|
PGP Participant Survey
|
Responses submitted 2/8/2012 21:56:36.
Show responses
|
| Timestamp |
2/8/2012 21:56:36 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Ulcerative Colitis |
| Disease/trait: Onset |
30-39 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
6 colonoscopies, biopsy reports, etc |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Russian Federation |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
0 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
1 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Participant Survey
|
Responses submitted 6/25/2012 19:52:31.
Show responses
|
| Timestamp |
6/25/2012 19:52:31 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Austria |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Half-siblings] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 11/9/2012 13:11:53.
Show responses
|
| Timestamp |
11/9/2012 13:11:53 |
|
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
|
Responses submitted 11/9/2012 13:12:24.
Show responses
|
| Timestamp |
11/9/2012 13:12:24 |
|
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 11/9/2012 13:12:41.
Show responses
|
| Timestamp |
11/9/2012 13:12:41 |
|
PGP Trait & Disease Survey 2012: Nervous System
|
Responses submitted 11/9/2012 13:13:17.
Show responses
|
| Timestamp |
11/9/2012 13:13:17 |
| Have you ever been diagnosed with one of the following conditions? |
Restless legs syndrome, Cluster headaches |
|
PGP Trait & Disease Survey 2012: Vision and hearing
|
Responses submitted 11/9/2012 13:13:40.
Show responses
|
| Timestamp |
11/9/2012 13:13:40 |
|
PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 11/9/2012 13:14:06.
Show responses
|
| Timestamp |
11/9/2012 13:14:06 |
| Have you ever been diagnosed with one of the following conditions? |
Hemorrhoids |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 11/9/2012 13:14:38.
Show responses
|
| Timestamp |
11/9/2012 13:14:38 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Temporomandibular joint (TMJ) disorder, Gastroesophageal reflux disease (GERD), Hiatal hernia, Ulcerative colitis, Irritable bowel syndrome (IBS) |
|
PGP Trait & Disease Survey 2012: Respiratory System
|
Responses submitted 11/9/2012 13:15:01.
Show responses
|
| Timestamp |
11/9/2012 13:15:01 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic sinusitis |
|
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 11/9/2012 13:15:21.
Show responses
|
| Timestamp |
11/9/2012 13:15:21 |
| Have you ever been diagnosed with any of the following conditions? |
Ovarian cysts |
|
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
|
Responses submitted 11/9/2012 13:15:44.
Show responses
|
| Timestamp |
11/9/2012 13:15:44 |
| Have you ever been diagnosed with any of the following conditions? |
Skin tags, Acne |
|
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 11/9/2012 13:16:30.
Show responses
|
| Timestamp |
11/9/2012 13:16:30 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Tennis elbow |
|
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 11/9/2012 13:17:02.
Show responses
|
| Timestamp |
11/9/2012 13:17:02 |