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PGP Participant Survey
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Responses submitted 7/16/2011 21:09:07.
Show responses
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| Timestamp |
7/16/2011 21:09:07 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I have had two episodes (for three years starting at age 13, and an ongoing episode beginning at age 23) of severe depression. Other family members have been diagnosed with or have exhibited clear symptoms of the disease. |
| Disease/trait: Onset |
10-19 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Very severe disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I would be willing to make a psychiatric evaluation and a medication history available on my public profile. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Fall/Winter 2011 Saliva Kit: Large Tube Collection Survey
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Responses submitted 10/19/2011 21:03:21.
Show responses
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| Timestamp |
10/19/2011 21:03:21 |
| Which sample tube did you just collect? |
Big tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in 5 to 10 minutes) |
| What time of day did you collect saliva? |
Very first thing in the morning, right after waking & before eating or drinking anything |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
6 - 12 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
No, no eating between last brushing and collection |
| When was the last time you used mouthwash? |
6-12 hours before collection |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
No, no eating between last usage of mouthwash and collection |
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PGP Fall/Winter 2011 Saliva Kit: Small Tube Collection Survey
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Responses submitted 10/19/2011 21:07:07.
Show responses
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| Timestamp |
10/19/2011 21:07:07 |
| Which sample tube did you just collect? |
Small tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in less than 5 minutes) |
| What time of day did you collect saliva? |
Very first thing in the morning, right after waking & before eating or drinking anything |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
6 - 12 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
No, no eating between last brushing and collection |
| When was the last time you used mouthwash? |
6-12 hours before collection |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
No, no eating between last usage of mouthwash and collection |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 11/16/2012 23:05:25.
Show responses
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| Timestamp |
11/16/2012 23:05:25 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 11/16/2012 23:06:01.
Show responses
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| Timestamp |
11/16/2012 23:06:01 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 11/16/2012 23:06:36.
Show responses
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| Timestamp |
11/16/2012 23:06:36 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 11/16/2012 23:07:11.
Show responses
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| Timestamp |
11/16/2012 23:07:11 |
| Have you ever been diagnosed with one of the following conditions? |
Arnold-Chiari malformation |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 11/16/2012 23:07:38.
Show responses
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| Timestamp |
11/16/2012 23:07:38 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 11/16/2012 23:08:05.
Show responses
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| Timestamp |
11/16/2012 23:08:05 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 11/16/2012 23:08:18.
Show responses
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| Timestamp |
11/16/2012 23:08:18 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 11/16/2012 23:08:46.
Show responses
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| Timestamp |
11/16/2012 23:08:46 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 11/16/2012 23:09:20.
Show responses
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| Timestamp |
11/16/2012 23:09:20 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI) |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 11/16/2012 23:09:42.
Show responses
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| Timestamp |
11/16/2012 23:09:42 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 11/16/2012 23:10:04.
Show responses
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| Timestamp |
11/16/2012 23:10:04 |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 11/16/2012 23:10:34.
Show responses
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| Timestamp |
11/16/2012 23:10:34 |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 10/14/2016 17:02:47.
Show responses
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| Timestamp |
10/14/2016 17:02:47 |
| 1.1 — Blood Type |
A + |
| 1.2 — Height |
5'8" |
| 1.3 — Weight |
155 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.3 — Left Eye Color - Text Description |
blue |
| 2.4 — Right Eye Color - Text Description |
same |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
blonde |
| 1.4 — Handedness |
Right |
