Public Profile -- huAB8ED9
Public profile url: https://my.pgp-hms.org/profile/huAB8ED9
Personal Health Records
None added.Samples
None available.Uploaded data
None available.Geographic Information
| State: | Georgia |
| Zip code: | 30022 |
Family Members Enrolled
None added.Surveys
| PGP Participant Survey | Responses submitted 8/10/2012 17:31:48. Show responses |
|---|---|
| Timestamp | 8/10/2012 17:31:48 |
| Year of birth | 30-39 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | I have Bipolar Disorder which I believe is genetically rooted in the fact that mother and father are both alcoholics as well as my mother's father. Suicide is very high in my family. I also have Hashimoto's autoimmune which I believe is also related to my family's weight issues, GI disorders, ADHD, alzheimers, HELLP syndrome, and sensory processing issues. |
| Disease/trait: Onset | 20-29 years of age |
| Disease/trait: Rarity | Fairly common |
| Disease/trait: Severity | Moderate severity disease |
| Disease/trait: Relative enrollment | Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis | Yes |
| Disease/trait: Genetic confirmation | No |
| Disease/trait: Documentation | Yes |
| Disease/trait: Documentation description | I have years of lab testing, doctor's notes, and hospital stays. |
| Sex/Gender | Female |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | Other / don't know / no response |
| Paternal grandmother: Country of origin | Netherlands |
| Paternal grandfather: Country of origin | Netherlands |
| Maternal grandfather: Country of origin | United States |
| Enrollment of relatives | No |
| Enrollment of older individuals | Yes |
| Enrollment of parents | Yes |
| Have you uploaded genetic data to your PGP participant profile? | No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? | No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | No, but I plan to |
| Blood sample | Yes |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
| Harvard PGP: COVID-19 Demographics Survey | Responses submitted 3/24/2020 7:52:23. Show responses |
| Timestamp | 3/24/2020 7:52:23 |
| What is the zip code of your primary residence? | 30312 |
| Do have another residence where you spend more than 30 days a year? | No |
| What is your age (in years)? | 46 |
| What is your gender? | Female |
| Select all the following that apply to your current living arrangements. | Live with partner/spouse, Live with child/children under age 18 |
| What is your race? Pick all that apply. | White |
| What is your ethnicity? | Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. | None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] | No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] | No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] | No |
| Have you ever been diagnosed with any of the following? [Emphysema] | No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] | No |
| Have you ever been diagnosed with any of the following? [Pneumonia] | No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] | No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] | No |
| Have you ever smoked tobacco products? | No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? | No |
| Which one of the following best describes your employment status for the past 3 months? | Disabled/Not able to work |
| Harvard PGP: COVID-19 Health Assessment for Week of 29 March- 4 April 2020 | Responses submitted 3/30/2020 18:46:55. Show responses |
| Timestamp | 3/30/2020 18:46:55 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] | No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] | No |
| Are you currently experiencing any of the following symptoms? [Headache] | No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] | No |
| Are you currently experiencing any of the following symptoms? [Cough] | No |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] | No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] | No |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] | No |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] | No |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] | No |
| Are you currently experiencing any of the following symptoms? [Dizziness] | No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] | No |
| Are you currently experiencing any of the following symptoms? [Running nose] | No |
| Are you currently experiencing any of the following symptoms? [Sore throat] | No |
| Are you currently experiencing any of the following symptoms? [Nausea] | No |
| Are you currently experiencing any of the following symptoms? [Vomiting] | No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] | No |
| Are you currently experiencing any of the following symptoms? [Diarrhea] | No |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] | No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] | No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] | No |
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | Yes |
| How long ago was your contact with a person who has tested positive for coronavirus (COVID-19)? | Over 2 weeks |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | Yes |
| How long ago was your contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | Over 2 weeks |
| Harvard PGP: COVID-19 Health Assessment for Week of 5 April - 11 April 2020 | Responses submitted 4/7/2020 14:54:37. Show responses |
| Timestamp | 4/7/2020 14:54:37 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No |
| Currently are you experiencing ANY of the above list of symptoms? | No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No |
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? | No |
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | Yes |
| How long ago was your contact with a person who has tested positive for coronavirus (COVID-19)? | Over 2 weeks |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No |
| Harvard PGP COVID-19 Health Assessment Week 4: 12 April - 18 April 2020 | Responses submitted 4/14/2020 10:46:09. Show responses |
| Timestamp | 4/14/2020 10:46:09 |
| Are you currently ill with a cold or flu-like illness? | No |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | No |
| Currently are you experiencing ANY of the above list of symptoms? | No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No |
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? | No |
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No |
| Harvard PGP COVID-19 Health Assessment [Ongoing] | Responses submitted 6/12/2020 14:14:19. Show responses |
| Timestamp | 6/12/2020 14:14:19 |
| Are you currently ill with a cold or flu-like illness? | No |
| Currently are you experiencing ANY of the above list of symptoms? | No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? | No |
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No |
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: No
Can sing a melody on key: No
Can recognize musical intervals: No
Do you have absolute pitch? No
Enrollment History
| Participant ID: | huAB8ED9 |
| Account created: | 2012-05-06 23:03:48 UTC |
| Eligibility screening: | 2012-05-06 23:16:38 UTC (passed v2) |
| Exam: | 2012-05-07 00:09:01 UTC (passed v2) |
| Consent: | 2015-08-06 14:32:01 UTC (passed v20150505) |
| Enrolled: | 2012-05-09 14:57:38 UTC |