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PGP Participant Survey
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Responses submitted 7/17/2011 0:21:11.
Show responses
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| Timestamp |
7/17/2011 0:21:11 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Multiple Sclerosis |
| Disease/trait: Onset |
40-49 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I have had MRIs and spinal fluid analysis to confirm diagnosis of Multiple Sclerosis and also several followup MRIs to follow progress of the disease. I do not have the MRI films or lab results in my possession, but they are available and I believe I can request copies of them if that would be advantageous to the project.
|
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United Kingdom |
| Paternal grandfather: Country of origin |
United Kingdom |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 9/17/2011 13:10:14.
Show responses
|
| Timestamp |
9/17/2011 13:10:14 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I have multiple sclerosis, which previous research has indicated to have a significant genetic component. |
| Disease/trait: Onset |
50-59 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
There is no genetic test for multiple sclerosis. Diagnosis is based on clinical symptoms and confirmed by MRI and lumbar puncture showing oligoclonal bands in the spinal fluid. I have had several MRIs showing characteristic signs and had a spinal fluid electrophoresis showing oligoclonal bands. These tests were done by a neurologist at Kaiser Permanente in Los Angeles and I believe I could request copies of them if that would be of interest, although I have not yet done so.
|
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United Kingdom |
| Paternal grandfather: Country of origin |
United Kingdom |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
|
Responses submitted 6/15/2012 20:43:58.
Show responses
|
| Timestamp |
6/15/2012 20:43:58 |
| Year of birth |
60-69 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Multiple Sclerosis |
| Disease/trait: Onset |
50-59 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
CSF with oligoclonal bands
Brain and spinal cord MRIs with and without gadolinium enhancement
Evoked Potential testing
|
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United Kingdom |
| Paternal grandfather: Country of origin |
United Kingdom |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 1/22/2013 23:58:12.
Show responses
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| Timestamp |
1/22/2013 23:58:12 |
| Other condition not listed here? |
cryptorchidism |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 1/23/2013 0:01:10.
Show responses
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| Timestamp |
1/23/2013 0:01:10 |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 1/23/2013 0:03:51.
Show responses
|
| Timestamp |
1/23/2013 0:03:51 |
| Have you ever been diagnosed with any of the following conditions? |
Skin tags, Hair loss (includes female and male pattern baldness), Acne |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 1/23/2013 0:05:41.
Show responses
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| Timestamp |
1/23/2013 0:05:41 |
| Have you ever been diagnosed with any of the following conditions? |
Male infertility |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 1/23/2013 0:07:08.
Show responses
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| Timestamp |
1/23/2013 0:07:08 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Inguinal hernia |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 1/23/2013 0:09:12.
Show responses
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| Timestamp |
1/23/2013 0:09:12 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 1/23/2013 0:10:53.
Show responses
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| Timestamp |
1/23/2013 0:10:53 |
| Have you ever been diagnosed with one of the following conditions? |
Varicose veins, Hemorrhoids |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 1/23/2013 0:12:21.
Show responses
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| Timestamp |
1/23/2013 0:12:21 |
| Have you ever been diagnosed with one of the following conditions? |
Presbyopia, Floaters |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 1/23/2013 0:14:07.
Show responses
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| Timestamp |
1/23/2013 0:14:07 |
| Have you ever been diagnosed with one of the following conditions? |
Multiple sclerosis (MS) |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 1/23/2013 0:15:07.
Show responses
|
| Timestamp |
1/23/2013 0:15:07 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 1/23/2013 0:16:40.
Show responses
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| Timestamp |
1/23/2013 0:16:40 |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 1/23/2013 0:18:58.
Show responses
|
| Timestamp |
1/23/2013 0:18:58 |
| Have you ever been diagnosed with one of the following conditions? |
Non-melanoma skin cancer |
| Other condition not listed here? |
testicular cancer (seminoma) |
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PGP Basic Phenotypes Survey 2015
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Responses submitted 10/13/2015 14:31:45.
Show responses
|
| Timestamp |
10/13/2015 14:31:45 |
| 1.1 — Blood Type |
O - |
| 1.2 — Height |
6'0" |
| 1.3 — Weight |
169 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) |
7 |
| 2.3 — Left Eye Color - Text Description |
blue with light colored streaks and a concentric band of dark spots |
| 2.4 — Right Eye Color - Text Description |
same |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? |
brown |
| 3.2 — Hair Color - Text Description |
light brown |
| 3.3 — Comments |
Blonde as a child. Has darkened, now dark blonde, not really blonde or brown. I put brown on my drivers license but it's a different color from those who are born brown haired, |
| 1.4 — Handedness |
Right |
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Harvard PGP COVID-19 Health Assessment Week 4: 12 April - 18 April 2020
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Responses submitted 4/18/2020 2:39:23.
Show responses
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| Timestamp |
4/18/2020 2:39:23 |
| Are you currently ill with a cold or flu-like illness? |
No |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
No |
| Currently are you experiencing ANY of the above list of symptoms? |
No |
| In the past two weeks, have you experienced ANY of the above list of symptoms? |
No |
| Since Jan 1, 2020, to the best of your recollection,have you experienced ANY of the above list of symptoms? |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
No, I have not tried to get tested |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |
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Harvard PGP: COVID-19 Demographics Survey
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Responses submitted 4/18/2020 2:48:06.
Show responses
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| Timestamp |
4/18/2020 2:48:06 |
| What is the zip code of your primary residence? |
91205 |
| Do have another residence where you spend more than 30 days a year? |
No |
| What is your age (in years)? |
74 |
| What is your gender? |
Male |
| Select all the following that apply to your current living arrangements. |
Live with partner/spouse |
| What is your race? Pick all that apply. |
White |
| What is your ethnicity? |
Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. |
None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] |
No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] |
No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] |
No |
| Have you ever been diagnosed with any of the following? [Emphysema] |
No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] |
No |
| Have you ever been diagnosed with any of the following? [Pneumonia] |
No |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] |
No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] |
No |
| Have you ever smoked tobacco products? |
No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? |
No |
| Which one of the following best describes your employment status for the past 3 months? |
Retired |
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Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020
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Responses submitted 7/17/2022 21:52:34.
Show responses
|
| Timestamp |
7/17/2022 21:52:34 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] |
No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] |
No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] |
No |
| Are you currently experiencing any of the following symptoms? [Headache] |
No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] |
No |
| Are you currently experiencing any of the following symptoms? [Cough] |
No |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] |
No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] |
No |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] |
No |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] |
No |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] |
No |
| Are you currently experiencing any of the following symptoms? [Dizziness] |
No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] |
No |
| Are you currently experiencing any of the following symptoms? [Running nose] |
No |
| Are you currently experiencing any of the following symptoms? [Sore throat] |
No |
| Are you currently experiencing any of the following symptoms? [Nausea] |
No |
| Are you currently experiencing any of the following symptoms? [Vomiting] |
No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] |
No |
| Are you currently experiencing any of the following symptoms? [Diarrhea] |
No |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] |
No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] |
No |
| Are you regularly taking any of the following medications? Please choose all those that apply. |
None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? |
Yes, and the test was negative for coronavirus (COVID-19) |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? |
No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? |
No |