|
PGP Participant Survey
|
Responses submitted 7/16/2011 10:56:08.
Show responses
|
| Timestamp |
7/16/2011 10:56:08 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Gluten intolerance - I am unaware of anyone else in my family having this disorder. I do not have the known genetic profile for celiac however I have a profound intolerance that mimics celiac. I would guess that it is genetic but that the genetics are unknown.
Alzheimer's - I do not display symptoms, at this time my mother doesn't display symptoms, she is 67, her sister (my aunt has symptoms starting around 70). My grandmother had symptoms staring in 50s. She had 5 siblings that made it to adulthood, one sister had symptoms starting in her 50's, one had symptoms in his 70s, the other two did have symptoms that I know of. My aunt who has symptoms currently has 4 children, I do not know if they would be interested in PGP, but I would be willing to ask them.
High Cholesterol, not rare but probably genetic, my sister has it as does my mother. |
| Disease/trait: Onset |
20-29 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Canada |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
|
PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 3/2/2014 21:02:50.
Show responses
|
| Timestamp |
3/2/2014 21:02:50 |
|
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
|
Responses submitted 3/2/2014 21:04:17.
Show responses
|
| Timestamp |
3/2/2014 21:04:17 |
| Have you ever been diagnosed with any of the following conditions? |
Thyroid nodule(s), High cholesterol (hypercholesterolemia) |
|
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 3/2/2014 21:05:13.
Show responses
|
| Timestamp |
3/2/2014 21:05:13 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
|
PGP Trait & Disease Survey 2012: Nervous System
|
Responses submitted 3/2/2014 21:05:59.
Show responses
|
| Timestamp |
3/2/2014 21:05:59 |
|
PGP Trait & Disease Survey 2012: Vision and hearing
|
Responses submitted 3/2/2014 21:06:46.
Show responses
|
| Timestamp |
3/2/2014 21:06:46 |
|
PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 3/2/2014 21:08:04.
Show responses
|
| Timestamp |
3/2/2014 21:08:04 |
|
PGP Trait & Disease Survey 2012: Respiratory System
|
Responses submitted 3/2/2014 21:08:23.
Show responses
|
| Timestamp |
3/2/2014 21:08:23 |
|
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 3/2/2014 21:09:32.
Show responses
|
| Timestamp |
3/2/2014 21:09:32 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD) |
| Other condition not listed here? |
non celiac gluten intolerance, gastroparesis |
|
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 3/2/2014 21:10:04.
Show responses
|
| Timestamp |
3/2/2014 21:10:04 |
| Have you ever been diagnosed with any of the following conditions? |
Endometriosis, Ovarian cysts |
|
PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
|
Responses submitted 3/2/2014 21:10:28.
Show responses
|
| Timestamp |
3/2/2014 21:10:28 |
| Have you ever been diagnosed with any of the following conditions? |
Acne |
|
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 3/2/2014 21:11:46.
Show responses
|
| Timestamp |
3/2/2014 21:11:46 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Spinal stenosis, Sciatica, Tennis elbow, Bone spurs, Plantar fasciitis |
| Other condition not listed here? |
hallux rigidus |
|
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 3/2/2014 21:12:28.
Show responses
|
| Timestamp |
3/2/2014 21:12:28 |
|
PGP Basic Phenotypes Survey 2015
|
Responses submitted 9/1/2015 14:19:50.
Show responses
|
| Timestamp |
9/1/2015 14:19:50 |
| 1.1 — Blood Type |
A - |
| 1.2 — Height |
5'10" |
| 1.3 — Weight |
195 |
| 1.4 — Comments |
I write and eat with my left hand but use scissors with my right and use both equally for things like mousing on a computer. |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
13 |
| 2.3 — Left Eye Color - Text Description |
blue green |
| 2.4 — Right Eye Color - Text Description |
blue green |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
gray |
| 3.2 — Hair Color - Text Description |
Blonde grey white? Silver? |
| 3.3 — Comments |
Very blonde until I had my ovaries removed, then suddenly pretty darn white. Some silver coming in in my 30's |
| 1.4 — Handedness |
Left |
|
Harvard PGP: COVID-19 Demographics Survey
|
Responses submitted 3/24/2020 15:11:26.
Show responses
|
| Timestamp |
3/24/2020 15:11:26 |
| What is the zip code of your primary residence? |
80027 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
52 |
| What is your gender? |
Female |
| Select all the following that apply to your current living arrangements. |
Live with partner/spouse |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 1-39 hrs per week |
| Select the category that best describes your occupation. |
Computer and Mathematical |
| What is the zip code of your primary workplace/worksite? |
80303 |
| Do you have a secondary workplace/worksite where you work more than 30 days a year? |
Yes |
| What is the zip code of your secondary workplace/worksite (where you work more than 30 days a year)? |
80027 |
| If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
Maybe |
|
Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020
|
Responses submitted 3/24/2020 15:14:38.
Show responses
|
| Timestamp |
3/24/2020 15:14:38 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
Unknown |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Are you currently experiencing any of the following symptoms? [Headache] |
No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
| Are you currently experiencing any of the following symptoms? [Cough] |
Yes |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] |
No |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
| Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
No |
| Are you currently experiencing any of the following symptoms? [Running nose] |
No |
| Are you currently experiencing any of the following symptoms? [Sore throat] |
Yes |
| Are you currently experiencing any of the following symptoms? [Nausea] |
No |
| Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
No |
| Are you currently experiencing any of the following symptoms? [Diarrhea] |
Yes |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
Not that I'm aware of. |