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Public Profile -- huDD3FEE

Public profile url: https://my.pgp-hms.org/profile/huDD3FEE

Personal Health Records

None added.

Samples

None available.

Uploaded data

None available.

Geographic Information

State:Illinois

Family Members Enrolled

None added.

Surveys

PGP Participant Survey Responses submitted 4/5/2012 9:51:10. Show responses
Timestamp 4/5/2012 9:51:10
Year of birth 21-29 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Kleine-Levin Syndrome (decreasing in severity with monitoring and medication per 'Disease/trait: Severity')
Disease/trait: Onset 10-19 years of age
Disease/trait: Rarity Very rare/uncommon
Disease/trait: Severity Low severity disease
Disease/trait: Relative enrollment No
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation No
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals Yes
Enrollment of parents Maybe
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? No
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, but I plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes

Absolute Pitch Survey [see all responses]

Can tell if notes are in tune: Yes
Can sing a melody on key: No
Can recognize musical intervals: Not sure
Do you have absolute pitch? No

Enrollment History

Participant ID:huDD3FEE
Account created:2012-03-20 13:58:07 UTC
Eligibility screening:2012-03-20 14:05:24 UTC (passed v2)
Exam:2012-03-20 14:35:33 UTC (passed v2)
Consent:2015-08-06 14:31:48 UTC (passed v20150505)
Enrolled:2012-04-04 18:04:11 UTC