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PGP Participant Survey
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Responses submitted 7/16/2011 12:51:32.
Show responses
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| Timestamp |
7/16/2011 12:51:32 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I believe several traits are genetic in nature
1. "Blue rubber bleb nevus syndrom" connected to TEK tyrosine kinase mutation (http://en.wikipedia.org/wiki/Blue_rubber_bleb_nevus_syndrome)
2. Narcolepsy and "Delayed sleep phase syndrome"
There are a few more but I believe these two are the easiest to focus on. |
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives and they are already enrolled |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I have a letter from the oncologist at OCB (Ophthalmic Consultants of Boston) to my PCP describing this condition (BRBNS) |
| Sex/Gender |
No response |
| Race/ethnicity |
No response |
| Maternal grandmother: Country of origin |
Ukraine |
| Paternal grandmother: Country of origin |
Latvia |
| Paternal grandfather: Country of origin |
Belarus |
| Maternal grandfather: Country of origin |
Ukraine |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Yes |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
2 or more |
| Enrolled relatives [Siblings / Fraternal twins] |
0 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
5 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 12/4/2012 2:59:48.
Show responses
|
| Timestamp |
12/4/2012 2:59:48 |
| Year of birth |
40-49 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
blue rubber nevus
narcolepsy
|
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Very rare/uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I have a letter from oncologist to my PCP describing this condition. |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Ukraine |
| Paternal grandmother: Country of origin |
Latvia |
| Paternal grandfather: Country of origin |
Belarus |
| Maternal grandfather: Country of origin |
Ukraine |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Yes |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
2 or more |
| Enrolled relatives [Siblings / Fraternal twins] |
0 |
| Enrolled relatives [Children] |
0 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 12/4/2012 3:01:56.
Show responses
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| Timestamp |
12/4/2012 3:01:56 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 12/4/2012 3:03:04.
Show responses
|
| Timestamp |
12/4/2012 3:03:04 |
| Have you ever been diagnosed with one of the following conditions? |
Central serous retinopathy, Myopia (Nearsightedness), Astigmatism |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 12/4/2012 3:04:31.
Show responses
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| Timestamp |
12/4/2012 3:04:31 |
| Other condition not listed here? |
blue rubber nevus |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 12/4/2012 3:06:57.
Show responses
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| Timestamp |
12/4/2012 3:06:57 |
| Other condition not listed here? |
Halo Nevus |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 12/4/2012 3:07:43.
Show responses
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| Timestamp |
12/4/2012 3:07:43 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 12/4/2012 3:18:42.
Show responses
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| Timestamp |
12/4/2012 3:18:42 |
| Have you ever been diagnosed with one of the following conditions? |
Narcolepsy |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 12/4/2012 3:21:42.
Show responses
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| Timestamp |
12/4/2012 3:21:42 |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 12/4/2012 3:22:02.
Show responses
|
| Timestamp |
12/4/2012 3:22:02 |
| Have you ever been diagnosed with one of the following conditions? |
Varicocele |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 12/5/2012 19:04:51.
Show responses
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| Timestamp |
12/5/2012 19:04:51 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 12/5/2012 19:05:30.
Show responses
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| Timestamp |
12/5/2012 19:05:30 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 12/5/2012 19:06:14.
Show responses
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| Timestamp |
12/5/2012 19:06:14 |
| Have you ever been diagnosed with any of the following conditions? |
Flatfeet |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 3/3/2014 17:58:48.
Show responses
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| Timestamp |
3/3/2014 17:58:48 |
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Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020
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Responses submitted 3/23/2020 19:12:31.
Show responses
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| Timestamp |
3/23/2020 19:12:31 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Are you currently experiencing any of the following symptoms? [Headache] |
No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
| Are you currently experiencing any of the following symptoms? [Cough] |
No |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] |
No |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
| Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
No |
| Are you currently experiencing any of the following symptoms? [Running nose] |
No |
| Are you currently experiencing any of the following symptoms? [Sore throat] |
No |
| Are you currently experiencing any of the following symptoms? [Nausea] |
No |
| Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
No |
| Are you currently experiencing any of the following symptoms? [Diarrhea] |
No |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I tried to get tested but could not get a test |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
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Harvard PGP: COVID-19 Demographics Survey
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Responses submitted 3/23/2020 19:16:25.
Show responses
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| Timestamp |
3/23/2020 19:16:25 |
| What is the zip code of your primary residence? |
02446 |
| Do have another residence where you spend more than 30 days a year? |
Yes |
| What is the zip code of your secondary residence (where you spend at least 30 days per year)? |
02543 |
| What is your age (in years)? |
49 |
| What is your gender? |
Male |
| Select all the following that apply to your current living arrangements. |
Live with partner/spouse, Live with child/children under age 18, Live with parent(s) |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Prefer not to answer |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
Yes |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
Yes |
| Do you currently smoke tobacco products? |
No |
| What is the average number of cigarettes (# of cigarettes not packs) you smoke per day? |
less than 5 |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Employed: Working 40 or more hrs per week |
| Select the category that best describes your occupation. |
Life, Physical, and Social Science |
| What is the zip code of your primary workplace/worksite? |
02115 |
| Do you have a secondary workplace/worksite where you work more than 30 days a year? |
No |
| If a vaccine against coronovirus (COVID-19) would reach the stage where it must be tested for safety and efficacy in humans, would you - assuming that you are eligible - be interested in taking part in that trial? |
No |