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PGP Participant Survey
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Responses submitted 11/28/2012 11:25:34.
Show responses
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| Timestamp |
11/28/2012 11:25:34 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
UC/IBD (Ulcerative Colitis or Inflamitory Bowel Disease) |
| Disease/trait: Onset |
10-19 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Endoscopy results. |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
No |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 6/16/2014 14:21:05.
Show responses
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| Timestamp |
6/16/2014 14:21:05 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 6/16/2014 14:22:00.
Show responses
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| Timestamp |
6/16/2014 14:22:00 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 6/16/2014 14:22:48.
Show responses
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| Timestamp |
6/16/2014 14:22:48 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 6/16/2014 14:23:19.
Show responses
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| Timestamp |
6/16/2014 14:23:19 |
| Have you ever been diagnosed with one of the following conditions? |
Migraine without aura, Carpal tunnel syndrome |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 6/16/2014 14:24:00.
Show responses
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| Timestamp |
6/16/2014 14:24:00 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness) |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 6/16/2014 14:24:45.
Show responses
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| Timestamp |
6/16/2014 14:24:45 |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 6/16/2014 14:25:08.
Show responses
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| Timestamp |
6/16/2014 14:25:08 |
| Have you ever been diagnosed with any of the following conditions? |
Canker sores (oral ulcers), Crohn's disease, Ulcerative colitis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 6/16/2014 14:27:06.
Show responses
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| Timestamp |
6/16/2014 14:27:06 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 6/16/2014 14:27:23.
Show responses
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| Timestamp |
6/16/2014 14:27:23 |
| Have you ever been diagnosed with any of the following conditions? |
Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 6/16/2014 14:27:41.
Show responses
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| Timestamp |
6/16/2014 14:27:41 |
| Have you ever been diagnosed with any of the following conditions? |
Scoliosis |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 6/16/2014 14:27:54.
Show responses
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| Timestamp |
6/16/2014 14:27:54 |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 6/16/2014 14:46:21.
Show responses
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| Timestamp |
6/16/2014 14:46:21 |
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Harvard PGP: COVID-19 Demographics Survey
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Responses submitted 3/23/2020 18:57:42.
Show responses
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| Timestamp |
3/23/2020 18:57:42 |
| What is the zip code of your primary residence? |
10012 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
30 |
| What is your gender? |
Trans (MTF) |
| Select all the following that apply to your current living arrangements. |
Live with roommate(s) |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 1-39 hrs per week |
| Select the category that best describes your occupation. |
Computer and Mathematical |
| What is the zip code of your primary workplace/worksite? |
10012 |
| Do you have a secondary workplace/worksite where you work more than 30 days a year? |
No |
| If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
Yes |
