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PGP Participant Survey
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Responses submitted 7/16/2011 19:24:03.
Show responses
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| Timestamp |
7/16/2011 19:24:03 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 11/30/2011 3:42:27.
Show responses
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| Timestamp |
11/30/2011 3:42:27 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 10/9/2012 23:01:24.
Show responses
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| Timestamp |
10/9/2012 23:01:24 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I am undergoing testing to determine whether I have celiac's disease or a gluten sensitivity. Based on family health history, my doctor suspects celiac's. I am currently waiting on the results of my gluten challenge and following egd/biopsy. |
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
No |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/9/2012 23:02:09.
Show responses
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| Timestamp |
10/9/2012 23:02:09 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/9/2012 23:03:01.
Show responses
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| Timestamp |
10/9/2012 23:03:01 |
| Have you ever been diagnosed with any of the following conditions? |
Polycystic ovary syndrome (PCOS), Lactose intolerance |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/9/2012 23:03:49.
Show responses
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| Timestamp |
10/9/2012 23:03:49 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/9/2012 23:05:07.
Show responses
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| Timestamp |
10/9/2012 23:05:07 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness) |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 10/9/2012 23:05:58.
Show responses
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| Timestamp |
10/9/2012 23:05:58 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic tonsillitis, Asthma |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/9/2012 23:06:40.
Show responses
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| Timestamp |
10/9/2012 23:06:40 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Gastroesophageal reflux disease (GERD) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/9/2012 23:07:06.
Show responses
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| Timestamp |
10/9/2012 23:07:06 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI), Ovarian cysts |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/9/2012 23:07:31.
Show responses
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| Timestamp |
10/9/2012 23:07:31 |
| Have you ever been diagnosed with any of the following conditions? |
Skin tags, Hair loss (includes female and male pattern baldness), Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/9/2012 23:08:03.
Show responses
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| Timestamp |
10/9/2012 23:08:03 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis |