Public Profile -- hu3F8570
Public profile url: https://my.pgp-hms.org/profile/hu3F8570
Personal Health Records
None added.Samples
None available.Uploaded data
| Date | Data type | Source | Name | Download | Report | |
|---|---|---|---|---|---|---|
| 23andMe | Participant | 23andMeToo |
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(7.83 MB) |
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• female • 945,710 positions covered • ref. b36 |
Geographic Information
| State: | Michigan |
| Zip code: | 49315 |
Family Members Enrolled
| child | linked 2012-08-14 02:16:40 UTC |
Surveys
| PGP Participant Survey | Responses submitted 5/9/2012 15:38:57. Show responses |
|---|---|
| Timestamp | 5/9/2012 15:38:57 |
| Year of birth | 50-59 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | No |
| Sex/Gender | Female |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United States |
| Paternal grandmother: Country of origin | United States |
| Paternal grandfather: Country of origin | United States |
| Maternal grandfather: Country of origin | United States |
| Enrollment of relatives | No |
| Enrollment of older individuals | No |
| Enrollment of parents | No |
| Have you uploaded genetic data to your PGP participant profile? | No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? | Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | No, but I plan to |
| Blood sample | No |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
| PGP Participant Survey | Responses submitted 6/13/2012 18:00:08. Show responses |
| Timestamp | 6/13/2012 18:00:08 |
| Year of birth | 50-59 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | I have been living with Chronic Fatigue Syndrome for nearly 24 years now. I believe there is a genetic susceptibility to CFS and I'm hoping you can find something in my DNA that might point towards a cause and a cure. |
| Disease/trait: Onset | 30-39 years of age |
| Disease/trait: Rarity | Uncommon |
| Disease/trait: Severity | Moderate severity disease |
| Disease/trait: Relative enrollment | No |
| Disease/trait: Diagnosis | Yes |
| Disease/trait: Genetic confirmation | No |
| Disease/trait: Documentation | Yes |
| Disease/trait: Documentation description | Since there is no known cause for Chronic Fatigue Syndrome there is no test for it. Basically, I've had tests to rule out other diseases with the same symptoms. |
| Sex/Gender | Female |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United States |
| Paternal grandmother: Country of origin | United States |
| Paternal grandfather: Country of origin | United States |
| Maternal grandfather: Country of origin | United States |
| Enrollment of relatives | No |
| Enrollment of older individuals | Yes |
| Enrollment of parents | No |
| Have you uploaded genetic data to your PGP participant profile? | Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? | No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | No, but I plan to |
| Blood sample | Yes |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
| PGP Trait & Disease Survey 2012: Cancers | Responses submitted 12/10/2012 11:12:22. Show responses |
| Timestamp | 12/10/2012 11:12:22 |
| PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity | Responses submitted 12/10/2012 11:13:13. Show responses |
| Timestamp | 12/10/2012 11:13:13 |
| Have you ever been diagnosed with any of the following conditions? | Hypothyroidism, High cholesterol (hypercholesterolemia) |
| PGP Trait & Disease Survey 2012: Blood | Responses submitted 12/10/2012 11:13:56. Show responses |
| Timestamp | 12/10/2012 11:13:56 |
| PGP Trait & Disease Survey 2012: Nervous System | Responses submitted 12/10/2012 11:15:00. Show responses |
| Timestamp | 12/10/2012 11:15:00 |
| Have you ever been diagnosed with one of the following conditions? | Recurrent sleep paralysis, Migraine with aura, Other peripheral neuropathy |
| PGP Trait & Disease Survey 2012: Vision and hearing | Responses submitted 12/10/2012 11:16:03. Show responses |
| Timestamp | 12/10/2012 11:16:03 |
| Have you ever been diagnosed with one of the following conditions? | Myopia (Nearsightedness), Astigmatism, Presbyopia, Floaters, Tinnitus |
| PGP Trait & Disease Survey 2012: Circulatory System | Responses submitted 12/10/2012 11:16:45. Show responses |
| Timestamp | 12/10/2012 11:16:45 |
| Have you ever been diagnosed with one of the following conditions? | Cardiac arrhythmia, Hemorrhoids |
| PGP Trait & Disease Survey 2012: Respiratory System | Responses submitted 12/10/2012 11:17:23. Show responses |
| Timestamp | 12/10/2012 11:17:23 |
| Have you ever been diagnosed with any of the following conditions? | Deviated septum, Chronic sinusitis, Chronic tonsillitis, Allergic rhinitis |
