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PGP Participant Survey
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Responses submitted 2/26/2013 17:52:33.
Show responses
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| Timestamp |
2/26/2013 17:52:33 |
| Year of birth |
21-29 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
HSV1 - father, aunt, cousins have this. Mine appears on my left eyebrow. First outbreak was in 1995, I was 8 years old. |
| Disease/trait: Onset |
Before 10 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Not applicable |
| Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives who have expressed an interest |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
Yes |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
Hispanic or Latino, White |
| Maternal grandmother: Country of origin |
United Kingdom |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 2/26/2013 18:03:16.
Show responses
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| Timestamp |
2/26/2013 18:03:16 |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 2/26/2013 18:04:55.
Show responses
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| Timestamp |
2/26/2013 18:04:55 |
| Have you ever been diagnosed with any of the following conditions? |
Hypothyroidism, Polycystic ovary syndrome (PCOS), Lactose intolerance |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 2/26/2013 18:29:53.
Show responses
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| Timestamp |
2/26/2013 18:29:53 |
| Have you ever been diagnosed with any of the following conditions? |
Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Peptic ulcer (stomach or duodenum) |