PGP Participant Survey
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Responses submitted 7/16/2011 11:46:01.
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Timestamp |
7/16/2011 11:46:01 |
Year of birth |
60-69 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
My family has been the subjects for a genetics study on ptosis by Harvard Children's Hospital. |
Disease/trait: Onset |
Congenital / present at birth |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Low severity disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
Yes |
Disease/trait: Documentation |
No |
Sex/Gender |
Female |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
Uploaded health records: Update status |
Yes |
Uploaded health records: Extensiveness |
3 |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/22/2015 15:30:58.
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Timestamp |
2/22/2015 15:30:58 |
Have you ever been diagnosed with one of the following conditions? |
Colon polyps, Uterine fibroids |
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/22/2015 15:32:50.
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Timestamp |
2/22/2015 15:32:50 |
Have you ever been diagnosed with any of the following conditions? |
Thyroid nodule(s), High cholesterol (hypercholesterolemia) |
PGP Trait & Disease Survey 2012: Blood
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Responses submitted 2/22/2015 15:33:58.
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Timestamp |
2/22/2015 15:33:58 |
Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 2/22/2015 15:35:14.
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Timestamp |
2/22/2015 15:35:14 |
PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 2/22/2015 15:36:37.
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Timestamp |
2/22/2015 15:36:37 |
Have you ever been diagnosed with one of the following conditions? |
Hyperopia (Farsightedness), Astigmatism, Strabismus, Congenital nystagmus |
PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 2/22/2015 15:38:28.
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Timestamp |
2/22/2015 15:38:28 |
Have you ever been diagnosed with one of the following conditions? |
Hypertension, Mitral valve prolapse |
PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 2/22/2015 15:39:11.
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Timestamp |
2/22/2015 15:39:11 |
Have you ever been diagnosed with any of the following conditions? |
Chronic tonsillitis |
PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/22/2015 15:40:29.
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Timestamp |
2/22/2015 15:40:29 |
Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Canker sores (oral ulcers) |
PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 2/22/2015 15:41:58.
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Timestamp |
2/22/2015 15:41:58 |
Have you ever been diagnosed with any of the following conditions? |
Kidney stones |
Other condition not listed here? |
Polycystic Kidney Desease |
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 2/22/2015 15:44:27.
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Timestamp |
2/22/2015 15:44:27 |
Have you ever been diagnosed with any of the following conditions? |
Dandruff, Skin tags |
Other condition not listed here? |
Seborrheic keratosis |
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/22/2015 15:45:54.
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Timestamp |
2/22/2015 15:45:54 |
Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Spinal stenosis, Bone spurs |
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 2/22/2015 15:48:25.
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Timestamp |
2/22/2015 15:48:25 |
Have you ever been diagnosed with any of the following conditions? |
Congenital heart defect, Polycystic kidney disease |
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 2/22/2015 15:52:58.
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Timestamp |
2/22/2015 15:52:58 |
Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Spinal stenosis |
PGP Basic Phenotypes Survey 2015
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Responses submitted 4/27/2017 0:01:04.
Show responses
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Timestamp |
4/27/2017 0:01:04 |
1.1 — Blood Type |
O + |
1.2 — Height |
5'3" |
1.3 — Weight |
177 |
2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
2.3 — Left Eye Color - Text Description |
green, golden, gray hazel with a darker ring |
2.4 — Right Eye Color - Text Description |
same |
2.5 —Comments |
It changes. |
3.1 — What is your natural hair color currently, when without artificial color or dye? |
blonde |
3.2 — Hair Color - Text Description |
dark blonde "dishwater" with some gray |
1.4 — Handedness |
Left |