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PGP Participant Survey
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Responses submitted 7/26/2011 20:29:14.
Show responses
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| Timestamp |
7/26/2011 20:29:14 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United Kingdom |
| Paternal grandmother: Country of origin |
United Kingdom |
| Paternal grandfather: Country of origin |
Poland |
| Maternal grandfather: Country of origin |
United Kingdom |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 11/23/2011 13:01:55.
Show responses
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| Timestamp |
11/23/2011 13:01:55 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Rare trait -- a profound impairment in episodic memory despite being in top 1% on IQ, having above average working memory, and superior semantic memory for book learning and technical data. Often after a few years I will have a complete absence of recall of having gone on a vacation, no recollection of having visited a country or met up with friends, and can't recall even after seeing photographs with myself in them or being told of the trip. Also significant visual prosopagnosia, e.g. difficulty recognizing my father in crowded train station. No history of trauma or brain injury. |
| Disease/trait: Onset |
Before 10 years of age |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Not applicable |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Not applicable |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United Kingdom |
| Paternal grandmother: Country of origin |
United Kingdom |
| Paternal grandfather: Country of origin |
Poland |
| Maternal grandfather: Country of origin |
United Kingdom |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 9/18/2014 17:38:33.
Show responses
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| Timestamp |
9/18/2014 17:38:33 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 9/18/2014 18:30:57.
Show responses
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| Timestamp |
9/18/2014 18:30:57 |
| Have you ever been diagnosed with any of the following conditions? |
Lactose intolerance |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 9/18/2014 18:31:25.
Show responses
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| Timestamp |
9/18/2014 18:31:25 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 9/18/2014 18:31:46.
Show responses
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| Timestamp |
9/18/2014 18:31:46 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 9/18/2014 18:32:41.
Show responses
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| Timestamp |
9/18/2014 18:32:41 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism, Floaters |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 9/18/2014 18:33:04.
Show responses
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| Timestamp |
9/18/2014 18:33:04 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 9/18/2014 18:33:29.
Show responses
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| Timestamp |
9/18/2014 18:33:29 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 9/18/2014 18:33:52.
Show responses
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| Timestamp |
9/18/2014 18:33:52 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 9/18/2014 18:34:05.
Show responses
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| Timestamp |
9/18/2014 18:34:05 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 9/18/2014 18:35:14.
Show responses
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| Timestamp |
9/18/2014 18:35:14 |
| Have you ever been diagnosed with any of the following conditions? |
Hair loss (includes female and male pattern baldness) |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 9/18/2014 18:36:11.
Show responses
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| Timestamp |
9/18/2014 18:36:11 |
| Have you ever been diagnosed with any of the following conditions? |
Sciatica |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 9/18/2014 18:36:28.
Show responses
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| Timestamp |
9/18/2014 18:36:28 |
