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PGP Participant Survey
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Responses submitted 7/26/2011 19:15:06.
Show responses
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| Timestamp |
7/26/2011 19:15:06 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Blood variant where a1c cannot be tested it's called deerlodge. |
| Disease/trait: Onset |
50-59 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
Yes |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
testing that Veterans hospital did. |
| Sex/Gender |
Male |
| Race/ethnicity |
American Indian / Alaska Native, Hispanic or Latino |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Fall/Winter 2011 Saliva Kit: Large Tube Collection Survey
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Responses submitted 10/15/2011 16:49:12.
Show responses
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| Timestamp |
10/15/2011 16:49:12 |
| Which sample tube did you just collect? |
Big tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in less than 5 minutes) |
| What time of day did you collect saliva? |
Very first thing in the morning, right after waking & before eating or drinking anything |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
6 - 12 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
No, no eating between last brushing and collection |
| When was the last time you used mouthwash? |
Not applicable: I rarely or never use mouthwash |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
Not applicable: I rarely or never use mouthwash |
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PGP Fall/Winter 2011 Saliva Kit: Small Tube Collection Survey
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Responses submitted 10/15/2011 16:53:35.
Show responses
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| Timestamp |
10/15/2011 16:53:35 |
| Which sample tube did you just collect? |
Small tube |
| How easy was this sample tube to use for collection? |
5 |
| Do you have any gum bleeding or gingivitis (gum inflammation)? |
No |
| Did you collect this sample all at once, or at multiple timepoints? |
All at once (in 5 to 10 minutes) |
| What time of day did you collect saliva? |
Very first thing in the morning, right after waking & before eating or drinking anything |
| Did you chew gum shortly before collection? |
No, no gum shortly before collection |
| When was the last time you brushed and/or flossed? |
6 - 12 hours before collection |
| Did you eat anything between the last time you brushed and/or flossed and the saliva collection? |
No, no eating between last brushing and collection |
| When was the last time you used mouthwash? |
Not applicable: I rarely or never use mouthwash |
| Did you eat anything between the last time you used mouthwash and the saliva collection? |
Not applicable: I rarely or never use mouthwash |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 12/13/2012 16:10:35.
Show responses
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| Timestamp |
12/13/2012 16:10:35 |
| Have you ever been diagnosed with any of the following conditions? |
Diabetes mellitus, type 2 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 12/13/2012 16:12:37.
Show responses
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| Timestamp |
12/13/2012 16:12:37 |
| Have you ever been diagnosed with one of the following conditions? |
Age-related macular degeneration, Age-related cataract |
| Other condition not listed here? |
fuch |
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PGP Participant Survey
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Responses submitted 11/9/2013 22:23:02.
Show responses
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| Timestamp |
11/9/2013 22:23:02 |
| Year of birth |
1944 |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
BLOOD VERIANT CALLED DEERLODGE |
| Sex/Gender |
Male |
| Race/ethnicity |
American Indian / Alaska Native, Hispanic or Latino, White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Month of birth |
November |
| Anatomical sex at birth |
Male |
| Maternal grandmother: Race/ethnicity |
American Indian / Alaska Native |
| Maternal grandfather: Race/ethnicity |
White |
| Paternal grandmother: Race/ethnicity |
American Indian / Alaska Native, Hispanic or Latino, White |
| Paternal grandfather: Race/ethnicity |
Hispanic or Latino, White |