Personal Genome Project

Log in  

Public Profile -- hu9002DE

Public profile url: https://my.pgp-hms.org/profile/hu9002DE

Personal Health Records

Demographic Information

Date of Birth1943-04-20 (81 years old)
GenderMale
Weight195lbs (88kg)
Height6ft (182cm)
Blood TypeB+
RaceWhite

Conditions

Name Start Date End Date
Possible genetic vascular defect 1943-04-01

Medications

Name Dosage Frequency Start Date End Date

Allergies

Name Reaction/Severity Start Date End Date

Procedures

Name Date

Test Results

Name Result Date
Diastolic Blood Pressure 80 mmHg 2011-12-25
Height 72 in 2011-12-25
Hours slept 8 hours 2011-12-25
Hours slept 8 hours 2011-12-25
Systolic Blood Pressure 120 mmHg 2011-12-25
Weight 195 lb 2011-12-25
Weight 195 lb 2011-12-25

Immunizations

Name Date

Updated: 2011-12-25T00:39:10.009Z

Samples

Saliva Collection for Multiple Studies Sample 80673526 (saliva) mailed 2011-11-28 18:31:39 UTC by hu9002DE.   Show log
2011-11-28 18:31:39 UTC hu9002DE Sample returned to researcher
2011-11-28 18:29:01 UTC hu9002DE Sample received by participant
2011-11-26 03:04:34 UTC Harvard University / TeloMe, Inc. Sample sent
2011-11-21 21:26:49 UTC Harvard University / TeloMe, Inc. Sample created
Sample 46236560 (saliva) received 2011-12-03 23:39:05 UTC by Harvard University / TeloMe, Inc..   Show log
2012-03-26 19:10:16 UTC Harvard University / TeloMe, Inc. A new sample 69660807 was derived from this sample
2012-03-21 19:24:11 UTC Harvard University / TeloMe, Inc. A new sample 62613507 was derived from this sample
2012-03-21 19:23:36 UTC Harvard University / TeloMe, Inc. A new sample 72481121 was derived from this sample
2011-12-03 23:39:17 UTC Harvard University / TeloMe, Inc. Sample transferred to plate 62817412 (id=6) well D05 (id=41)
2011-12-03 23:39:05 UTC Harvard University / TeloMe, Inc. Sample received by researcher (scan)
2011-11-28 18:31:39 UTC hu9002DE Sample returned to researcher
2011-11-28 18:29:02 UTC hu9002DE Sample received by participant
2011-11-26 03:04:34 UTC Harvard University / TeloMe, Inc. Sample sent
2011-11-21 21:26:49 UTC Harvard University / TeloMe, Inc. Sample created
Saliva Re-collection for Multiple Studies Sample 78909294 (saliva) received 2012-05-07 23:10:28 UTC by Harvard University / TeloMe, Inc..   Show log
2012-05-07 23:10:28 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-03-30 18:41:48 UTC hu9002DE Sample returned to researcher
2012-03-30 18:36:45 UTC hu9002DE Sample received by participant
2012-03-25 00:37:14 UTC Harvard University / TeloMe, Inc. Sample sent
2012-03-06 15:29:26 UTC Harvard University / TeloMe, Inc. Sample created
Sample 90523405 (saliva) received 2012-05-07 23:10:07 UTC by Harvard University / TeloMe, Inc..   Show log
2012-05-07 23:10:07 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-03-30 18:41:48 UTC hu9002DE Sample returned to researcher
2012-03-30 18:36:45 UTC hu9002DE Sample received by participant
2012-03-25 00:37:14 UTC Harvard University / TeloMe, Inc. Sample sent
2012-03-06 15:29:26 UTC Harvard University / TeloMe, Inc. Sample created
Sample 49818531 (saliva) received 2012-05-07 23:10:20 UTC by Harvard University / TeloMe, Inc..   Show log
2012-05-07 23:10:20 UTC Harvard University / TeloMe, Inc. Sample received by researcher
2012-03-30 18:41:48 UTC hu9002DE Sample returned to researcher
2012-03-30 18:36:45 UTC hu9002DE Sample received by participant
2012-03-25 00:37:14 UTC Harvard University / TeloMe, Inc. Sample sent
2012-03-06 15:29:26 UTC Harvard University / TeloMe, Inc. Sample created

Uploaded data

None available.

Geographic Information

State:Minnesota
Zip code:55410

Family Members Enrolled

None added.

