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PGP Participant Survey
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Responses submitted 1/25/2012 16:23:43.
Show responses
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| Timestamp |
1/25/2012 16:23:43 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Rare tumor, pleomorphic adenoma, right side, head/neck tumor; now, removed. Surgery undertaken in custom program designed in Germany, as US based solutions would have led to partial and permanent facial paralysis. |
| Disease/trait: Onset |
20-29 years of age |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
This would need to be organised, as the record exists across US, German, and Swiss health domains. Will review and update. |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, and I do not plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
No |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 12/16/2012 15:17:43.
Show responses
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| Timestamp |
12/16/2012 15:17:43 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 12/16/2012 15:18:17.
Show responses
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| Timestamp |
12/16/2012 15:18:17 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 12/16/2012 15:18:55.
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| Timestamp |
12/16/2012 15:18:55 |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 12/16/2012 15:19:44.
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| Timestamp |
12/16/2012 15:19:44 |
| Other condition not listed here? |
pleomorphic adenoma |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 12/16/2012 15:20:08.
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| Timestamp |
12/16/2012 15:20:08 |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 12/16/2012 15:20:57.
Show responses
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| Timestamp |
12/16/2012 15:20:57 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 12/16/2012 15:21:22.
Show responses
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| Timestamp |
12/16/2012 15:21:22 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic bronchitis, Asthma |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 12/16/2012 15:22:04.
Show responses
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| Timestamp |
12/16/2012 15:22:04 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Canker sores (oral ulcers) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 12/16/2012 15:22:49.
Show responses
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| Timestamp |
12/16/2012 15:22:49 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 12/16/2012 15:23:23.
Show responses
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| Timestamp |
12/16/2012 15:23:23 |
| Have you ever been diagnosed with any of the following conditions? |
Dandruff, Hair loss (includes female and male pattern baldness), Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 12/16/2012 15:24:15.
Show responses
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| Timestamp |
12/16/2012 15:24:15 |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 12/16/2012 15:24:45.
Show responses
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| Timestamp |
12/16/2012 15:24:45 |