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PGP Participant Survey
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Responses submitted 7/16/2011 13:25:07.
Show responses
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| Timestamp |
7/16/2011 13:25:07 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I have an autoimmune disease which was first diagnosed as Crohn's. It has manifested in other symptoms diagnosed as Sjogren's and Vitiligo both of which my sister also has.
My sister and I both have the HLA-B27 antigen, which i have been told is rare for caucausians, I have also been + for the rare RNP antigen which I've been told is indicative of Connective Tissue Disease, though it is not yet active (I was just tested last year and was negative, but told that it fluctuates when inactive).
When active, this disease is severe and often fatal. Right now, I am battling constant fibromyalgia-like pain and arthritic pain but am monitored. |
| Disease/trait: Onset |
20-29 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
Yes |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
Have some lab results from Kaiser for antigens (not latest -RNP result) also any Colonoscopy/pathology reports if needed for Crohn's diagnosis. Have additional records for abnormal Bravo pH study prior to Nissan Fundiplication surgery for GERD. Also, visit summary from a Rhuematology specialist post RNP+ (pre-vitaligo). Can obtain dermatology reports if necessary. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/29/2012 14:53:03.
Show responses
|
| Timestamp |
10/29/2012 14:53:03 |
| Have you ever been diagnosed with one of the following conditions? |
Lipoma, Breast fibroadenoma |
| Other condition not listed here? |
Hemorrhagic & Complex Ovarian cysts |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/29/2012 14:56:02.
Show responses
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| Timestamp |
10/29/2012 14:56:02 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
| Other condition not listed here? |
B12 Deficiency |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 10/29/2012 14:57:24.
Show responses
|
| Timestamp |
10/29/2012 14:57:24 |
| Have you ever been diagnosed with one of the following conditions? |
Chronic tension headaches (15+ days per month, at least 6 months), Migraine with aura, Migraine without aura, Other peripheral neuropathy |
| Other condition not listed here? |
Brainstem Migraine disorder |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/29/2012 14:58:36.
Show responses
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| Timestamp |
10/29/2012 14:58:36 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism, Dry eye syndrome |
| Other condition not listed here? |
Occular Migraines |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 10/29/2012 15:00:48.
Show responses
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| Timestamp |
10/29/2012 15:00:48 |
| Have you ever been diagnosed with one of the following conditions? |
Cardiac arrhythmia |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 10/29/2012 15:02:03.
Show responses
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| Timestamp |
10/29/2012 15:02:03 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis, Chronic bronchitis, Asthma, Chronic Obstructive Pulmonary Disease (COPD) |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/29/2012 15:03:03.
Show responses
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| Timestamp |
10/29/2012 15:03:03 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis, Temporomandibular joint (TMJ) disorder, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Hiatal hernia, Crohn's disease, Irritable bowel syndrome (IBS), Rectal prolapse |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/29/2012 15:03:47.
Show responses
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| Timestamp |
10/29/2012 15:03:47 |
| Have you ever been diagnosed with any of the following conditions? |
Fibrocystic breast disease, Ovarian cysts |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/29/2012 15:05:44.
Show responses
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| Timestamp |
10/29/2012 15:05:44 |
| Have you ever been diagnosed with any of the following conditions? |
Dandruff, Allergic contact dermatitis, Psoriasis, Keloids, Acne, Dermatographia |
| Other condition not listed here? |
UV Allergy |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/29/2012 15:08:19.
Show responses
|
| Timestamp |
10/29/2012 15:08:19 |
| Have you ever been diagnosed with any of the following conditions? |
Sjogren's syndrome (Sicca syndrome), Osteoarthritis, Chondromalacia patella (CMP), Spinal stenosis, Sciatica, Bone spurs, Bunions, Plantar fasciitis, Fibromyalgia |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 4/19/2013 15:36:09.
Show responses
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| Timestamp |
4/19/2013 15:36:09 |
| Other condition not listed here? |
Vitamin B12 Deficiency w/o anemia |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 4/19/2013 15:40:25.
Show responses
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| Timestamp |
4/19/2013 15:40:25 |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 5/9/2017 1:30:28.
Show responses
|
| Timestamp |
5/9/2017 1:30:28 |
| Have you ever been diagnosed with one of the following conditions? |
Lipoma, Uterine fibroids |
| Other condition not listed here? |
Fibrocystic Breast Disease; Back Mice (both sides) |
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PGP Participant Survey
|
Responses submitted 5/9/2017 1:39:00.
Show responses
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| Timestamp |
5/9/2017 1:39:00 |
| Year of birth |
1970 |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Month of birth |
February |
| Anatomical sex at birth |
Female |
| Maternal grandmother: Race/ethnicity |
White |
| Maternal grandfather: Race/ethnicity |
White |
| Paternal grandmother: Race/ethnicity |
White |
| Paternal grandfather: Race/ethnicity |
White |
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Harvard PGP: COVID-19 Demographics Survey
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Responses submitted 3/23/2020 18:53:05.
