PGP Participant Survey
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Responses submitted 5/14/2012 18:32:26.
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Timestamp |
5/14/2012 18:32:26 |
Year of birth |
40-49 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
bleeding disorder,hypermobility wiih pain |
Disease/trait: Onset |
Congenital / present at birth |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
No |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
No |
Sex/Gender |
Female |
Race/ethnicity |
No response |
Maternal grandmother: Country of origin |
Ireland |
Paternal grandmother: Country of origin |
Other / don't know / no response |
Paternal grandfather: Country of origin |
Germany |
Maternal grandfather: Country of origin |
Other / don't know / no response |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
Maybe |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
No |
Tissue samples from autopsy |
No |