| PGP Trait & Disease Survey 2012: Digestive System | Responses submitted 12/10/2012 11:18:06. Show responses |
| Timestamp | 12/10/2012 11:18:06 |
| Have you ever been diagnosed with any of the following conditions? | Dental cavities, Gingivitis, Temporomandibular joint (TMJ) disorder, Gastroesophageal reflux disease (GERD), Hiatal hernia, Irritable bowel syndrome (IBS) |
| PGP Trait & Disease Survey 2012: Genitourinary Systems | Responses submitted 12/10/2012 11:19:06. Show responses |
| Timestamp | 12/10/2012 11:19:06 |
| Have you ever been diagnosed with any of the following conditions? | Urinary tract infection (UTI) |
| PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue | Responses submitted 12/10/2012 11:19:44. Show responses |
| Timestamp | 12/10/2012 11:19:44 |
| Have you ever been diagnosed with any of the following conditions? | Eczema, Allergic contact dermatitis, Skin tags |
| PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue | Responses submitted 12/10/2012 11:20:26. Show responses |
| Timestamp | 12/10/2012 11:20:26 |
| Have you ever been diagnosed with any of the following conditions? | Osteoarthritis, Spinal stenosis, Sciatica, Frozen shoulder, Fibromyalgia |
| PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies | Responses submitted 12/10/2012 11:21:34. Show responses |
| Timestamp | 12/10/2012 11:21:34 |
| PGP Participant Survey | Responses submitted 3/10/2017 20:09:03. Show responses |
| Timestamp | 3/10/2017 20:09:03 |
| Year of birth | 1955 |
| Sex/Gender | Female |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United States |
| Paternal grandmother: Country of origin | United States |
| Paternal grandfather: Country of origin | United States |
| Maternal grandfather: Country of origin | United States |
| Month of birth | June |
| Anatomical sex at birth | Female |
| Maternal grandmother: Race/ethnicity | White |
| Maternal grandfather: Race/ethnicity | White |
| Paternal grandmother: Race/ethnicity | White |
| Paternal grandfather: Race/ethnicity | White |
| PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity | Responses submitted 3/10/2017 20:10:35. Show responses |
| Timestamp | 3/10/2017 20:10:35 |
| Have you ever been diagnosed with any of the following conditions? | Hypothyroidism, Hashimoto's thyroiditis |
| Other condition not listed here? | CFS |
| PGP Basic Phenotypes Survey 2015 | Responses submitted 3/10/2017 20:14:03. Show responses |
| Timestamp | 3/10/2017 20:14:03 |
| 1.1 — Blood Type | O + |
| 1.2 — Height | 5'8" |
| 1.3 — Weight | 150 |
| 2.1 — Left Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) | 4 |
| 2.2 — Right Eye (Photograph Number) (full-size image: https://goo.gl/XQ2Voh) | 4 |
| 2.3 — Left Eye Color - Text Description | Blue |
| 2.4 — Right Eye Color - Text Description | same |
| 3.1 — What is your natural hair color currently, when without artificial color or dye? | gray |
| 3.2 — Hair Color - Text Description | Salt and Pepper |
| 1.4 — Handedness | Right |
| Harvard PGP: COVID-19 Demographics Survey | Responses submitted 3/23/2020 23:49:04. Show responses |
| Timestamp | 3/23/2020 23:49:04 |
| What is the zip code of your primary residence? | 49315 |
| Do have another residence where you spend more than 30 days a year? | No |
| What is your age (in years)? | 64 |
| What is your gender? | Female |
| Select all the following that apply to your current living arrangements. | Live with partner/spouse |
| What is your race? Pick all that apply. | White |
| What is your ethnicity? | Not Hispanic or Latino or Spanish Origin |
| Select which one of the following applies to you and your birth status. | None of the above |
| Have you ever been diagnosed with any of the following? [Asthma (Adult)] | No |
| Have you ever been diagnosed with any of the following? [Asthma (Childhood)] | No |
| Have you ever been diagnosed with any of the following? [Chronic obstructive pulmonary disease (COPD)] | No |
| Have you ever been diagnosed with any of the following? [Emphysema] | No |
| Have you ever been diagnosed with any of the following? [Chronic bronchitis] | No |
| Have you ever been diagnosed with any of the following? [Pneumonia] | Yes |
| Have you ever been diagnosed with any of the following? [Type 1 Diabetes] | No |
| Have you ever been diagnosed with any of the following? [Type 2 Diabetes] | No |
| Have you ever smoked tobacco products? | No |
| Have you ever used e-cigarettes (e.g. JUUL, Vuse, MarkTen)? | No |
| Which one of the following best describes your employment status for the past 3 months? | Disabled/Not able to work |
