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PGP Participant Survey
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Responses submitted 7/16/2011 11:50:43.
Show responses
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| Timestamp |
7/16/2011 11:50:43 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
MS diagnosed in 1990 as Chronic Progressive
Low blood formation also known as "pre-lukemia" diagnosed in 2009 |
| Disease/trait: Onset |
40-49 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
Yes |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
A series of MRIs every 2 years from diagnosis (do not have original test) to present.
Blood test results and cyto test (I will provide true name on request - I just cannot remember the correct name just now) |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Germany |
| Paternal grandmother: Country of origin |
Poland |
| Paternal grandfather: Country of origin |
Czech Republic |
| Maternal grandfather: Country of origin |
Germany |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Children] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |