PGP Participant Survey
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Responses submitted 7/16/2011 12:41:48.
Show responses
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Timestamp |
7/16/2011 12:41:48 |
Year of birth |
21-29 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Celiac |
Disease/trait: Onset |
20-29 years of age |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
No |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
Yes |
Disease/trait: Documentation description |
I have had Celiac Blood Panel done and also an endoscopy with biopsy done on small intestine/jejunum. |
Sex/Gender |
Female |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
No |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, and I do not plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |