|
PGP Participant Survey
|
Responses submitted 7/26/2011 19:23:05.
Show responses
|
| Timestamp |
7/26/2011 19:23:05 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
1 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
0 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
No |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Participant Survey
|
Responses submitted 12/28/2011 15:55:52.
Show responses
|
| Timestamp |
12/28/2011 15:55:52 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I have Rheumatoid arthritis since the age of 13. I know that my cousin has had it since birth, and a great uncle had it as well. (all on my mothers side)
I also have wide hips (for a man) that I believe is a combination of my Dad's broadly built frame and my Mother's more average frame. |
| Disease/trait: Onset |
10-19 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
1 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
0 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 10/16/2012 20:24:44.
Show responses
|
| Timestamp |
10/16/2012 20:24:44 |
|
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
|
Responses submitted 10/16/2012 20:26:44.
Show responses
|
| Timestamp |
10/16/2012 20:26:44 |
| Have you ever been diagnosed with any of the following conditions? |
Gout |
| Other condition not listed here? |
Rheumatoid Arthritis |
|
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 10/16/2012 20:28:12.
Show responses
|
| Timestamp |
10/16/2012 20:28:12 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia, Idiopathic thrombocytopenic purpura (ITP) |
|
PGP Trait & Disease Survey 2012: Nervous System
|
Responses submitted 10/16/2012 20:28:46.
Show responses
|
| Timestamp |
10/16/2012 20:28:46 |
|
PGP Trait & Disease Survey 2012: Vision and hearing
|
Responses submitted 10/16/2012 20:30:20.
Show responses
|
| Timestamp |
10/16/2012 20:30:20 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Dry eye syndrome |
| Other condition not listed here? |
Uveitis |
|
PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 10/16/2012 20:31:25.
Show responses
|
| Timestamp |
10/16/2012 20:31:25 |
| Have you ever been diagnosed with one of the following conditions? |
Hemorrhoids, Varicocele |
|
PGP Trait & Disease Survey 2012: Respiratory System
|
Responses submitted 10/16/2012 20:32:07.
Show responses
|
| Timestamp |
10/16/2012 20:32:07 |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 10/16/2012 20:32:53.
Show responses
|
| Timestamp |
10/16/2012 20:32:53 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Canker sores (oral ulcers), Inguinal hernia, Irritable bowel syndrome (IBS) |
|
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 10/16/2012 20:34:25.
Show responses
|
| Timestamp |
10/16/2012 20:34:25 |
|
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
|
Responses submitted 10/16/2012 20:36:34.
Show responses
|
| Timestamp |
10/16/2012 20:36:34 |
| Have you ever been diagnosed with any of the following conditions? |
Dandruff, Eczema, Skin tags |
| Other condition not listed here? |
Hypohidrosis |
|
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 10/16/2012 20:39:49.
Show responses
|
| Timestamp |
10/16/2012 20:39:49 |
| Have you ever been diagnosed with any of the following conditions? |
Rheumatoid arthritis, Tennis elbow, Plantar fasciitis, Scoliosis |
| Other condition not listed here? |
Winging Scapula |
|
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 10/16/2012 20:40:23.
Show responses
|
| Timestamp |
10/16/2012 20:40:23 |
|
PGP Basic Phenotypes Survey 2015
|
Responses submitted 8/1/2017 21:34:03.
Show responses
|
| Timestamp |
8/1/2017 21:34:03 |
| 1.1 — Blood Type |
A + |
| 1.2 — Height |
6'1" |
| 1.3 — Weight |
194 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
3 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
3 |
| 2.3 — Left Eye Color - Text Description |
Blue |
| 2.4 — Right Eye Color - Text Description |
same |
| 2.5 —Comments |
My aunt has magular degeneration. I was tested on the Farnsworth-Munsell 100 HueColor Vision Test and received 100%. |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
Brown |
| 3.3 — Comments |
I had blonde hair as a child. I also occasionally have red beard hairs. |
| 1.4 — Handedness |
Right |