| Harvard PGP: COVID-19 Health Assessment for Week of 22-28 March 2020 | Responses submitted 3/23/2020 23:54:20. Show responses |
| Timestamp | 3/23/2020 23:54:20 |
| Since Jan 1, 2020, have you been ill with a cold or flu-like illness? | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Feeling cold, chills or shivers] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Headache] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Aches all over the body] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Cough] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Rapid breathing] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Shortness of breath] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Wheezing or chest tightness] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Persistent pain or pressure in the chest] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Bluish lips or face] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Dizziness] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Confusion or inability to arouse] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Running nose] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Sore throat] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Nausea] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Vomiting] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Abdominal pain] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Diarrhea] | Yes |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Pink eye (conjunctivitis)] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of smell] | No |
| Since Jan 1, 2020, have you experienced any of the following symptoms? [Loss of sense of taste] | No |
| Are you currently experiencing any of the following symptoms? [Persistent high fever of 38°C (100.4°F) or higher, lasting for a day or more] | No |
| Are you currently experiencing any of the following symptoms? [Feeling cold, chills or shivers] | No |
| Are you currently experiencing any of the following symptoms? [Headache] | No |
| Are you currently experiencing any of the following symptoms? [Aches all over the body] | No |
| Are you currently experiencing any of the following symptoms? [Cough] | No |
| Are you currently experiencing any of the following symptoms? [Rapid breathing] | No |
| Are you currently experiencing any of the following symptoms? [Shortness of breath] | No |
| Are you currently experiencing any of the following symptoms? [Wheezing or chest tightness] | No |
| Are you currently experiencing any of the following symptoms? [Persistent pain or pressure in the chest] | No |
| Are you currently experiencing any of the following symptoms? [Bluish lips or face] | No |
| Are you currently experiencing any of the following symptoms? [Dizziness] | No |
| Are you currently experiencing any of the following symptoms? [Confusion or inability to arouse] | No |
| Are you currently experiencing any of the following symptoms? [Running nose] | Yes |
| Are you currently experiencing any of the following symptoms? [Sore throat] | Yes |
| Are you currently experiencing any of the following symptoms? [Nausea] | No |
| Are you currently experiencing any of the following symptoms? [Vomiting] | No |
| Are you currently experiencing any of the following symptoms? [Abdominal Pain] | No |
| Are you currently experiencing any of the following symptoms? [Diarrhea] | No |
| Are you currently experiencing any of the following symptoms? [Pink eye (conjunctivitis)] | No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of smell] | No |
| Are you currently experiencing any of the following symptoms? [Loss of sense of taste] | No |
| Are you regularly taking any of the following medications? Please choose all those that apply. | None of these medications |
| Have you been tested for coronavirus (COVID-19) by a medical doctor or other official testing service? | No, I tried to get tested but could not get a test |
| In the past 4 weeks, have you been in close contact with a person who has tested positive for coronavirus (COVID-19)? | No |
| In the past 4 weeks, have you been in close contact with a person who has symptoms consistent with coronavirus (COVID-19) but has not been tested? | No |
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: No
Can sing a melody on key: No
Can recognize musical intervals: No
Do you have absolute pitch? No
Enrollment History
| Participant ID: | hu3F8570 |
| Account created: | 2012-05-06 18:53:53 UTC |
| Eligibility screening: | 2012-05-06 19:00:28 UTC (passed v2) |
| Exam: | 2012-05-06 19:36:37 UTC (passed v2) |
| Consent: | 2015-08-06 14:32:01 UTC (passed v20150505) |
| Enrolled: | 2012-05-09 14:57:38 UTC |