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PGP Participant Survey
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Responses submitted 11/28/2011 21:49:45.
Show responses
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| Timestamp |
11/28/2011 21:49:45 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
psoriatic arthritis
hashimoto's thyroiditis (answering questions on this disease below) |
| Disease/trait: Onset |
10-19 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I think that I have test result desriptions (no images) of biopsies, iodine uptake tests, etc. After they removed the thyroid they found a small malignancy on it and I might have those results as well. I don't have all of my tests since they go back over 30 years, but I'm sure I have blood tests and some scan results. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
3 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/31/2012 13:30:49.
Show responses
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| Timestamp |
10/31/2012 13:30:49 |
| Have you ever been diagnosed with one of the following conditions? |
Thyroid cancer |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/31/2012 13:31:28.
Show responses
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| Timestamp |
10/31/2012 13:31:28 |
| Have you ever been diagnosed with any of the following conditions? |
Thyroid nodule(s), Hashimoto's thyroiditis, Lactose intolerance |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/31/2012 13:31:51.
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| Timestamp |
10/31/2012 13:31:51 |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 10/31/2012 13:32:39.
Show responses
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| Timestamp |
10/31/2012 13:32:39 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/31/2012 13:33:16.
Show responses
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| Timestamp |
10/31/2012 13:33:16 |
| Have you ever been diagnosed with one of the following conditions? |
Myopia (Nearsightedness), Astigmatism, Floaters, Tinnitus |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 10/31/2012 13:34:11.
Show responses
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| Timestamp |
10/31/2012 13:34:11 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 10/31/2012 13:34:34.
Show responses
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| Timestamp |
10/31/2012 13:34:34 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic sinusitis, Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/31/2012 13:35:12.
Show responses
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| Timestamp |
10/31/2012 13:35:12 |
| Have you ever been diagnosed with any of the following conditions? |
Impacted tooth, Dental cavities, Temporomandibular joint (TMJ) disorder, Hiatal hernia, Irritable bowel syndrome (IBS) |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/31/2012 13:37:09.
Show responses
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| Timestamp |
10/31/2012 13:37:09 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI), Fibrocystic breast disease |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 10/31/2012 13:40:12.
Show responses
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| Timestamp |
10/31/2012 13:40:12 |
| Have you ever been diagnosed with any of the following conditions? |
Allergic contact dermatitis, Rosacea, Psoriasis, Skin tags, Acne |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/31/2012 13:41:13.
Show responses
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| Timestamp |
10/31/2012 13:41:13 |
| Have you ever been diagnosed with any of the following conditions? |
Frozen shoulder, Plantar fasciitis, Scoliosis |
| Other condition not listed here? |
psoriatic arthritis |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/31/2012 13:42:18.
Show responses
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| Timestamp |
10/31/2012 13:42:18 |