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PGP Participant Survey
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Responses submitted 7/19/2011 20:25:16.
Show responses
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| Timestamp |
7/19/2011 20:25:16 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Hypercholesterolemia |
| Disease/trait: Onset |
20-29 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
cholesterol, if untreated, is 438 accumulative |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Other / don't know / no response |
| Paternal grandmother: Country of origin |
Austria |
| Paternal grandfather: Country of origin |
Greece |
| Maternal grandfather: Country of origin |
Other / don't know / no response |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
2 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 4/24/2012 9:55:22.
Show responses
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| Timestamp |
4/24/2012 9:55:22 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
familial hypercholesterolemia |
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Very severe disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Lab results showing my cholesterol to be 438 |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Other / don't know / no response |
| Paternal grandmother: Country of origin |
Austria |
| Paternal grandfather: Country of origin |
Greece |
| Maternal grandfather: Country of origin |
Other / don't know / no response |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
2 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 11/4/2014 17:33:54.
Show responses
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| Timestamp |
11/4/2014 17:33:54 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 11/4/2014 17:34:56.
Show responses
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| Timestamp |
11/4/2014 17:34:56 |
| Have you ever been diagnosed with any of the following conditions? |
High cholesterol (hypercholesterolemia) |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 11/4/2014 17:35:33.
Show responses
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| Timestamp |
11/4/2014 17:35:33 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 11/4/2014 17:36:13.
Show responses
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| Timestamp |
11/4/2014 17:36:13 |
| Have you ever been diagnosed with one of the following conditions? |
Restless legs syndrome |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 11/4/2014 17:37:04.
Show responses
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| Timestamp |
11/4/2014 17:37:04 |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 11/4/2014 17:38:03.
Show responses
|
| Timestamp |
11/4/2014 17:38:03 |
| Have you ever been diagnosed with one of the following conditions? |
Premature ventricular contractions, Hemorrhoids |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 11/4/2014 17:38:34.
Show responses
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| Timestamp |
11/4/2014 17:38:34 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 11/4/2014 17:39:19.
Show responses
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| Timestamp |
11/4/2014 17:39:19 |
| Have you ever been diagnosed with any of the following conditions? |
Temporomandibular joint (TMJ) disorder, Gastroesophageal reflux disease (GERD) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 11/4/2014 17:40:14.
Show responses
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| Timestamp |
11/4/2014 17:40:14 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 11/4/2014 17:48:27.
Show responses
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| Timestamp |
11/4/2014 17:48:27 |
| Other condition not listed here? |
Granuloma Annulare |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 11/4/2014 17:49:23.
Show responses
|
| Timestamp |
11/4/2014 17:49:23 |
| Have you ever been diagnosed with any of the following conditions? |
Rotator cuff tear, Tennis elbow, Plantar fasciitis |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 11/4/2014 17:53:33.
Show responses
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| Timestamp |
11/4/2014 17:53:33 |
| Other condition not listed here? |
Kidney cyct |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 11/4/2014 17:57:24.
Show responses
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| Timestamp |
11/4/2014 17:57:24 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 11/4/2014 17:58:03.
Show responses
|
| Timestamp |
11/4/2014 17:58:03 |
| Have you ever been diagnosed with any of the following conditions? |
Rotator cuff tear, Tennis elbow, Plantar fasciitis |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 2/16/2016 18:00:22.
Show responses
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| Timestamp |
2/16/2016 18:00:22 |
| Have you ever been diagnosed with one of the following conditions? |
Age-related macular degeneration |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 2/16/2016 18:17:01.
Show responses
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| Timestamp |
2/16/2016 18:17:01 |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 2/16/2016 18:17:49.
Show responses
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| Timestamp |
2/16/2016 18:17:49 |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 2/16/2016 18:34:32.
Show responses
|
| Timestamp |
2/16/2016 18:34:32 |
| 1.1 — Blood Type |
A + |
| 1.2 — Height |
5'6" |
| 1.3 — Weight |
202 |
| 1.4 — Comments |
I shoot pool left handed. I don't know why. It is the only thing I do left handed. I am pretty good at it too! |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.3 — Left Eye Color - Text Description |
brown around the pupil with a green ring on the outside |
| 2.4 — Right Eye Color - Text Description |
same |
| 2.5 —Comments |
I have six siblings. They all have beautiful blue eyes. I am the only one with brown eyes. |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
Brown hair. It turns very light brown in the summer. |
| 3.3 — Comments |
Very thin hair shaft. Very straight. Extremely soft to the touch. |
| 1.4 — Handedness |
Right |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 2/16/2016 18:35:08.