Show responses
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| Timestamp |
3/23/2020 18:53:05 |
| What is the zip code of your primary residence? |
94523 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
50 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Live with Daughter age 22 |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
Yes |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
Yes |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
Unknown |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
Yes |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
Yes |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
Yes |
| Do you currently smoke tobacco products? |
No |
| What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
Don't currently smoke |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
I have been using a CBD vape pen sporadically(rarely) for few years |
| Which one of the following best describes your employment status for the past 3 months? |
Not employed: Looking for work |
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Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020
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Responses submitted 3/23/2020 18:57:59.
Show responses
|
| Timestamp |
3/23/2020 18:57:59 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
Unknown |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
Unknown |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
Unknown |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
Unknown |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Are you currently experiencing any of the following symptoms? [Headache] |
No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
| Are you currently experiencing any of the following symptoms? [Cough] |
Unknown |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] |
Unknown |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
Yes |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
Yes |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
| Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
Yes |
| Are you currently experiencing any of the following symptoms? [Running nose] |
Yes |
| Are you currently experiencing any of the following symptoms? [Sore throat] |
Yes |
| Are you currently experiencing any of the following symptoms? [Nausea] |
No |
| Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
Yes |
| Are you currently experiencing any of the following symptoms? [Diarrhea] |
Yes |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
Not to my knowledge |
|
Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 4/6/2020 14:00:59.
Show responses
|
| Timestamp |
4/6/2020 14:00:59 |
| What is the zip code of your primary residence? |
94523 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
50 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Other, live with adult child, age 22 |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
Yes |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
Yes |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
Unknown |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
Yes |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
Yes |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
Yes |
| Do you currently smoke tobacco products? |
No |
| What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
10-14 |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Not employed: Looking for work |
|
Harvard PGP: COVID-19 Health Assessment for Week of 5 April - 11 April 2020
|
Responses submitted 4/6/2020 14:28:54.
Show responses
|
| Timestamp |
4/6/2020 14:28:54 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
Yes |
| Currently are you experiencing ANY of the above list of symptoms? |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Feeling cold, chills or shivers] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Aches all over the body] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Cough] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Rapid breathing] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Shortness of breath] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Wheezing or chest tightness] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Persistent pain or pressure in the chest] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Bluish lips or face] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Dizziness] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Confusion or inability to arouse] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Running nose] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Sore throat] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Nausea] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Vomiting] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Abdominal Pain] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Diarrhea] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Pink eye (conjunctivitis)] |
No |
| Indicate which of the following symptoms you are currently experiencing. [Loss of sense of smell] |
Yes |
| Indicate which of the following symptoms you are currently experiencing. [Loss of sense of taste] |
Yes |
| In the past two weeks, have you experienced ANY of the above list of symptoms? |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| In the past 2 weeks, which symptoms have you experienced. [Feeling cold, chills or shivers] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Headache] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Aches all over the body] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Cough] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Rapid breathing] |
No |
| In the past 2 weeks, which symptoms have you experienced. [Shortness of breath] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Wheezing or chest tightness] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Persistent pain or pressure in the chest] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Bluish lips or face] |
No |
| In the past 2 weeks, which symptoms have you experienced. [Dizziness] |
No |
| In the past 2 weeks, which symptoms have you experienced. [Confusion or inability to arouse] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Running nose] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Sore throat] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Nausea] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Vomiting] |
No |
| In the past 2 weeks, which symptoms have you experienced. [Abdominal pain] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Diarrhea] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Pink eye (conjunctivitis)] |
No |
| In the past 2 weeks, which symptoms have you experienced. [Loss of sense of smell] |
Yes |
| In the past 2 weeks, which symptoms have you experienced. [Loss of sense of taste] |
Yes |
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Feeling cold, chills or shivers] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Headache] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Aches all over the body] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Cough] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Rapid breathing] |
No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Shortness of breath] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Wheezing or chest tightness] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Persistent pain or pressure in the chest] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Bluish lips or face] |
No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Dizziness] |
No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Confusion or inability to arouse] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Running nose] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Sore throat] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Nausea] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Vomiting] |
No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Abdominal pain] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Diarrhea] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Pink eye (conjunctivitis)] |
No |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Loss of sense of smell] |
Yes |
| Since Jan 1, 2020, to the best of your recollection which symptoms have you experienced. [Loss of sense of taste] |
Yes |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications, I am allergic to all NSAIDS and Sulfa drugs |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
not that I know of for certain. I was in close contact with a person who developed symptoms a week after I met with her on 3/6/20, but I never heard if she was confirmed. |