Surveys

PGP Participant Survey Responses submitted 9/20/2011 19:32:20. Show responses
Timestamp 9/20/2011 19:32:20
Year of birth 60-69 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Ability to perceive relationships among events, phenomena, people etc. which others see as disconnected. Abilty to think objectively & quantitatively about all phenomena, reguardless of emotogenic connotations.
Disease/trait: Onset Congenital / present at birth
Disease/trait: Rarity Uncommon
Disease/trait: Severity Not applicable
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Not applicable
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin United States
Paternal grandmother: Country of origin United States
Paternal grandfather: Country of origin United States
Maternal grandfather: Country of origin United States
Enrollment of relatives No
Enrollment of older individuals Yes
Enrollment of parents No
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? No, but I plan to
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Participant Survey Responses submitted 11/28/2011 14:01:16. Show responses
Timestamp 11/28/2011 14:01:16
Year of birth 60-69 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Ability to perceive relationships among, & implications of, data that others rarely seem to perceive. Cognitive objectivity.
Disease/trait: Onset Congenital / present at birth
Disease/trait: Rarity Very rare/uncommon
Disease/trait: Severity Not applicable
Disease/trait: Relative enrollment Yes, I have one or more affected relatives who have expressed an interest
Disease/trait: Diagnosis Not applicable
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin Sweden
Paternal grandmother: Country of origin Germany
Paternal grandfather: Country of origin United Kingdom
Maternal grandfather: Country of origin Sweden
Enrollment of relatives Yes
Enrollment of older individuals Yes
Enrollment of parents No
Enrolled relatives [Children] 1
Are all your enrolled relatives linked to your PGP profile? Yes
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? Yes
Uploaded health records: Update status Yes
Uploaded health records: Extensiveness 3
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy Yes
PGP Participant Survey Responses submitted 12/24/2011 20:51:51. Show responses
Timestamp 12/24/2011 20:51:51
Year of birth 60-69 years
Which statement best describes you? I am comfortable making my genome sequence data publicly available without prior review.
Severe disease or rare genetic trait Yes
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. Probable Genetic Vascular Defect: My biological mother died at age 55 from a burst berry aneurysm of the Circle of Willis. As a child she hasuffered so much from what is commonly called "prickly heat" that she had to drop out of hi school for a year. I sometimes had prickly heat on my chest as a child, but never so severely that it changed my life activities. At birth I had 2 strawberry birthmarks - one just below my left clavicle, and a larger one, about 2" x1" in size, located 1" to the left of my lumbar vertebrae. They were burned off with Radium when I was a baby. At age 30 a cavernous hemangioma was found in the upper frontal bone of my skull. It was removed & replaced by a plastic plate. A CAT scan at age 60 reported no signs of brain aneurysms.
Disease/trait: Onset Congenital / present at birth
Disease/trait: Rarity Very rare/uncommon
Disease/trait: Severity Moderate severity disease
Disease/trait: Relative enrollment Maybe
Disease/trait: Diagnosis Yes
Disease/trait: Genetic confirmation No
Disease/trait: Documentation Yes
Disease/trait: Documentation description Neuro surgeon's description of my cavernous hemangioma & his surgical removal of it.
Sex/Gender Male
Race/ethnicity White
Maternal grandmother: Country of origin Sweden
Paternal grandmother: Country of origin Germany
Paternal grandfather: Country of origin United Kingdom
Maternal grandfather: Country of origin Sweden
Enrollment of relatives Yes
Enrollment of older individuals Yes
Enrollment of parents No
Enrolled relatives [Children] 1
Are all your enrolled relatives linked to your PGP profile? Yes
Have you uploaded genetic data to your PGP participant profile? No, I have no genetic data.
Have you used the PGP web interface to record a designated proxy? Yes
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? Yes
Uploaded health records: Update status No
Uploaded health records: Extensiveness 2
Blood sample Yes
Saliva sample Yes
Microbiome samples Yes
Tissue samples from surgery Yes
Tissue samples from autopsy No

Absolute Pitch Survey [see all responses]

Can tell if notes are in tune: No
Can sing a melody on key: No
Can recognize musical intervals: Not sure
Do you have absolute pitch? No

Enrollment History

Participant ID:hu9002DE
Account created:2011-09-16 11:09:00 UTC
Eligibility screening:2011-09-16 11:27:26 UTC (passed v2)
Exam:2011-09-16 14:13:35 UTC (passed v2)
Consent:2015-08-06 14:31:10 UTC (passed v20150505)
Enrolled:2011-09-20 21:48:01 UTC