Show responses
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| Timestamp |
2/16/2016 18:35:08 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/16/2016 18:36:00.
Show responses
|
| Timestamp |
2/16/2016 18:36:00 |
| Have you ever been diagnosed with any of the following conditions? |
Rotator cuff tear, Tennis elbow, Achilles tendonitis, Plantar fasciitis |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/16/2016 18:36:47.
Show responses
|
| Timestamp |
2/16/2016 18:36:47 |
| Have you ever been diagnosed with any of the following conditions? |
High cholesterol (hypercholesterolemia) |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/16/2016 18:37:36.
Show responses
|
| Timestamp |
2/16/2016 18:37:36 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 2/16/2016 18:38:28.
Show responses
|
| Timestamp |
2/16/2016 18:38:28 |
| Have you ever been diagnosed with one of the following conditions? |
Restless legs syndrome |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 2/16/2016 18:39:09.
Show responses
|
| Timestamp |
2/16/2016 18:39:09 |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 2/16/2016 18:40:24.
Show responses
|
| Timestamp |
2/16/2016 18:40:24 |
| Have you ever been diagnosed with one of the following conditions? |
Angina, Premature ventricular contractions, Varicose veins, Hemorrhoids |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 2/16/2016 18:40:48.
Show responses
|
| Timestamp |
2/16/2016 18:40:48 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/16/2016 18:41:34.
Show responses
|
| Timestamp |
2/16/2016 18:41:34 |
| Have you ever been diagnosed with any of the following conditions? |
Temporomandibular joint (TMJ) disorder, Gastroesophageal reflux disease (GERD) |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 4/24/2017 17:09:00.
Show responses
|
| Timestamp |
4/24/2017 17:09:00 |
| 1.1 — Blood Type |
A + |
| 1.2 — Height |
5'6" |
| 1.3 — Weight |
200 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
14 |
| 2.3 — Left Eye Color - Text Description |
hazel |
| 2.4 — Right Eye Color - Text Description |
hazel |
| 2.5 —Comments |
All six of my siblings have blue eyes. I am the only hazel. Same parents for all of us. |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
Light or golden brown |
| 3.3 — Comments |
Hair is very fine. Finest strands ever! |
| 1.4 — Handedness |
Right |
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PGP Participant Survey
|
Responses submitted 3/19/2018 13:38:11.
Show responses
|
| Timestamp |
3/19/2018 13:38:11 |
| Year of birth |
1965 |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Hypercholesterolemia
ADHD
|
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
Austria |
| Paternal grandfather: Country of origin |
Greece |
| Maternal grandfather: Country of origin |
United States |
| Month of birth |
February |
| Anatomical sex at birth |
Female |
| Maternal grandmother: Race/ethnicity |
White |
| Maternal grandfather: Race/ethnicity |
White |
| Paternal grandmother: Race/ethnicity |
White |
| Paternal grandfather: Race/ethnicity |
White |
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Harvard PGP: COVID-19 Demographics Survey
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Responses submitted 4/17/2020 0:43:45.
Show responses
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| Timestamp |
4/17/2020 0:43:45 |
| What is the zip code of your primary residence? |
78161 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
55 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Live with roommate(s) |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
Yes |
| Do you currently smoke tobacco products? |
No |
| What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
Don't currently smoke |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Retired |
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Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 6/9/2020 15:18:58.
Show responses
|
| Timestamp |
6/9/2020 15:18:58 |
| What is the zip code of your primary residence? |
78161 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
55 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Live alone |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
Yes |
| Do you currently smoke tobacco products? |
No |
| What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
Don't currently smoke |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Retired |
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Harvard PGP COVID-19 Health Assessment [Ongoing]
|
Responses submitted 6/12/2020 14:37:29.
Show responses
|
| Timestamp |
6/12/2020 14:37:29 |
| Are you currently ill with a cold or flu-like illness? |
No |
| Currently are you experiencing ANY of the above list of symptoms? |
No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? |
No |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
