? |
Hughes Syndrome |
PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/24/2012 21:15:20.
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Timestamp |
10/24/2012 21:15:20 |
Have you ever been diagnosed with one of the following conditions? |
Hyperopia (Farsightedness) |
PGP Basic Phenotypes Survey 2015
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Responses submitted 8/31/2015 19:14:58.
Show responses
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Timestamp |
8/31/2015 19:14:58 |
1.1 — Blood Type |
A + |
1.2 — Height |
5'8" |
1.3 — Weight |
165 |
2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
2 |
2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
2 |
2.3 — Left Eye Color - Text Description |
blue |
2.4 — Right Eye Color - Text Description |
blue |
2.5 —Comments |
eye color is same as always |
3.1 — What is your natural hair color currently, when without artificial color or dye? |
blonde |
3.2 — Hair Color - Text Description |
light blonde |
3.3 — Comments |
I had curly hair when I was a toddler. Now it's straight and has a very fine composition. |
1.4 — Handedness |
Right |