Public Profile -- hu34C626
Public profile url: https://my.pgp-hms.org/profile/hu34C626
Personal Health Records
None added.Samples
None available.Uploaded data
None available.Geographic Information
| State: | Illinois |
| Zip code: | 61455 |
Family Members Enrolled
None added.Surveys
| PGP Participant Survey | Responses submitted 12/23/2012 15:24:23. Show responses |
|---|---|
| Timestamp | 12/23/2012 15:24:23 |
| Year of birth | 40-49 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | Thalassemia alpha minor |
| Disease/trait: Onset | Congenital / present at birth |
| Disease/trait: Rarity | Very rare/uncommon |
| Disease/trait: Severity | Low severity disease |
| Disease/trait: Relative enrollment | Maybe |
| Disease/trait: Diagnosis | Yes |
| Disease/trait: Genetic confirmation | Yes |
| Disease/trait: Documentation | Yes |
| Disease/trait: Documentation description | Electronic health account that I can print out, scan and upload |
| Sex/Gender | Female |
| Race/ethnicity | Asian |
| Maternal grandmother: Country of origin | Malaysia |
| Paternal grandmother: Country of origin | Malaysia |
| Paternal grandfather: Country of origin | Malaysia |
| Maternal grandfather: Country of origin | Malaysia |
| Enrollment of relatives | No |
| Enrollment of older individuals | Yes |
| Enrollment of parents | Maybe |
| Have you uploaded genetic data to your PGP participant profile? | No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? | Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | No, but I plan to |
| Blood sample | Yes |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
| PGP Trait & Disease Survey 2012: Blood | Responses submitted 2/25/2013 23:46:06. Show responses |
| Timestamp | 2/25/2013 23:46:06 |
| Other condition not listed here? | Thalassemia |
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: Yes
Can sing a melody on key: Yes
Can recognize musical intervals: Yes
Do you have absolute pitch? No
Enrollment History
| Participant ID: | hu34C626 |
| Account created: | 2012-12-08 03:50:15 UTC |
| Eligibility screening: | 2012-12-08 04:07:12 UTC (passed v2) |
| Exam: | 2012-12-08 04:33:42 UTC (passed v20120430) |
| Consent: | 2015-08-06 14:32:58 UTC (passed v20150505) |
| Enrolled: | 2012-12-09 19:29:45 UTC |